Hi new here and flare starting

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jazzgtrl4
Regular Member


Date Joined Aug 2009
Total Posts : 302
   Posted 8/22/2009 11:05 AM (GMT -6)   
Well hi. im new here been in remission for 4 years. Ive been out of the UC lopp for awile, but i guess im back now. I think im having a mild flare. Im going 2 to 3 times a day. It started Monday with what i thought was a little blood on the tissue (mixed in very lightly)but just thought it was something i ate. next day no blood. next day no blood, but thought there was some mucus. No diarrhea. This morning blood mixed in on the poop. No bright red blood. just looks mixed in and some on the tissue. sorry for being so graphic. anyway i was on Colozal as well as doing Canasa. Should i hop back on those right away? or wait for a min and see what happens. Both meds are probably out dated! I know i should go see my GI eventually but it seems pretty mild right now. thanks

Post Edited (jazzgtrl4) : 8/22/2009 10:31:26 AM (GMT-6)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/22/2009 12:39 PM (GMT -6)   
The standard medical treatment is to continue taking your medications even in remission. Going off of them, as you've learned, can cause flares.

If your meds are outdated, you'll need to see a doctor to get refills. If not, I'd go ahead and start them, but make an appointment with your GI for ongoing supervision and management.
Judy
 Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001. Flared for 5 years, finally in remission with Remicade since March 2006. Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
Avascular necrosis in both shoulders is  my "forever" gift from steroids.
Chronic joint/connective tissue/muscle pain; TKR 05/09 
"My life is an ongoing medical adventure"
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 8/22/2009 1:40 PM (GMT -6)   
Hi..welcome to the forum.

You're flaring...at least to me, and start the meds for sure.

Call and make your appointment asap...takes a while to get in.

I understand the want to put it off because it's "mild"...but if you're bleeding, the fragility of the mucosal layer says it's already been through a process of inflammation and worsening.

If your flare is limited to the lower part of the rectum...as yours sounds like that's good in the way that it's not higher...

Learn how to use your meds effectively.

As well...you should be due for your next c-scope...make arrangements as well for one.

Keep us posted.
quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/22/2009 7:55 PM (GMT -6)   
Yeah, always continue with your medications. I think everyone covered everything.

quincy, how often are we supposed to get them? My doctors told me to get a colonoscopy every ten years then once I'm fifty, every year. Is that right? I haven't had one since the inital one that diagnosed me.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


jazzgtrl4
Regular Member


Date Joined Aug 2009
Total Posts : 302
   Posted 8/22/2009 10:02 PM (GMT -6)   
Thanks for your help. everything everyone has said i figured anyway. I just tapered the meds and didnt feel i needed them, my GI went along with it as well. it was a nice run while it lasted... Ya i hope i dont have to get another scope i HATED it. woke up during in pain.. it was HELL

quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 8/23/2009 12:14 AM (GMT -6)   
Most of us try to get off the meds, with the support of our GIs....Some can, some can't.

ElephantPipe...every 10 years to me isn't enough...I would say for sure every 3 years and depending on one's scope results, that could continue unless needed earlier.

I would dread once a year...but if one has to, one has to.

I am having another one in Sept....it'll be 2 years since my last one. The reason is that I've been up and down since Christmas...lots of emotional stuff plus I'm coming on 55.

My flares are dealt with quickly and I taper fairly conservatively. I'll be staying at twice a week enemas methinks.

If all is well with my biopsies, my doc might stay at every 2 years or back to every 3.

I don't mind having them at all...I love to watch the monitor. I have refused to get the Versed this time. I didn't like the feeling of it after the last scope (but I had a falling accident a week previous to the scope and was still in a lot of pain).

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


jazzgtrl4
Regular Member


Date Joined Aug 2009
Total Posts : 302
   Posted 8/23/2009 10:10 AM (GMT -6)   
anyone ever have this. i started 2 colazal yesterday morn. then 2 last night with a Canasa. solid stool this morn but more blood?!. it seems like it got worse than before. like the meds start something. ive heard of that happening to someone before. o well calling GI tomorrow

quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 8/23/2009 10:40 AM (GMT -6)   
it's NORMAL for healing....slower bms equate to more blood pooling. It's normal...hang tough and give it a few weeks.

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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