Advice/Suggestions...please

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aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 8/22/2009 8:08 PM (GMT -6)   
Hey there! I am usually on the Lupus forum but had a question about some issues I have been having and figured you all could probably lead me in the right direction. For the past few months I have been seeing a lot of mucus in my bowl movements. I went to my primary doc and told them about it and he ordered a stool sample. It came back normal. At that time, I was still passing stool. Well now, it has primarly turned into mucus only with an occasional normal stool. Sometimes I feel like I need to pass gass but it ends up being mucus...it will range from yellow to green to brown with occasional strands of blood. The blood doesnt happen a lot, maybe once a week. This started after I was takin off Imuran and put on Cellcept. I thought the problem was cellcept but I have been off it for awhile now...my current meds are in my signature...could any of these be causing this problem? I am starting to get more and more worried because everytime I use the bathroom, even to urinate, I pass mucus. I don't even think I am passing enough stool to even collect another sample...Anyone have any advice for me? Anyone had this happen to them? Thank you for your answers in advance and sorry this is so gross!!!

Amy

 

21 yrs old, Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril,  Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 


TripleKiss
Regular Member


Date Joined Jul 2009
Total Posts : 21
   Posted 8/22/2009 9:38 PM (GMT -6)   

I would see a GI for this if I were you.  This is exactly what I had when I was diagnosed with UC a few months ago.  They will probably order a colonoscopy for you (but dont worry- its not that bad!)

Good luck!!


DX: UC (Proctitis) January 2009 (age 24)
Status: Currently in flare since Aug 2008 without remission
Medications: Prednisone (tapering), Canasa, anticipating Dipentum after round of Prednisone, Flagyl, Cipro, Align (probiotic), Cortisone Enema, Lialda,
Testing the spinach & sunflower diet (so far so good!), and coconut oil (not so good!)
 


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/22/2009 10:38 PM (GMT -6)   
My stool sample came back fine when I just beginning my UC journey. I was also having a ton of clear poo, mucous, etc. Then it all turned into blood, so, I had to act.

I would talk a GI just to see what they can do for you.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 8/22/2009 10:52 PM (GMT -6)   
They took stool samples, blood tests, lots of stuff for me and it all came back normal. I agree, get a referral to a GI. What was the reason you were taken off Imuran? You might've had the bowel problem the whole time and didn't know it because the Imuran was helping, who knows.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 1xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/22/2009 11:31 PM (GMT -6)   
     That was exactly my symptom when I started with UC back in 98.  A word of warning...do NOT take Fibercon.....that threw me into a tailspin.  See a GI doctor ASAP.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


aimsgirl16
Veteran Member


Date Joined Jun 2008
Total Posts : 1470
   Posted 8/23/2009 9:11 AM (GMT -6)   
Thank you for all the responses!!! I will definatly try to get a referral to a GI. I was taken off of Imuran because I progressed to Kidney Failure due to Lupus and we didnt think that it was helping. but about a month after I came of Imuran, I noticed problems....

Amy

 

21 yrs old, Systemic Lupus , lupus nephritis , raynoids , Carpal Tunnel

Cytoxan, Prednisone, Lupron, Zofran, Mesna, Lisinopril,  Ambien, Flexeril, Ultram, Darvocet, Ferrious Sulfade, Calcium, Vitamin B12, Aspirin 81 mg, Vitamin C

The Old Normal is no more so I and we have to find a New Normal...

 

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