pain in leg and ulcerative proctitis

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Veteran Member

Date Joined Aug 2008
Total Posts : 5951
   Posted 8/22/2009 10:26 PM (GMT -6)   
     Anyone else have pain in their legs that seem to radiate from the ulcerative proctitis?  Was wondering if the ulcers are affecting the nerve endings.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.

Veteran Member

Date Joined May 2008
Total Posts : 574
   Posted 8/23/2009 3:33 AM (GMT -6)   
My legs ache all time and feel really heavy if i have been sitting for a long time they are worse also have lower back ache.
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks

Elite Member

Date Joined May 2003
Total Posts : 30216
   Posted 8/23/2009 9:59 AM (GMT -6)   
It wouldn't be the "ulcers" would, however, be the inflammatory response and what it affects. My flares feel like I did when I had my periods, and that feeling of lower back discomfort it going down my legs is quite disconcerting.

*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Veteran Member

Date Joined Jun 2008
Total Posts : 2865
   Posted 8/23/2009 1:04 PM (GMT -6)   

Yes, Christine, I have same as you know - and I have lower back pain radiating especially down left thigh.  Also, pain in buttocks and tailbone at times.  Heat helps!  Tylenol helps!  But you know - remission would REALLY help!!  Oh well!

Good luck there!


Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.

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