How long is it safe to be on Cort enemas?

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 8/23/2009 6:00 PM (GMT -6)   
     I started this flare the end of May and the doctor has had me on the Cort enemas nightly since the beginning of June.  I recently read where it isn't wise to be on these longer than two weeks because they can erode the mucosa in the rectum!!!!!  GREAT!!  I have a ton of boxes of these things.  No wonder my rectum is still giving me a problem.  I am going to start weening off them pronto.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/23/2009 6:13 PM (GMT -6)   
I've been on cortifoam for as long as a yr before tapering off of it and my GI said it was perfectly fine, and it was.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 8/23/2009 6:15 PM (GMT -6)   
I was on the Cortenemas almost for a year with no ill effects.
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songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3630
   Posted 8/23/2009 6:27 PM (GMT -6)   
I started on Cortenemas at the beginning of October last year and am still on them, end of August (though tring to taper off.....)
Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills a day
Metamucil - 2 doses a day
Cortenemas or Rowasa from time to time
VSL#3, Ultimate Flora Critical Care
Canasa as needed


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 8/23/2009 7:17 PM (GMT -6)   
     Heaves a sigh of relief!!!!!  Thanks!
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning.  Also taking Benicar and Toprol to control high blood pressure.  Getting old is a b****.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/24/2009 10:04 AM (GMT -6)   
Been on Corti Foam for almost a year (great stuff) but I had an recent MRI for my pelvis (having pelvic floor issues which can cause MAJOR pain after a BM) and the MRI showed fat deposition to the ischial rectal fossa...the radiologist who is a friend said this is from the steriod/cortifoam...I am awaiting a response from my GI doc to see if it's a concern. The head of GI at U of M told me cortifiam is ok for long term/maint use providing its only used 2xs per week.
Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30407
   Posted 8/24/2009 12:25 PM (GMT -6)   
bbc...that's not good news, but I can't see using them consistently and not having some side effects because of the steroid.....you certainly have friends in high places.
 
Maybe proctofoam would be a good replacement? lower dosage of steroid....

...off to google ischial rectal fossa...

q


*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/24/2009 7:39 PM (GMT -6)   
bbc, do you see a GI at U of M? Who is it? I'm thinking about switching (If it's in Flint or something nevermind)
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/25/2009 11:20 AM (GMT -6)   

Hi Q,

The levator ani has been very tough to deal with as the pain is the worst I've ever felt,  but I'm hoping it's at least not a Pudendal Nerve issue which is much worse and can be very hard to treat surgically and or with meds. I am off for special pelvic floor PT late this month and thankfully there are very good success rates for PT and levator ani...I haven't been able to sit comfortably in over two months and the burning pain following a BM can be extreme touture : (     I also have been having problems with my upper tailbone/lower saral area which is also very tender at times and creates another area that's hard to sit on...boy all this new stuff has been a true test of my resolve.

Proctofoam is a 1% cortisone vs 10% for the cortifoam but you use proctofoam 2-3 times per day, everyday and after each BM according to their website, but I'll ask my GI about it when he calls. Here the info on proctofoam:

Shake the aerosol container before using. Insert 1 applicatorful into anus 2 or 3 times daily and after each bowel evacuation.

The foam may also be placed on a perianal pad and applied externally as required to relieve pain and itching.

One application contains 375 mg of mucoadhesive base containing 1% hydrocortisone acetate USP (3.75 mg/dose) and 1% pramoxine hydrochloride USP (3.75 mg/dose).

I just wish Rowasa was available in the US as a foam then I'd switch back to Rowasa in a minute.

Thanks,

bbc

 

quincy said...
bbc...that's not good news, but I can't see using them consistently and not having some side effects because of the steroid.....you certainly have friends in high places.
 
Maybe proctofoam would be a good replacement? lower dosage of steroid....

...off to google ischial rectal fossa...

q



Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.

Post Edited (bbc) : 8/25/2009 11:52:19 AM (GMT-6)


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 8/25/2009 11:21 AM (GMT -6)   
 Sorry should have been more specific U of M is University of Miami.
ElephantPipe said...
bbc, do you see a GI at U of M? Who is it? I'm thinking about switching (If it's in Flint or something nevermind)


Dx'd with moderate Pancolits 05/07 better with Pentasa and Cortifoam.
I also take Probiotics, Curcumin, Benefiber and cannot tolerate
artificial sweetners (never could even before UC).
 
 
UC Forum Co-Moderator
I am not a healthcare provider. I am offering support and guidance based upon my own conclusions and/or research. ALWAYS consult with a qualified healthcare provider.

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