Meds and side affects, help provided from CCFA

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Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 8/24/2009 8:13 PM (GMT -6)   
A very good overview of the meds and side affects is found on this link from the CCFA.
Easy viewing and worth it even for the old pros, as there are new research studies included. May save us all from answering lots of questions.
Balancing the Risks and Benefits of Treatment for Inflammatory Bowel Diseases
–Corey A. Siegel, MD
http://www.rmei.com/CCFA139VL/Presentation/player.html
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/24/2009 9:43 PM (GMT -6)   
Cool, I might have to check that out, thanks
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


Durango Kid
Regular Member


Date Joined Jul 2009
Total Posts : 330
   Posted 8/25/2009 12:21 AM (GMT -6)   

Katmom,

Thanks so much for the link.  This answered many of my questions.  Very informative.

 


UC diagnosed  Dec. 2003 after quiting smoking
*Asacol (3)3x daily
*Fish oil
*Probiotics
*Multi-Vitamin
*Spinach & sunflower seed suppliment (this seems to   help!)
*Possibly lactose intolerant (still trying to identify)
*Currently flarring (only 2nd time) Pred 40mg  20mg daily for two  three four weeks then tapering off....
*Back on the hydro cortisone enemas noticing immediate relief.
Femoral Bypass 2006
*Cozzar (for blood pressure)
*Zetia/Welchol (for colesterol)
*Niacin 2000mg daily
 
 


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 8/25/2009 6:29 AM (GMT -6)   
This was an informative session for my husband and daughter---she has been "forgetting" that she needs her other meds, now that the Remi is working. Hard to follow her all of the time and bug her about it, so this provided some logic for taking your meds when you feel so good. Been finding 6mp and Colazal in her bedroom drawers....perhaps this will help. This disease has impacts mentally and physically, doesn't it?
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5965
   Posted 8/25/2009 7:12 AM (GMT -6)   
     My GI doctor's last name is Siegel too...wonder if they are related?  By the way, where do you purchase the spinach and sunflower supplement?
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Slowly coming out of flare.  Meds: Colazal (6 per day), prednisone 10 mgm and tapering weekly, Cort enema nightly, Canasa in morning, Benicar 20 mg for BP, flaxseed oil 3 x a day, fishoil 2 x a day, probiotic 3 x a day, calcium with D 1x a day and multivitamin.
Doctor had me on 100 mgm of 6MP which drastically lowered my white count.  Now off the 6MP pending results of repeat white count. UGH.


Durango Kid
Regular Member


Date Joined Jul 2009
Total Posts : 330
   Posted 8/25/2009 9:52 AM (GMT -6)   
I'm just buying the generic shelled sunflower seeds and frozen spinach at our local super market. I don't think it's a cure, but it seems to sooth my colitis and lessen the D. I'm hopeful that it will aid in remission.
UC diagnosed  Dec. 2003 after quiting smoking
*Asacol (3)3x daily
*Fish oil
*Probiotics
*Multi-Vitamin
*Spinach & sunflower seed suppliment (this seems to   help!)
*Possibly lactose intolerant (still trying to identify)
*Currently flarring (only 2nd time) Pred 40mg  20mg daily for two  three four weeks then tapering off....
*Back on the hydro cortisone enemas noticing immediate relief.
Femoral Bypass 2006
*Cozzar (for blood pressure)
*Zetia/Welchol (for colesterol)
*Niacin 2000mg daily
 
 


Durango Kid
Regular Member


Date Joined Jul 2009
Total Posts : 330
   Posted 8/25/2009 9:55 AM (GMT -6)   
I guess I should add that what I meant by suppliment is actually in addition to my normal diet, not a prepared suppliment.
UC diagnosed  Dec. 2003 after quiting smoking
*Asacol (3)3x daily
*Fish oil
*Probiotics
*Multi-Vitamin
*Spinach & sunflower seed suppliment (this seems to   help!)
*Possibly lactose intolerant (still trying to identify)
*Currently flarring (only 2nd time) Pred 40mg  20mg daily for two  three four weeks then tapering off....
*Back on the hydro cortisone enemas noticing immediate relief.
Femoral Bypass 2006
*Cozzar (for blood pressure)
*Zetia/Welchol (for colesterol)
*Niacin 2000mg daily
 
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 8/25/2009 11:18 AM (GMT -6)   
This presentation is a typical doctor's perspective. The whole purpose of the presentation is to ease patients' fears of taking medication. Even the intro picture shows this with the benefits side being heavier than the risks side. No mention was made of alternative treatments. Surprisingly, no mention was made of typical side effects. I've gotten lots of side effects from prednisone, none of which were mentioned in the presentation.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).

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