diagnosed with uc

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Max89
Regular Member


Date Joined Aug 2009
Total Posts : 152
   Posted 8/25/2009 11:04 AM (GMT -6)   
I'm 20 and was diagnosed with UC yesterday after having a sigmoidoscopy. The only symptoms I've been having are blood (occasionally), mucus, and constipation. As for the sigmoidoscopy, the doctor said that only three areas in my sigmoid colon and rectum seem to be affected, though he has scheduled me for a full colonoscopy just to make sure that it does not extend further up the colon.

Compared to other cases of UC, my condition seems mild, but still the doctor has prescribed me a medication called Salofalk (500mg) which I am supposed to take eight times a day! That's four tablets twice daily. I wasn't really listening to what the doctor was saying when he wrote the prescription since I was too busy staring at the UC leaflet he had handed me, but taking this much medication in one day doesn't seem right to me. Could the pharmacist have misread the prescription? Also, has anyone else ever had this much medication prescribed to them?

Post Edited (Max89) : 8/25/2009 10:08:04 AM (GMT-6)


LochNess
New Member


Date Joined Aug 2009
Total Posts : 4
   Posted 8/25/2009 11:25 AM (GMT -6)   
I don't know about that medications specifically (I was diagnosed last month so I'm still figuring everything out too) but I'm on 6 tablets of 800mg of Asacol and I'm also tapering off of Prednisone that started at 45mg/day. I've seen a few other signatures where people are taking a lot more medications than that though so it's probably not too uncommon.


Diagnosed with UC August '09 (age:21)

Asacol-> 6/day
Prednisone-> Started at 45mg (3pills 3x/day)
Currently 20 mg (2pills 2x/day)
(tapering off and should be finished in the next few weeks)


Max89
Regular Member


Date Joined Aug 2009
Total Posts : 152
   Posted 8/25/2009 11:44 AM (GMT -6)   
I'm pretty sure that Asacol is in the same category of meds as Salofalk. Also, how bad is your UC?

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 8/25/2009 12:15 PM (GMT -6)   
Just letting you know as my symptoms were mild as well when it first strated out and I didn't realize they would worsen. there are 2 diets which may be able to help. some people say don't change your diet but i feel that one should try. there is the SCD and the Raw foods. for most people they try the SCD as it is a bit less strict than the raw foods, but its wroth trying to reduce your symptoms.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

BowelsofThunder
Regular Member


Date Joined Aug 2009
Total Posts : 20
   Posted 8/25/2009 12:17 PM (GMT -6)   
Hi Max,
When I had my first colonoscopy done in 2005 I had very minimal symptoms, so much so that most people would of not had a reason to see the doc. But, I knew something wasn't right. The scope showed minute ulcerations only at my cecum everything else looked and biopsied normal. Biopsy on it came back as UC. I was offered Colazal at the time and declined it. Like you it seemed like an awful lot of meds for minor symptoms. Two years later I am back and this time with blood and mucus. That scope showed the same ulcerations at the cecum along with minute ulcerations at the rectum. Asacol was offered and I took it. I should of taken rectal meds though but declined because the blood and mucus stopped after one week on Asacol. Now two years later and I am back again for a scope tommorrow. This time with non stop diaherra with everything that I eat (I never had this symptom before). No blood or mucus, but now I am thinking that the rectal inflammation has spread. My advice to you is take the meds. This stuff sppreads. If you choose not to take the meds than at least get a scope every two years to make sure it is not spreading. I know it seems like overkill to you now, it did to me then and now I wish I would of started on something right after the first scope. Oh by the way .... get yourself on a good probiotic.
Zurich

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/25/2009 12:29 PM (GMT -6)   
Hi, I'm really sorry you have this DD, but welcome to HealingWell.

Eight pills a day is a totally normal dose of this medication. Many people take 12 pills each day. It's sad, but most of the maintenance medications for this condition require a lot of large pills.

As far as diet, that varies from person to person. One way to start out is to keep a food diary for a couple of months, then look back and see if there are any patterns as far as what foods bother you. Then avoid the foods that seem to make you worse.

It's very important to remember that this is a chronic disease, curable only by surgery. It will come and go (flares and remissions), but in general will come less frequently and less fiercely if you take your maintenance medication (Salofalk) all the time - even when you feel well.
Judy
 Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001. Flared for 5 years, finally in remission with Remicade since March 2006. Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
Avascular necrosis in both shoulders is  my "forever" gift from steroids.
Chronic joint/connective tissue/muscle pain; TKR 05/09 
"My life is an ongoing medical adventure"
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 8/25/2009 1:33 PM (GMT -6)   
true there is no cure- improvements can be made but no cure. I would take the meds. Im in remmision right now through diet. but its not that i dont use meds as well.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

Max89
Regular Member


Date Joined Aug 2009
Total Posts : 152
   Posted 8/25/2009 1:48 PM (GMT -6)   
Thanks for the replies everyone. My father has had UC since he graduated from college, and his has spread to the entire colon. He has it under control, but some of the symptoms are still there along with the occasional flare-up. Both my parents were very upset upon hearing that I too have UC, and at this point all we can do is hope that it does not spread any further.

I have had the bloody mucus & constipation symptoms for about 10 months now, and the only change I've noticed is that I sometimes feel the urge to go when I'm nervous about something. Other than that, the symptoms have remained constant. There is no diarrhea, and the bleeding is only mild.

I will take the medication and make changes to my diet, but even then, what are the chances of it spreading?
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