colitis and accutane

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handball1
New Member


Date Joined Nov 2008
Total Posts : 5
   Posted 8/25/2009 1:37 PM (GMT -6)   
Just wondering if anybody with there GI symptoms has taken a powerful drug for acne called accutane.
there seems to be a lot of people out there that took the drug and have then started haven all these digestive disorders? nono

uc_man
Regular Member


Date Joined Aug 2009
Total Posts : 36
   Posted 8/25/2009 1:59 PM (GMT -6)   
I was not on accutane, however I do strongly believe that the awful antibiotics I was on in high school for my acne came into play with my UC. My first flare-up (and later diagnosis with UC) came shortly after (3 mo) I ceased taking the acne medications during my freshman year of college.
uc_man
25 yo
Diagnosed with Ulcerative Colitis in Spring 2003
Longest period of time without flareup: maybe half a year

Current Medications (as of 8/25/2009): 30 mg Prednisone (scheduled to taper down 10 mg weekly if symptoms improve), 50 mg Azathioprine (Imuran), Remicade (IV - had two doses (5 mg/kg), third coming up in a week), 325 mg Ferrous Sulfate (Iron - twice daily until blood test shows not anemic), 10mg Loratadine (generic for Claritin)

Current Supplements (as of 8/25/2009): Florastor probiotic (twice daily), 2x Os-Cal 500 + D, One a Day Men's Health Formula, Omega 3 Fish Oil Supplement


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16287
   Posted 8/25/2009 3:14 PM (GMT -6)   
I need to use accutane, hah.
 
In all seriousness, I have seen a number of people here mentioning taking accutane and later devevloping UC.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
May 09: Off Canasa, taking Asacol (9/day)
Back on Canasa every other night + Asacol (9/day) + Probiotics + Iron
Reducing to 6 Asacol/day + Canasa + Probiotics + Iron - So far so good!!! -SPOKE TOO SOON! Back to 9/day...


Blues_Rocker
New Member


Date Joined Jul 2008
Total Posts : 3
   Posted 8/25/2009 5:13 PM (GMT -6)   
I have taken a six month course of accutane (I took it just this past winter actually) while having UC. I was diagnosed in June of 2008 and was on prednisone prior to using the accutane. It cleared my acne up (the majority of the acne was actually due to the pred, what a horrible drug it is) and gave me no side effects save perhaps two headaches. My acne is now pretty much gone (I have the scars though still :( ) I believe that most of the connection between accutane and UC deals with folks whose disease is triggered by accutane's use, while I however had already been diagnosed with UC before starting accutane. I believe that my UC has always been with me (I've always gotten severe apthous ulcers in my mouth since I was young and they never really subsided until I began to take anti-inflammatory drugs for UC) and was triggered by long term (over 2 years) use of the antibiotic Bactrim to treat (unsuccessfully) my adolescent acne. I then once stopping the bactrim became infected with rotavirus and c diff. which in turn most likely set off my full blown UC. The C Diff and rotavirus ended up masking the UC and delaying proper treatment, but that's a whole other story.

In short, I took accutane while having UC with essentially no problems and it worked as it should.
Chase, Male, 17
Diagnosed w/ UC 6/18/08
Currently on: Prevacid 2x day, Iron for anemia 2x day, 60mg Prednizone (hopefully tapering soon), Asacol 2 pills 2x day
In remission for about a week now! Hoping to keep it going. :D


puffed rice
Regular Member


Date Joined Feb 2008
Total Posts : 495
   Posted 8/25/2009 8:38 PM (GMT -6)   
I was perscribed an antibiotic called minocin that I took for years for my acne.  I'm sure all those antibiotics did something to kill all the good  bacteria in my colon.
Diagnosed with Ulcerative Colitis 1995
Salofalk Tablets  2pills -3xday
anusol HC suppositories or cortifoam nightly when needed
hycort enemas nightly when flaring/vitamin E enemas
Bio-K Probiotic (evening) ultimate flora critical care probiotic (morning)
multivitamin
metamucil nightly
cut out all wheat and flour


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 1202
   Posted 8/25/2009 9:01 PM (GMT -6)   
Looking back, I blame the antibiotic acne medicines too. The UC started about 3 months after the last doses, so I discounted it, but something set off the genetic predisposition, and it wasn't stress! She was one 2 different antibiotics for about 4-5 months. Forgot which ones, but not Accutane....
Then all of this fun happened, and life hasn't been the same since. As a little kid, she was only on an antibiotic one time for an ear infection, and I know of kids who were on tons. Guess you have to have a predisposition.
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


Ashley O
Regular Member


Date Joined Jun 2008
Total Posts : 72
   Posted 8/26/2009 12:50 AM (GMT -6)   
I took accutane for 5 months when I was 14 for severe facial cystic acne that I even had to have a quarter sized cyst removed surgically from my left cheek. I still have the 2 1/2 inch scar and makeup only does so much. 2 years later I was diagnosed with UC. Accutane could be the culprit, but who really knows?
Female, Age 20, DX w/Proctitis UC October 2005
DX w/Pancolitis June 2009
Currently close to Remission. WHOOOO!

Present Meds: Lialda 4 pills every morning and Canasa Suppositories nightly.

As Needed: Immodium, Clonazepam 1mg for anxiety

Past Meds: 40 mg Prednisone Daily 2005-2006, Miralax, Ginger Supplements, Remicade every 8 weeks Aug 2006-June 2009


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 8/26/2009 5:14 AM (GMT -6)   
Another Accutane user here. I used it around 1985 and again around 1995. I was also on antibiotics for acne.

Diagnosed with UC around 2004.

Disneynut66
Veteran Member


Date Joined Apr 2009
Total Posts : 587
   Posted 8/26/2009 5:36 AM (GMT -6)   
I used Accutane in 7 years ago and developed UC a few years after that. I have nice skin now, though :).

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/26/2009 11:49 AM (GMT -6)   
I did, in 1983-84. I'm sure it caused my UC, which developed shortly after and was diagnosed in late 1985 or early 1986.
I tried to join the litigation, but my medical records have long been destroyed.

Google accutane and UC and you'll find the lawyers that are working on cases, if you are interested in it. several different firms are working together, but it's not a class action (yet?). There were at least two multi-million dollar awards, and the drug company was then expected to set up a fund instead of fight each case. But I haven't kept up with it lately.

It's worth filling out the law firm survey, they'll let you know if you have a case.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


mamaluke
Regular Member


Date Joined Apr 2009
Total Posts : 55
   Posted 8/26/2009 12:47 PM (GMT -6)   
my son, who just had 2nd stage of 3 stage jpouch surgery to cure his UC, was on Accutane in high school. he was diagnosed with UC about 7 yrs later

JLNicks
New Member


Date Joined Mar 2007
Total Posts : 3
   Posted 8/26/2009 7:47 PM (GMT -6)   
Used Accutane in 2003 for mild acne and was diagnosed with UC in 2004. There could be some kind of connection and I wish I would have known. Living with UC is horrible. Never had a problem in my life until the whole Accutane came into play, But then again I stopped smoking 9 years ago and one DR. said that could have triggered my UC? Who really knows.
3 Asacol 3 x a day, 60mg Prednasone, Azathioprine 50mg, Rowasa Enema


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 8/26/2009 8:02 PM (GMT -6)   
Peety said...
I did, in 1983-84. I'm sure it caused my UC, which developed shortly after and was diagnosed in late 1985 or early 1986.
I tried to join the litigation, but my medical records have long been destroyed.

Google accutane and UC and you'll find the lawyers that are working on cases, if you are interested in it. several different firms are working together, but it's not a class action (yet?). There were at least two multi-million dollar awards, and the drug company was then expected to set up a fund instead of fight each case. But I haven't kept up with it lately.

It's worth filling out the law firm survey, they'll let you know if you have a case.


I contacted an attorney handling these cases and they told me that the time between my Accutane treatment and developing UC was too long.

Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 8/27/2009 3:26 PM (GMT -6)   
I saw one of those commercials on TV yesterday where the loud lawyers are saying "have you ever been on the drug accutane and then developed Ulcerative Colitis? Then call 1-800-LAW-FIRM" or whatever the phone number was. It was on TV when I was at work and my head just snapped around when I heard "Ulcerative Colitis"

I was just surprised that they have enough potential clients to advertise on one of those commercials!
Age 35, Diagnosed with UC September 2008
Current Meds:
Azathioprine 100 mgs, Apriso 4 tabs
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 3000 mg per day
Multivitamin
Rite Aid Probiotic
Also tried: Remicade, Asacol, Rowasa, Cantasa, Prednisone 2 times for about 3 months each


Luli
New Member


Date Joined Oct 2008
Total Posts : 15
   Posted 8/28/2009 6:51 AM (GMT -6)   
i was on accutane in 1998 and diagnosed w/ UC in 2006.  so, i don't know if it's related.  but i was also on many antibiotics in high school for acne, and believe that may be a factor.
- spinach/Sunflower seed diet - started 12/1/08
- daily multivitamin, fish oil pill; ocassionally - turmeric supplement, probiotics, aloe vera juice
- currently in remission!
 
 


TPT
Regular Member


Date Joined Feb 2005
Total Posts : 102
   Posted 8/29/2009 2:49 AM (GMT -6)   
I used accutane and antibiotics for years due to acne. I was younger and now I can't believe I didn't so more research, bummer, I killed all my healthy natural probiotics. My colon is paying more than a big price for it today...

I still have acne and have learned to deal in a healthier way.
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