Need some support...

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singnrun
Regular Member


Date Joined Apr 2009
Total Posts : 31
   Posted 8/25/2009 8:41 PM (GMT -6)   
I got off pred. like 3 weeks ago. I've done really well (solid poops, no blood, etc.) I caught a little bit of a cold and now I'm having diarrhea with blood. I started crying when i saw this. I WAS DOING SO GOOD! My parents said that it's probably a mini flare and that I'll do an enema tonight. All I'm thinking right now is what do they know, they've never had colitis before. I'm feeling really bad and I would like to have some support from someone WITH colitis.
Please reply soon if you know where I'm coming from.
cry
UC diagnosed November '08

Age: High School
Prescriptions: Colazal (5x2 daily) Iron (2 daily) VSL#3 DS (2 daily)
Extras: Fish Oil, Curamin, multivitamin, bee propolis
Probiotics: Florastor, Primal defense (Garden of Life)
Also: Partially on Maker's Diet,
Always looking for new and good ideas! :D

Its a LONG AND WINDING ROAD but you just gotta LET IT BE you may need some HELP but it will be worth it in THE END (Beatles songs hehe)

Post Edited (singnrun) : 8/25/2009 7:51:07 PM (GMT-6)


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 8/25/2009 9:01 PM (GMT -6)   
I always feel even ickier when I have a cold. It's like my body can't handle trying to get over a virus and have UC at the same time.
Sounds like doing an enema is probably a good idea. If you're going to take a step backwards it's always better to catch it early.
Just a deep breathe and relax. You'll get through it :)
Sam(antha)
20 year old college student diagnosed with UC in March 2005
Remission since January/April 2006-->THREE YEARS!!!!!
Meds: 3 750mg Colazal 2x daily, 25mg Amitriptyline, 75mg Effexor XR for GAD, ortho lo
Seasonal allergies, very mild asthma (albuterol when needed), allergic to sulfa
"It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is the most adaptable to change"
Charles Darwin


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 8/25/2009 10:12 PM (GMT -6)   
I agree, go ahead and start on the enemas again. Also, I find that taking vitamin C helps me get over things a little quicker. And from now on, start taking it regularly, or when there are sickies around.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


singnrun
Regular Member


Date Joined Apr 2009
Total Posts : 31
   Posted 8/25/2009 10:27 PM (GMT -6)   
Vitamin C? good idea!
Thanks for your support... I like knowing that I'm not the only one (even though it feels like it) ;)
UC diagnosed November '08

Age: High School
Prescriptions: Colazal (5x2 daily) Iron (2 daily) VSL#3 DS (2 daily)
Extras: Fish Oil, Curamin, multivitamin, bee propolis
Probiotics: Florastor, Primal defense (Garden of Life)
Also: Partially on Maker's Diet,
Always looking for new and good ideas! :D

Its a LONG AND WINDING ROAD but you just gotta LET IT BE you may need some HELP but it will be worth it in THE END (Beatles songs hehe)


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 8/25/2009 10:38 PM (GMT -6)   
lol no problem.
And try hard not to snap at your parents, they sound like they're trying to help ;) But I do agree it's nice to have people with the same problems =p
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 8/26/2009 1:33 AM (GMT -6)   
what enemas...you mean steroid enemas or 5ASA?

You have stepped back a few regarding the healing process. I understand the feeling you have about it, but we all flare again eventually.

How long were you on the prednisone?

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Hobo
Regular Member


Date Joined Jan 2006
Total Posts : 187
   Posted 8/26/2009 6:24 AM (GMT -6)   
Steroid enemas have worked VERY WELL for me. I would start immediately to try and avoid having to go back on Prednisone.

lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 8/26/2009 6:46 AM (GMT -6)   
ok, I know where you are coming from. I think part of the upset/depression you feel is because you have NO control over this disease and you never know when it is going to rear its ugly head again (at least that is the way I feel). When this happens to me, I have to take a deep breathe, think about what I have done (or not done) that could contribute to the flare. Am I taking my meds? Am I taking the enemas? If I am doing everything right, then I call the doc and we make a plan. I always feel better when we have a plan. But I do know how you feel and so do a lot of others on here, and it is really hard to deal with the physical mess this diease puts you through, but the emotional part is just as bad and maybe worse and it is overlooked. Hang in there, we are here for you.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2  1 rowasa enemas nightly
35, female

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