The Specific Carb diet - avoiding lactose and taking iron pills

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 8/26/2009 8:43 AM (GMT -6)   
What are people's experiences if they tried it? I think I will talk to my doctor about it..but I would think I should be off the iron pills before I try and it could also be limiting if I continue to avoid lactose
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber 3 a day), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density), Iron


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 8/26/2009 11:11 AM (GMT -6)   
I dont think being off the iron tabs make a difference to trying the diet. My iron improved by going raw. Also i believe we dont need dairy as a part of our diet. This is why. in nature can you name another animal who still drinks their mothers milk when they are an adult. We don’t need milk from animals. however we do need calcium and most of us do not eat enough green veg to maintain this. so I do cheat and drink rice milk with calcium. If your eating everything correctly and according to nature i should not even need the rice milk. but i still need to eat more greens.

My diet is all about what is found in nature. I believe the SCD is similar but less strict. You can also have meats. Im not a big fan of alot of meat. I only eat fish occasionally
I m surprised that more people don't want to try the SCD to help improve there symptoms. We can only try and see what happens.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 
www.rawfoodsupport.com

Post Edited (Hellokitty) : 8/26/2009 10:32:27 AM (GMT-6)


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 8/26/2009 11:58 AM (GMT -6)   
Thank you for your response. I try to eat as little overly produced food as possible but sometimes it's hard in the society we live in. I also think that part of the hesitation for people to try this type of diet with UC is that we are scared to change something we are used to for fear we will get worse. The comfort of something, even if it has only kept us away from memories of being really really sick which so many of us have been through, keeps us more hesitant to try new things despite being desperate at times. I hope others will chime in.
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber 3 a day), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density), Iron


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 8/26/2009 12:15 PM (GMT -6)   
Yea. I know what its like to be scard of something. I was scard of the raw foods diet. I kept thinking how do you maintain weight and will you get nurtiets. but then I think well im not getting nutriets from breads really, its just white flour. it has less nutriets than fruit and fruit is carbohydrate. and sometimes the nutriets are added by companies thats not natuarl. we should be able to live off any thing that comes from the planet. and a more natural diet should mean better health. the scd diet i beleive is more natural than the SAD diet.

It is leaving these foods which are the problem for most people. but i beleive that a drink that is bright neon green is not good for us. and if it comes in a package we didnt hunt and gather it. or if your a christian Adam and Eve did not pull Oreos off trees.

I am really begining to beleive we will see an increase of digestion issues in the future. I now see so many kids that are over weight. I just wonder what their parents feed their kids to get them so big. I wish I had a more healthy diet as a kid. We went out to eat alot. I was also allergic to dairy, I ate alot of that.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16743
   Posted 8/26/2009 12:37 PM (GMT -6)   
I tried the SCD Diet and it didn't help me too much. I lost a ton of weight and my anemia got worse because I wasn't eating enough iron rich foods - probbaly my own fault. Everyone is individual, it's worth trying. I will try raw food diet if I flare up, it's easier than taking more medication. If it doesn't help, I can always resort to stronger medication.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron
 


Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 8/26/2009 12:50 PM (GMT -6)   
The thing with raw is that you have to find what works for you. its not a set diet and there are different ways of doing it. I want to find out Paul Nisons way. but at the moment Im doing a more of a David Klien. The problem is if you wait till you flare it will be harder and harder, its just becuase as we flare our digestive systems get more damaged. Thats why im giving it a go to see if i can help stop my system damanging itself.

There is no promisis with anything we try though. it works for some and not for others. Dont know why.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 8/26/2009 1:32 PM (GMT -6)   

Oral iron supplements do irritate some IBDers. If that's the case with you, your reaction to the supplement could mask any improvement on the diet. It's not to say you shouldn't go ahead and try the diet, but just keep in mind your success may be affected.

Avoiding lactose while on the SCD can be somewhat limiting, but it can be done. I found no matter how I tried making the SCD yogurt, I couldn't tolerate it. That means you have to avoid any SCD recipes with the yogurt and get your probiotics from a supplement - which I feel is a better idea anyway. Small amounts of butter and allowable cheeses didn't bother me. You can also try clarified butter.


Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
 
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.
 
 


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 8/26/2009 6:12 PM (GMT -6)   
I have used the SCD diet before when I first got UC and was started on Asacol also. I do not know if it was the combination or not but it worked for me. I stayed on it for 6 months but then got a major craving for starches and quit. I have heard that some people were so bad they were thinking about surgery and used it with excellent results. Right now I have been in a major flare since the end of May and cannot shake it so I am going to try going back on it and see what happens. I tried upping my 5ASA meds and have been taking nightly Rowasa enemas with only a little relief. Usually if I take nightly enemas for 2 week I get much better but not this time. Also taking VSL#3. SO that is why I decided to try the diet. I also take a vitamin and mineral pill with Iron in it.

Hellokitty
Veteran Member


Date Joined Mar 2009
Total Posts : 765
   Posted 8/27/2009 8:09 AM (GMT -6)   
You have to be really strong to stay on it. It is difficult to avoid foods and it is really hard to break that cycle of eating carbs. I have to really put in alot of effort.

For iron i take a natual product called floridex. Its sold in health food stores. I get low on iron, alot of wemon do.

I also think alot of people would have sucsess on the diets but do not know how to stay on them. I think if im going to silp it will be with something like goats cheese or organic chicken. Which i think is SCD safe. I haven slipped yet but I found out im allergic to mustard which made me flare.

I think I will also get the SCD book and David Kliens book. I have bought Paul Nison's stuff. I find Paul Nisons way of doing things difficult. Im hoping to get in touch with him to find out more on how he does things.
Female 32 years old
 
Diganosed ulcerative colitis November 2007
Present medication-  500mg pentasa,  250 mg  asacol (every evening)
Diet- Back on the raw foods.
 
Other medical problems- Born with asthma- no medication taken for this.
dyslexia- found out that many people with learning difficulties also have food sensitivity
 
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, September 25, 2018 5:20 PM (GMT -6)
There are a total of 3,006,606 posts in 329,357 threads.
View Active Threads


Who's Online
This forum has 161840 registered members. Please welcome our newest member, 6catlady.
191 Guest(s), 10 Registered Member(s) are currently online.  Details
ezhoe, bobmars, 81GyGuy, M. Lowe, Nancy O, Alxander, Chutz, oregonhay, k07, dsrouillard