Is this normal UC stuff or am I just wierd....

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FairyGen
Regular Member


Date Joined Jul 2009
Total Posts : 142
   Posted 8/26/2009 2:50 PM (GMT -6)   
  ok...I will go poo and finally think I am done...and then Wham! Anywhere between 2 to 5 mins later I have to go some more!  Always after I stand up...Some times I even get out of the room to somewhere else then I have to go back....This happens when in flare or not....
 
Does this happen to anyone else?
Left sided UC: Diagnosed 7/09
Currently on Pred 40mg, Lailda 2.4 once a day
Supplements: Bromelain 3 times a day, Tummeric 3 times a day, Good Belly probiotics 1 time a day. Multi, Vit D, B-complex...
 
currently on the down side of a flair....


wrxBRAH
Regular Member


Date Joined Mar 2008
Total Posts : 312
   Posted 8/26/2009 2:57 PM (GMT -6)   
usually happens to me when im flaring a lot but also when Im having anxiety. If Im waiting for a friend to come pick me up to go someplace, I pretty much sit in the restroom before leaving because Ill have to go multiple times and I know its caused for me personally by anxiety.
Male 29yrs old Bay Area, California

Currently taking:
Prednisone - 30mg
Asacol - 4800mg
Imuran - 100mg


uc_man
Regular Member


Date Joined Aug 2009
Total Posts : 36
   Posted 8/26/2009 2:59 PM (GMT -6)   
This happens to me during flares (happened this morning in fact). I think it has to do with the inflamed tissue, such a small path for waste to travel, that you getting up, moving, allows things to "shift" a bit then make their way a little further so that you feel the need to go again. Annoying yes but I would call this "normal" from my experience. Not always, but a quite often during flares.
uc_man
25 yo
Diagnosed with Ulcerative Colitis in Spring 2003
Longest period of time without flareup: maybe half a year

Current Medications (as of 8/25/2009): 30 mg Prednisone (scheduled to taper down 10 mg weekly if symptoms improve), 50 mg Azathioprine (Imuran), Remicade (IV - had two doses (5 mg/kg), third coming up in a week), 325 mg Ferrous Sulfate (Iron - twice daily until blood test shows not anemic), 10mg Loratadine (generic for Claritin)

Current Supplements (as of 8/25/2009): Florastor probiotic (twice daily), 2x Os-Cal 500 + D, One a Day Men's Health Formula, Omega 3 Fish Oil Supplement


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 8/26/2009 3:56 PM (GMT -6)   
Often I'll walk around the bathroom for a while to see if there is anymore to come before I leave! Too many times I am racing back because I got cocky and left before I was apparently done.
UC since 1996 (age 20)
Mommy of 2 sweet little girls.

Asacol (12/day)
Azathioprine (175 mg)
Prednisone (60 mg)
Rowasa nightly
Immodium daily
First Remicade 6/22/09 [discontinued 8/12/09, not helping]


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/26/2009 4:07 PM (GMT -6)   
Has happend to me so many times I've lost count.


:)
My bum is broken....there's a big crack down the middle of it! LOL :)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/26/2009 4:47 PM (GMT -6)   
Sadly, it's normal UC stuff.
Judy
 Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001. Flared for 5 years, finally in remission with Remicade since March 2006. Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
Avascular necrosis in both shoulders is  my "forever" gift from steroids.
Chronic joint/connective tissue/muscle pain; TKR 05/09 
"My life is an ongoing medical adventure"
 


Darth Squiddious
Regular Member


Date Joined Aug 2009
Total Posts : 30
   Posted 8/26/2009 5:25 PM (GMT -6)   
Every morning, even now that I'm in remission. I have to get up 30 minutes earlier than I should have to just so I can get everything out and still leave for work on time.
Officially Diagnosed with Ulcerative Colitis on 8/03/2009
Flared from April 2009 - August 2009
My cocktail that's worked since 8/19/2009
Centrum
Lialda 2.4G daily
Prednisone 20mg x2 daily (tapering off)
Imuran 50mg x3 daily
Hydrocodone 5/500 as needed for pain
Nexium 40mg daily for heartburn


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3698
   Posted 8/26/2009 7:24 PM (GMT -6)   
Sure happens to me, almost every morning. Other times of the day it happens only if there's some inflammation going on.
I've been keeping a daily poop count since my current (almost healed) flare began last September and sometimes I've wondered, if I just took a book and stayed in the bathroom would my poop count be lower....? (I know, that would be cheating!)
In this little book I've also recorded meds and every single doggone bite I've eaten......
Whew, the things we never thought we'd be thinking about....!
Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills a day
Metamucil - 2 doses a day
Cortenemas or Rowasa from time to time
VSL#3, Ultimate Flora Critical Care
Canasa as needed


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 8/27/2009 2:07 AM (GMT -6)   
I get that only if I'm flaring.

It could be for you FairyGen that you may not recognise low inflammation in the rectum and are actually still flaring.

It "could" as well be IBS.

You should be on rectal meds....


You should consider to use a fibre supplement to help bulk up the stool and help regulate the peristalsis. That alone might help the extra bms in the morning.

If you are having IBS, an antispasmodic taken at night before bedtime might also help.

I still lean toward still flaring if there's urgency once you're past having the initial urge to go.

How many bms are you having during the day?

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


FairyGen
Regular Member


Date Joined Jul 2009
Total Posts : 142
   Posted 8/27/2009 10:30 AM (GMT -6)   
Some days I am having 3 or 4 and some days I am having 1 or 2. I am taking a fiber supplement and for the most part I have form for the majority of all the movements. Periodically I have a watery or loose one.

There is a definately and urgency to go after the initial movement. Sometimes it starts as just gas, but then I can feel it coming down the pipe so to speak and "have" to push..

I am probably starting a flare because I have recently almost quit smoking..(down to 2 a day with the occasional nicotine lozenge). I have only seen the Dr once since my scope and diagnosis...We didn't talk much about other forms of stuff and he seems kinda miffed that I had already researched the disease in the week between the scope and visit.

I have a question..What came first for you the PCS/PBS or UC? My mother has PBS or maybe it's PCS. She refuses to see if she has UC and is convinvced its the Urso that is making her have diareah. He LFT are back to normal also...I am paranoid about getting PBC or damaging my liver incase I do. What meds for UC can you not take because of the liver?
Left sided UC: Diagnosed 7/09
Currently on Pred 40mg, Lailda 2.4 once a day
Supplements: Bromelain 3 times a day, Tummeric 3 times a day, Good Belly probiotics 1 time a day. Multi, Vit D, B-complex...
 
currently on the down side of a flair....


physicsisnice
New Member


Date Joined Aug 2009
Total Posts : 6
   Posted 8/27/2009 11:53 AM (GMT -6)   
It happens to me when i m tensed/during anxiety...and ofcourse, during flares...

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/27/2009 12:21 PM (GMT -6)   
FairyGen, if your GI seemed miffed you'd taken the initiative to research UC, I'd find a new GI if I were you. My GI thinks it's great that I have done so much research, and we've had great discussions regarding my treatment and what may come in the future. Just a thought.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (currently tapering; 12.5 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 8/27/2009 1:29 PM (GMT -6)   
Hi FG....you definitely need to be on rectal meds to deal with that inflammation. The Lialda isn't enough.

I don't know in truth which was first, but my LFTs didn't increase to the point of concern until about 11 years ago.

Diarrhea with your mom could be from the fact that she has PSC I think, maybe the URSO as well...what's her dosage?

It's possible that one inherits the disease....I have no idea if others in my family have/had it.

I'm hardcore 5ASA meds, and I believe that keepping the colon in as low inflammation as possible is what can help the PSC in a quiet state as well. I'm still in early stages and the LFTs have been continually normal since starting the URSO about 5 years ago (I think..have to check on that).

I think I would pass on the immunosuppressants and the pred and prefer to have my colon out if the 5ASA meds stopped working for me.

I don't drink except for a nip of wine occasionally.

I do take tylenol once a day at least....some say it's a huge NO for the liver...sigh....

I do drink coffee, however, which I've read is good for the liver...so that's a plus.

I did take milk thistle, but don't anymore...no reason except it's one less thing to take.

Call the doc or go and get on rectal meds...I would suggest the Rowasa (if you're in the US)

You won't be able to stop the PSC if it's on its way, but please don't have an ERCP if it's ever suggested. You might want to ask your doc if he can set you up eventually for a MRCP to see if you are in early stages. You might have legit claim considering your mom has it....how sad she does.

It takes a while to get the UC flares/meds worked out.

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


FairyGen
Regular Member


Date Joined Jul 2009
Total Posts : 142
   Posted 8/27/2009 2:21 PM (GMT -6)   
Thank you...I personally think her diareah got worse after the urso, but I believe it was there prior to starting just not as bad...I think she is on the same dose as you but goes against dr's orders and takes it all at night before she goes to bed do she can keep it all in...

Her doctors were shocked that her LFT's went back to normal...I wonder if that is because she has PSC and not PBC. She had her gall bladder out years ago though...

I don't take any pain meds yet but I am getting achey in the joints but ignor it so far. I will press him into rectal meds.. I am not liking this lialda side effects too much.
Left sided UC: Diagnosed 7/09
Currently on Pred 40mg, Lailda 2.4 once a day
Supplements: Bromelain 3 times a day, Tummeric 3 times a day, Good Belly probiotics 1 time a day. Multi, Vit D, B-complex...
 
currently on the down side of a flair....


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/27/2009 4:26 PM (GMT -6)   
This happens to me all the time.

It even happened on a smaller scale before I got 'sick.' In fact, my entire family does this. They're always going before a trip, an interview, etc. I don't know. It's just something random with my family because they can actually hold it and be 'ok.'
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]

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