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bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 8/27/2009 5:17 PM (GMT -6)   
Hi everyone,I just joined this forum,but i've read alot of other topics & learned alot the past few months.
 
Im in a flare right now,pretty badly.I have urgency,blood & D--- all the fun stuff :((
 
I have a question. I just went to the bathroom & i started sweating,my heart started racing, & when i got up from the toilet i was shaky & my vision had stars ..i had to go lay down. Now i have a headache.
 
Has anyone else ever gotten this?or similar? Its my first time & I'm so scarred. :(
 

19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/27/2009 5:21 PM (GMT -6)   
Sounds like your blood pressure is a bit too low, and it dropped when you stood up...likely because of dehydration. Keep up on the fluids!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (currently tapering; 12.5 mg).


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 8/27/2009 5:23 PM (GMT -6)   
That happens to me a lot when I stand up from a chair I've been sitting on for too long, laying down, etc.

It's definitely a blood pressure drop.

It could be something else... Get up slower, try to relax, and drink water as said above.
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]


uc_man
Regular Member


Date Joined Aug 2009
Total Posts : 36
   Posted 8/27/2009 5:23 PM (GMT -6)   
Call your doctor if you are concerned. It has happened to me before but you should definitely advise your doctor and not less us diagnose it.
uc_man
25 yo
Diagnosed with Ulcerative Colitis in Spring 2003
Longest period of time without flareup: maybe half a year

Current Medications (as of 8/25/2009): 30 mg Prednisone (scheduled to taper down 10 mg weekly if symptoms improve), 50 mg Azathioprine (Imuran), Remicade (IV - had two doses (5 mg/kg), third coming up in a week), 325 mg Ferrous Sulfate (Iron - twice daily until blood test shows not anemic), 10mg Loratadine (generic for Claritin)

Current Supplements (as of 8/25/2009): Florastor probiotic (twice daily), 2x Os-Cal 500 + D, One a Day Men's Health Formula, Omega 3 Fish Oil Supplement


TLB37
Regular Member


Date Joined Dec 2008
Total Posts : 79
   Posted 8/27/2009 5:45 PM (GMT -6)   
Drink drink drink you are most likely dehydrated . You might want to call you doctor. Feel better soon
    Female 37
 
   20 years of Ulcerative Colitis
 
  meds,  2 Lialda, 3 Azathioprine, 1 Celebrex, Cymbalta, Mirtazapine,
               TLB ( :


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/27/2009 5:47 PM (GMT -6)   
This happened to me a few times when I was really sick. I just ran somewhere and layed down. Keep eating and drinking. And try not to stay in a hot bathtub too long.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3646
   Posted 8/27/2009 6:26 PM (GMT -6)   
Hi -
As others have said, it's probably a blood pressure drop and you're probably dehydrated. When we have the D, we lose a lot of fluids and it's easy to become dehydrated! So - drink fluids. And it would be a good idea to call your doctor so he/she knows what's going on. I've always found that my doctor likes to know at the time rather than way after something has happened!
Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills a day
Metamucil - 2 doses a day
Cortenemas or Rowasa from time to time
VSL#3, Ultimate Flora Critical Care
Canasa as needed


GLOVE
Regular Member


Date Joined Jul 2009
Total Posts : 321
   Posted 8/27/2009 6:36 PM (GMT -6)   
I agree... you are probably dehydrated and your electrolytes are probably off. Try drinking some gatorade.
UC since 2002- remission for 6 years
recent flare 06/09
Currently on Colazal, multivitamin, probiotics, fish oil
just tapered off prednisone
 


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1913
   Posted 8/27/2009 8:28 PM (GMT -6)   
Probably happened to many of us before. It has to me. I used to get in so much pain that I would just sweat buckets and dehydrate before the diarrhea would get going good. Have also gotten very shaky and seen stars. Take care of yourself and check in with your doctor to make sure you are ok, not anemic or too dehydrated.
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's for whatever that is worth-:)
 


AJ
Veteran Member


Date Joined Dec 2004
Total Posts : 677
   Posted 8/27/2009 9:03 PM (GMT -6)   
It's probably because you're so scared and you're having pain. I've had this since I was 15 and I still get freaked out when I get sick. Sometimes when I sit on the toilet I anticipate so much pain that I freak out, my heart starts to race, which makes the pain worse, and I get shaky and cold sweats. It's scary to have something like this happen to you. You might want to ask your doc to prescribe you something in the valium family, and it will help with the anxiety of all of it. Good luck!

A J

Ulcerative Proctitis

 

Currently taking:

 

Ø        Prednisone 40 mg

Ø        Folic Acid 800 mg

Ø        Prenatal Vitamins

Ø       DHA

Ø        Hydrocodone as needed for pain, and right now that’s a lot!

Ø        Pills, pills, pills, pills

 

 

Click once a day, every day


bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 8/27/2009 9:49 PM (GMT -6)   
Thank you all so much for responding! It's prob because im not really eating too.i just get so nauseous & loose my appitite as soon as i see food.
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 8/27/2009 11:27 PM (GMT -6)   
Hi..welcome to the forum!

It's probably because you're not eating...even small amounts of a meal often times a day will keep your energy levels up at least.
That and enough fluids through various sources...not only water.

I can really relate to the feelings you describe. I don't do well with not eating for long periods of time. I got that often when I was flaring and lost so much weight. My blood pressure was OK, however....but I also developed anxiety attacks that might have played a role in some of the symptoms I was having. It was all very confusing and disconcerting.

When did you start the Asacol and the Rowasa nightly?

You should still contact your doc as suggested and get your blood levels (iron, sodium, potassium, wbc, rbc...) checked out as well as blood pressure. Don't wait.

The nausea can be helped through various ways as well...some choose to drink certain teas or through capsules such as ginger. I found eating helped my nausea...but I also was prescribed dicyclomine (antispasmodic) that helped too.

Do you have good support through family and friends?

Hang tough....it takes a while to get your flare under control...once that starts to improve, you should be able to eat with less problems.

Keep us posted as to how you're feeling.

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16277
   Posted 8/27/2009 11:40 PM (GMT -6)   
YES, it happened to me. I was anemic and it caused my blood pressure to drop really low. That along with a extremely high heartrate. I was always out of breath and dizzy but also tired. Go get checked out!
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 8/27/2009 11:48 PM (GMT -6)   
Forgot to add....make sure you get your thyroid checked out as well!!

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

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