Cortenema question

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glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 8/27/2009 6:50 PM (GMT -6)   
Does anyone suffer from extreme thirst when using Cortenemas?  I've used them before with no problems but I started using them about 3 weeks ago and the last few weeks I've had really bad dry mouth.  I'm hoping the two are related and I did read that it can be a side effect.  The ones I'm using now are a different brand from what I've used in the past but I didn't think the side effects would change between brands.  I'm kind of freaking out and worrying that I might have diabetes (yes, I tend to panic) or some other serious issue. 
 
I think I'm going to stop the Cortenemas for a few days to see what happens.  Anyone else have this side effect?
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 8/27/2009 6:54 PM (GMT -6)   
Maybe you should go back and ask them to write the prescription so the pharmacist has to fill as is and can't give you another brand?
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3694
   Posted 8/27/2009 7:30 PM (GMT -6)   
I haven't thought about my mouth being dry or not, but now that you mention it.... when I do the cortenemas, I usually have to get up to pee during the night, and then I wash my hands and get a cup of water to drink....! So, I guess my mouth does get dry.
Otherwise, I push water all the time anyway, especially when it's hot out.
Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills a day
Metamucil - 2 doses a day
Cortenemas or Rowasa from time to time
VSL#3, Ultimate Flora Critical Care
Canasa as needed


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/27/2009 8:53 PM (GMT -6)   
I've never had that, even when using cortifoam everyday for a yr before tapering off of it I never had that, mind you I do and always have drank alot of water...I was warned when I got sick eons ago that keeping my hydration up with water was wise cuz IBDers tend to easily get dehydrated.

Is it particularly hot where you are? Maybe that's the reason?

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 8/27/2009 10:05 PM (GMT -6)   
No, I'm in MI - It's cold here! lol.  This is obviously a new symptom for me, I'll just have to give it a few days to see if it goes away after stopping the cortenema.  If it does, I'll have to ask the pharmacist when I get my refill to go back to whatever kind I had before.  It's horrible, even after drinking water all day I'm as so thirsty.  Everything I eat sticks in my mouth, trying hard candy didn't even help. Bleck!

Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/27/2009 11:14 PM (GMT -6)   
I think you should see your doc, extream thrist is typically a sign of diabetes, does anyone in your family have diabetes? Even if no one does you should still get checked for that.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 8/28/2009 5:40 AM (GMT -6)   
My grandfather had diabetes. Yes, I will see my doctor if it continues after stopping the cortenemas. I don't want to rush to conclusions until I rule out whether or not it's a side effect of the medicine.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/28/2009 7:33 AM (GMT -6)   
I never had excessive thirst from the Cortenemas and I was on and off of them for a year. But definately keep an eye on any new symptoms/side effects.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/28/2009 7:50 AM (GMT -6)   
     I've been on prednisone since June 11th with a slow taper and also on the Cort enemas.  Very little of the steroid, if any, gets into the blood stream with the enema, I most definitely would have your blood sugar checked.  Most importantly, check it about two hours AFTER a heavy meal.  I had those same symptoms about three weeks ago and I know the symptoms of diabetes.  Both my parents were diabetics Type 2.  Sure enough, my nighttime BS was 237.  The doctor said this is prednisone related.  My family doctor gave me an Accu-chek meter and I check my BS three to four times a day.  I watch my diet extremely carefully, no sweets, low carbs.  So far this week it has been fine.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Slowly coming out of flare.  Meds: Colazal (6 per day), prednisone 10 mgm and tapering weekly, Cort enema nightly, Canasa in morning, Benicar 20 mg for BP, flaxseed oil 3 x a day, fishoil 2 x a day, probiotic 3 x a day, calcium with D 1x a day and multivitamin.
Doctor had me on 100 mgm of 6MP which drastically lowered my white count.  Now off the 6MP pending results of repeat white count. UGH.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/28/2009 11:41 AM (GMT -6)   
I wouldn't wait too long, especially since you do have family history of diabetes.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 8/28/2009 3:13 PM (GMT -6)   
I think I'm more sensitive to steroids though because I do see side effects from the enemas. People say not much gets into the blood stream but for me, it seems to get in there. If you check the side effects one of them is thirst. I think it would a huge coincidence that as soon as I started the enemas, I would have diabetes symptoms.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/28/2009 6:37 PM (GMT -6)   
glamourgirl, the same amount would get into your blood stream as anyone elses but you may just be more sensitive to it...also consider that sometimes symptoms can get masked by underlying conditions that you may have just developed and are unaware of so there's definitely room for coincidence that at the same time using a med that can have thirst as a side effect you could still be in the process of developing something like diabetes and think that its just the med, always better to play it safe..if ever unsure see your doc.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 8/29/2009 7:24 AM (GMT -6)   
Things are much better today, it's been day 2 of not doing the cortenemas. Now my concern is whether another brand would be better for me. I've used cortenemas before and never had this problem. I hope I can try a different brand and do okay with them. It really sucks when the medicine itself makes me feel worse than the disease. This happens to me a lot where I try different drugs and I end up feeling worse. I lose days of my life being sick from the meds, not the disease. ugh!
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/29/2009 8:59 AM (GMT -6)   
     Join the club.  The disease is bad enough of itself.  Prednisone, although it helps me, gave me osteoporosis, high blood pressure and now pre-diabetes.  UGH!  The doctor had me on too high of a dosage of the 6MP, it lowered my white count to 1.6, he took me off of it for a few weeks, managed to get my white count up to 5.0 (whew...normal) and now put me back on a dose of 50 mgm.  Oh, not to mention the insomnia from prednisone also.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Slowly coming out of flare.  Meds: Colazal (6 per day), prednisone 10 mgm and tapering weekly, Cort enema nightly, Canasa in morning, Benicar 20 mg for BP, flaxseed oil 3 x a day, fishoil 2 x a day, probiotic 3 x a day, calcium with D 1x a day and multivitamin.
Doctor had me on 100 mgm of 6MP which drastically lowered my white count.  Now off the 6MP pending results of repeat white count. UGH.

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