eye infections with UC, anyone??

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freckles
Regular Member


Date Joined Aug 2009
Total Posts : 32
   Posted 8/27/2009 9:18 PM (GMT -6)   
I am new to the forum as of today and am so very excited!  I have to say, I don't know anyone who has UC and those who I do talk to about my UC issues really don't understand the full spectrum.  I happened to stumble upon this website and am so glad that I did.  All of you have such great info to share and it is so nice to get other's opinions and advice!
 
I was wondering if anyone has had eye infections/problems related to their UC?  I have read some info that conjunctivitis can stem from autoimmune disorders.  I had a bad case of an eye infection in both eyes for over two months.  I am much better now, but take a daily eye drop that is for conjunctivitis related to allergies, however, my eye doctor believed that my current flare had something to do with the prolonged eye infection.
 
So...anyone had "pink eye" out there that became worse with your diagnosis?  Gross, I know... eyes

28/F
 
Dx UC 1/19/07 - went into remission very quickly after Dx with the help of Asacol, maintained remission until 12/07 (flared during pregnancy).  Still having flare.
 
Colazal, Asacol, Pentasa 4G daily, Slippery Elm, Flaxseed Oil, Probiotics,
GNC Energy Pack Vitamins, dairy free diet as much as possible or use Lactaid if needed.
 
Scheduled for 2nd colonoscopy 9/8/09 (so excited).
 
I call my frequent trips to the restroom "episodes".
 


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1916
   Posted 8/27/2009 10:18 PM (GMT -6)   
You know, I just had a problem with my eyes and just thought it was viral conjunctivitis from being around some kids recently. First it was my left eye last week and yesterday I woke up with my right eye crusty and red. I need to see the eye doctor as this has happened once before. I also have allergies but they have never caused my eyes to be this bad. I am not sure that I am in remission. Last time I talked to my doc he thought it was IBS acting up but I think it is the IBD. What do I know? Do your eyes get worse when your colitis flares?
diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's for whatever that is worth-:)
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/28/2009 6:58 AM (GMT -6)   
Every year I get something new that pops up and one year I had continuing eye infections - "Pink eye". I was constantly on eye drops and my eye infections lasted for quite a while. Then poof! gone just as quickly as they came on. Weird. But be sure to always always always wash your pillow case or sleep with a towel wrapped around your pillow case and remove it after you sleep. Many people forget to do this when they have eye infections. Also, discard all your eye make up if you use any.

Oh and btw, welcome to Healingwell! :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
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songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3698
   Posted 8/28/2009 8:11 AM (GMT -6)   
I had eye problems right around the time I was diagnosed - it was one of the things that tipped off my doctor to ask about my bowels (I'd been too shy to mention that and just complained about conjunctivitis, sores in my mouth, and being tired.) I guess these systemic things are more common with Crohn's, but they do sometimes happen with UC.
My doc told me then to make sure I have an annual eye appointment with an ophthamologist, not an optician. So I have - and I really haven't had eye issues in years.
Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills a day
Metamucil - 2 doses a day
Cortenemas or Rowasa from time to time
VSL#3, Ultimate Flora Critical Care
Canasa as needed


FairyGen
Regular Member


Date Joined Jul 2009
Total Posts : 142
   Posted 8/28/2009 8:38 AM (GMT -6)   
I wore contacts for years...No problem. Then about 2 years ago I started getting sores or ulcers in my eyes. My eye doctor assumed it was the contacts so I no longer get contacts..I still get irritation in my eyes but come to think of it, I haven't had any since I have been unflared so to speak...
Left sided UC: Diagnosed 7/09
Currently on Pred 40mg, Lailda 2.4 once a day
Supplements: Bromelain 3 times a day, Tummeric 3 times a day, Good Belly probiotics 1 time a day. Multi, Vit D, B-complex...
 
currently on the down side of a flair....


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/28/2009 5:52 PM (GMT -6)   
     My sight seems to always worsen with each flare.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Slowly coming out of flare.  Meds: Colazal (6 per day), prednisone 10 mgm and tapering weekly, Cort enema nightly, Canasa in morning, Benicar 20 mg for BP, flaxseed oil 3 x a day, fishoil 2 x a day, probiotic 3 x a day, calcium with D 1x a day and multivitamin.
Doctor had me on 100 mgm of 6MP which drastically lowered my white count.  Now off the 6MP pending results of repeat white count. UGH.


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/28/2009 10:52 PM (GMT -6)   
I had alot of trouble with eye infections and dryness and my vision was horrible for a long time and my dr thought it was allergies and such. But after i had surgery it all went away. And my vision got better.
I def think vision problems and eye infections are related to UC i would have never put it together until i recently saw a post like this on here.

JohnIII
Regular Member


Date Joined Jul 2009
Total Posts : 28
   Posted 8/28/2009 11:04 PM (GMT -6)   
You no not until your post have I put my eye problems together with the UC, but it make sense now. confused
Hospital November 2006 - UC First flare
ER May 2009 C-Diff
Hospital July 2009 Major Flare
 
Prednisone 60mg every morning
K-Tab 10 MEQ 4 Daily
Mesalamine 4 Gram/60 ML 1 bottle twice daily
Lisinopril 5 mg 2 daily
Asacol 400MG 4 tablets 3 times daily
Lipitor 20mg 1 daily
Propranolol 80mg 1 twice daily
Omeprazole 20 mg 1 twice daily
Nortriptyline 50mg 1 everynight
 


freckles
Regular Member


Date Joined Aug 2009
Total Posts : 32
   Posted 8/29/2009 8:48 AM (GMT -6)   
Thanks everyone for your replies.  It sounds like quite a few of us have linked our eye problems with our UC flares.  I have noticed that my vision is not what it used to be since I have been going through a flare.  My pink eye lasted two months, switching from eye to eye.  The pink eye just came on all of a sudden.  I wasn't in any environment where people had viral/bacterial pink eye.  I am on a once daily eye drop called Pataday.  It is expensive, $65 I think.  Pataday is an eye drop for conjunctivitis related to allergies/systemic issues.  There is a generic version that is two drops daily, however, I chose Pataday because I was so sick of all the eye drops that I was on.  I had to use five different eye drops and I can't even remember how many times a day.  It was crazy.  I started Pataday only after finishing all the other eye drops.  I have found that if I miss a dose of Pataday for several days, my eyes ache a little, so I think that one would have to wean slowly off the eye drops.
 
Again, thanks everyone for your replies.  It is so great to be able to discuss my UC issues with people who truly understand!!
 
 
28/F
 
Dx UC 1/19/07 - went into remission very quickly after Dx with the help of Asacol, maintained remission until 12/07 (flared during pregnancy).  Still having flare.
 
Colazal, Asacol, Pentasa 4G daily, Slippery Elm, Flaxseed Oil, Probiotics,
GNC Energy Pack Vitamins, dairy free diet as much as possible or use Lactaid if needed.
 
Scheduled for 2nd colonoscopy 9/8/09 (so excited).
 
I call my frequent trips to the restroom "episodes".
 


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 8/30/2009 3:38 PM (GMT -6)   
I haven't had any infections. I started developing Glaucoma from using Prednisone, though. When I saw the doctor for that, he did say that many people with UC develop eye infections and other eye issues
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
Back up to 30mg Prednisone UGH, Prenatal vitamin, and Ferrous Sulfate twice a day
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success
3 infusions of Remicade with no success, so next step is consultation with a surgeon 8/31
8/09 colonoscopy shows that the whole colon is affected


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 8/30/2009 5:15 PM (GMT -6)   
I have had four eye infections in the past year since being dx wiyh U/C the first was quite nasty  and i was on drops for weeks touch wood have not had any for a while but get them checked dont take chances with your eyes.
  
  Diagnosed 22.5.08 with Lft sided U/C
 Asacol 800mg x2 twice daily
 co codamol 30/500x2 when needed
 buscopan 20mg when needed
 asacol foam 1gm when needed
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/31/2009 9:43 AM (GMT -6)   
When I wore contacts I got an eye infection which showed up during a routine exam. The only symptom was a little swelling that I hadn't even noticed. It wasn't "pink eye."

I had lasik surgery about 7 years ago, my eyes have been fine with that. I recovered from surgery very easily (I highly recommend it!).


49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow

Post Edited (Peety) : 8/31/2009 10:47:20 AM (GMT-6)


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/31/2009 10:50 AM (GMT -6)   
Iritis and Uveitis are common eye problems for people with UC and Chrons. They are not eye infections but cause swelling, pain and redness of the eyes caused by the same autoimmune response that causes UC. Your body is literlly attacking the healthy issue/organs. I began having iritis YEARS before any UC symptoms. My doctors (both my GI and my ophthamologist) said there is a connection between UC and eye disorders. I would recommend that you be seen by an ophthamologist as they have the equipment to test for iritis and uveitis. You may not have an eye infection. Untreated Uveitis and Irisitis can cause permanent vision loss. They are treated completely different than pink eye but have many similar symptoms (swelling, pain, redness, light senstitivty). Again, I know all this from first hand experience. I am actually having an iritis flare up right now! So FUN!
Dx 2006 right after the birth of my daughter
Lialda 2 pills a day
Cort-enemas as needed
Canasa as needed
Probiotics Daily
 


freckles
Regular Member


Date Joined Aug 2009
Total Posts : 32
   Posted 9/1/2009 7:49 PM (GMT -6)   
thatfield-
 
thanks for your info.  I am still having some eye issues, but was seeing my local "optometrist" because I was told that an optometrist can also treat eye infections the same way an ophthalmologist would, but since my treatment I have heard differently.  I will check into what you said...there could be more to my eye problems than just pink eye.
28/F
 
Dx UC 1/19/07 - went into remission very quickly after Dx with the help of Asacol, maintained remission until 12/07 (flared during pregnancy).  Still having flare.
 
Colazal, Asacol, Pentasa 4G daily, Slippery Elm, Flaxseed Oil, Probiotics,
GNC Energy Pack Vitamins, dairy free diet as much as possible or use Lactaid if needed.
 
Scheduled for 2nd colonoscopy 9/8/09 (so excited).
 
I call my frequent trips to the restroom "episodes".
 


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 9/2/2009 5:53 AM (GMT -6)   
thatfield said...
Iritis and Uveitis are common eye problems for people with UC and Chrons. They are not eye infections but cause swelling, pain and redness of the eyes caused by the same autoimmune response that causes UC. Your body is literlly attacking the healthy issue/organs. I began having iritis YEARS before any UC symptoms. My doctors (both my GI and my ophthamologist) said there is a connection between UC and eye disorders. I would recommend that you be seen by an ophthamologist as they have the equipment to test for iritis and uveitis. You may not have an eye infection. Untreated Uveitis and Irisitis can cause permanent vision loss. They are treated completely different than pink eye but have many similar symptoms (swelling, pain, redness, light senstitivty). Again, I know all this from first hand experience. I am actually having an iritis flare up right now! So FUN!


I have iritis, too, but it was happened when I was young (like age 11). I was told I had pink eye at the time, though it did not go away with treatment. It was not discovered until years later that my iris was fused. The dr. said it is common with people with UC but thought it was weird that it happened to me when I was a kid and not now that I have the UC.
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
20mg Prednisone, 2 Asacol 3x/day, Prenatal vitamin, and Ferrous Sulfate 2x/day
3 infusions of Remicade with no success
8/09 colonoscopy shows that the whole colon is affected
Waiting on pathology report to make sure I don't have Crohn's before proceeding with surgery


mindstyle
Regular Member


Date Joined Aug 2009
Total Posts : 62
   Posted 9/2/2009 7:24 AM (GMT -6)   
I am not quite clear on Pink Eye thing but my mom has/had UC. She is off all meds for last 10 years and she is fine with UC symptoms but during last 3 years, she started with her eye problem. The problem is more like, she gets really difficult pain in the eye in the morning, the pain increases as the day progresses. The eye (only right eye) turns red during the day and by end of the day, the eye looks like frog's eye as if its gonna fall off any moment. Nobody has yet successfully diagnosed what the issue is. The ophthalmologist suspects it has connection to auto-immunity but GI disregards. She needs to perform cataract surgery but ophthalmologist refuses to do it, till its 'normal'. Only one solution she has, is to use pred drops and it sorts out within a day, to appear again within next 15 days.
Male, Diagnosed with Ulcerative Colitis since 2006, at the age of 30 years

Currently taking
100mg of Azathioprine, twice a day
2250mg of Balsalazide Hydrochloride, 3X a day
1mg of Vit. B12, once a day
500mg Salazopyrine suppository once a day.

30mg/day of Prednisolone since 2009/08/21 to control recent flare up, will reduce the dose by 5mg each week. (hoping not to swell up)

250mg Neproxen as and when required for migraine (usually twice a week and I don't know if this is side-effect of Salazopyrine)


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 9/2/2009 8:53 AM (GMT -6)   
Mindstyle - That sounds so much like iritis or uveitis to me - the symptoms and the fact that she also has Uc really make me think she should ask about iritis. I also have to use the pred eye drops when my eye flares but I have to stay on the drops for a week or two, even if the symptoms improve immediately, otherwise the flare never heals. I also have to tapper off the drops. Usually I use one or two drops every few hours for a few days, then taper to four times a day for a few days, then three times a day for a dew days, then two, then one...maybe your mom can try that even if the doctors are not on the same page. Two or three weeks on the drops is better for your eyesight than contstant swelling of the eye. Usually iritis is in one eye and not both but it can affect both...
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day
Cort-enema nightly
Canasa in the morning
Probiotics Daily
 


mindstyle
Regular Member


Date Joined Aug 2009
Total Posts : 62
   Posted 9/2/2009 9:08 AM (GMT -6)   
Thanks thatfield,

Thats exactly whats he tried in the beginning and as long as she was on pred drops, the symptoms didn't show. The symptoms returned in a month or two, she stopped Pred drops. The Ophthalmologist still suggests her to do tapering of dose but frankly she is so fed up with it that she doesn't follow it anymore. I agree that this excuse is just not acceptable but to an adult, you can only suggest, ultimately its upto them what they want to do. Now she just puts drops for day or two days, may be one more day than needed (in her opinion) and stops, no tapering anymore. We tried to convince her but she doesn't want to listen. I doubt if we can help further :(
Male, Diagnosed with Ulcerative Colitis since 2006, at the age of 30 years

Currently taking
100mg of Azathioprine, twice a day
2250mg of Balsalazide Hydrochloride, 3X a day
1mg of Vit. B12, once a day
500mg Salazopyrine suppository once a day.

30mg/day of Prednisolone since 2009/08/21 to control recent flare up, will reduce the dose by 5mg each week. (hoping not to swell up)

250mg Neproxen as and when required for migraine (usually twice a week and I don't know if this is side-effect of Salazopyrine)


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 9/2/2009 10:20 AM (GMT -6)   
I fortunately haven't had the uveitis or other eye problems associated with UC. I have developed a blocked tear duct in my left eye, though, and it has gotten infected three times in the past year. The first two times I thought it was a sinus infection because the whole upper left quadrant of my face swelled up. The third time, I caught it early and realized what was going on. I can actually feel a bony ridge at the inner corner of my orbit which was not there before.

Maybe it's the bone that dissolved from my right shoulder due to too many steroids. IDK, my musculoskeletal system has been doing strange things for more than 20 years now.
Judy
 Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001. Flared for 5 years, finally in remission with Remicade since March 2006. Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
Avascular necrosis in both shoulders is  my "forever" gift from steroids.
Chronic joint/connective tissue/muscle pain; TKR 05/09 
"My life is an ongoing medical adventure"
 


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 9/2/2009 10:22 AM (GMT -6)   
Oh gosh, I am sorry to hear that, she will do permanent damage to her eyes. Once I had a stubborn flare that took about a month of drops tto clear up. I also had to have my eyes dialated a few times during that flare to prevent damage. My Ophthalmologist will do an injection if the drops and dialation do not work...he will also prescribe oral pred sometimes. I have never had to have the injection or oral pred for my iritis but I would do it in a heartbeat if needed. Eyesight damage is permanant. I totally understand however about not being able to force your mother to comply. My father is the same way sometimes with medical issues, he is not very patient... :) Good luck to both you and your mother!
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day
Cort-enema nightly
Canasa in the morning
Probiotics Daily
 

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