So...after I posted about my last colonoscopy not being great news...i went to see my doc.
He says I am still inflammed all the way through (pancolitis). I am not having the diarhea I used to since being on Pentasa, but he says we cannot leave it inflammed. He put me back on 60mg of pred...and in a month I have to go see him to start either humira or imuran or something..I can't remember what exactly he said (can't believe I'm not getting better).
I'm so frustrated and feel like I'm getting closer to surgery. He says I'm still a ways from that...but what if these meds don't work.
I have been so careful what I eat...took all my meds as directed...didn't drink much...exercised when I could...but still lost weight, felt crappy and continued to battle this thing...now on with the scary drugs. I HATE that I'm back on pred.
I trust my doctor, and he even mentioned that if I was reluctant or felt at all nervous, he could send me to another specialist to get another opinion on everything and for the guy to maybe give me a better understanding of what's going on.
I just want to get some weight back on...and get on with things...without these crazy drugs..but I don't see that happening.
I never hear of any wonder stories about these biological drugs..was always under the impression that they just prolong the inevitable...true? or do they help?
What now...just wait and see? How can I help myself. I just want to be healthy and I'll do what I can to get there. Right now I'm trying to take advantage of being on pred for a few months and pumping in the calories to put 5-10lbs back on. (I lost 25lbs over the last year from 170 to 145). In a bit as I taper I'll settle back into my usual safe diet.
These drugs are going to kill me before the colitis does...
Chuck - 28 yrs and counting
Diagnosed w/ UC Dec 08 - pancolitis
Pentasa 500mg 2pills-4x daily
Prednisone 50mg Calicium + Vit D
Multivitamin, vitamin C, probiotics, fish oil
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"