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Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 8/29/2009 9:58 AM (GMT -6)   
Diagnosed: 11/08 / Pancolitis
Diagnosed with PSC: 3/9 --now taking Urso
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - 5/04/09 - 100mg - started 6/11/09 - back to 50mg 7/8/09
Mens Multi Vitamin - 1 a day
Vitamin A Deficient - 10,000mg a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
 
~~~Praying for a cure~~~~
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/29/2009 10:18 AM (GMT -6)   
This is marketed in the US as Entocort. For many it does have fewer side effects, for others it can still have devastating effects. It all depends on your body's sensitivity to steroids. As always, the lowest dose for the shortest effective period is the best way to go.
Judy
 Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001. Flared for 5 years, finally in remission with Remicade since March 2006. Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
Avascular necrosis in both shoulders is  my "forever" gift from steroids.
Chronic joint/connective tissue/muscle pain; TKR 05/09 
"My life is an ongoing medical adventure"
 


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 8/29/2009 12:32 PM (GMT -6)   
Thanks Judy, The biggest side affect that worries me about Pred is the loss of bone.  Do you know if entorcort has the same effect?

Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Diagnosed with PSC: 3/9 --now taking Urso
Asacol - 2 x 3 day (waiting for results)
6MP - 50mg - 5/04/09 - 100mg - started 6/11/09 - back to 50mg 7/8/09
Mens Multi Vitamin - 1 a day
Vitamin A Deficient - 10,000mg a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3  
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
 
~~~Praying for a cure~~~~
 


SwollenColon
Regular Member


Date Joined Nov 2006
Total Posts : 190
   Posted 8/29/2009 4:54 PM (GMT -6)   
I've been using Entocort for nearly 2 years with nothing but 100% fantastic results. It's been my magic bullet. I get yearly bone scans done and so far they've been normal. Your results may vary though, obviously. I have zero side effects from using prednisone as well, so apparently I respond well to steroids.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/29/2009 4:57 PM (GMT -6)   
I had a pathological fracture of my left tibia and fibula (leg) and osteonecrosis of the shoulder after using Entocort for three years.
Judy
 Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001. Flared for 5 years, finally in remission with Remicade since March 2006. Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
Avascular necrosis in both shoulders is  my "forever" gift from steroids.
Chronic joint/connective tissue/muscle pain; TKR 05/09 
"My life is an ongoing medical adventure"
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 8/29/2009 5:32 PM (GMT -6)   
I had terrible side effects from Entocort as well. I was only on it for about three weeks but had constant headaches, joint pain, weight gain. I think, just like any other drug, it works wonders for some but not others.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-failed


BenY
Regular Member


Date Joined Aug 2007
Total Posts : 60
   Posted 8/29/2009 6:41 PM (GMT -6)   
I tried 9mg (equivalent to 40mg pred) for three weeks. It did nothing for my UC, but did start to give me the moon face before I stopped.
Ben, 40

Symptoms diagnosed 4/07. Currently taking daily 8mg Prednisone, 100mg 6MP, calcium w/Vit D, 1/2 Prilosec (protects stomach from prednisone), Fosamax (trying to build bones back up from prednisone effects), Retin-A (helps with back acne from prednisone use), 4000mg EPA/DHA from fish oil, probiotic, multivitamin.


mel83
New Member


Date Joined Aug 2009
Total Posts : 7
   Posted 8/30/2009 11:08 AM (GMT -6)   
Swollen Colon,
I am thinking about starting entocort ASAP, and was wondering if you could share more about your experience and dosage? Do you take it daily, or only for a few weeks like prednisone? Have you come off and been in remission since? Your post gives me hope!
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