I had jpouch surgery 8 years ago. Is it different then having a colon? Yes. But it's better than a colon. Frequency is horribly misunderstood by those who are contemplating surgery. How many times do you pee a day? I bet you don't know and neither do I but most times I pee I empty my pouch. It's as fast and easy. I'm never in the bathroom longer than to pee even though I am emtpying my pouch.
I just returned from a 100+ mile hike on the John Muir trail in the Sierras. Although I haven't calculated it yet I believe the elevation gain and loss was around 35,000 feet. I could never have done the hike with UC or on all those meds. I am free of UC and very active and nothing keeps me from living life to the fullest. If you want quality of life and if you want to stop wasting time wishing you were well and declining opportunities due to UC then have surgery, any surgery.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free