Some UC questions. (Surgeons and Homeopathic treatments?)

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Lyndsie
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/29/2009 2:00 PM (GMT -6)   
Hi! I have three questions that I’d love some input and advice with. Background first though. My husband has moderate-severe UC. He’s had it five years and never really been in remission. He’s tried just about every medication. Most didn’t work some caused adverse reactions and he is on remicade right now. Not sure if that’s working. He has had around 5 doses, but has gotten worse. He experienced his first hospitalization this week and the doctor brought up a topic I did not really want to hear: surgery. And not just a resect, a colectomy. So I’d like to hear if anyone has had this procedure? And if anyone knows of a good surgeon around the st louis area. Or a good gastroenterologist, I’m sure his doctor knows what he’s talking about, but I’d like a second opinion.
My last question: has anyone had any good experiences/outcomes with homeopathic/ alternative treatments or doctors? If so any recommendations?
Thanks for any advice. It has been a very long and overwhelming week.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/29/2009 2:46 PM (GMT -6)   
Lyndsie, we do have a few people here who have had surgery. There's also a web site all about the j-pouch, which is the procedure most people with UC have. You can find it here: http://www.j-pouch.org/

Resections are never done on those of us with UC, the reason being that the disease invariably will reappear in the remaining portion of the colon, necessitating further surgery. The good news is that colonectomy is a cure for UC.

I don't know any specific doctors in St. Louis (I didn't have UC yet when I lived there), but I know Barnes Hospital is well-known for its colo-rectal surgery department.
Judy
 Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001. Flared for 5 years, finally in remission with Remicade since March 2006. Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
Avascular necrosis in both shoulders is  my "forever" gift from steroids.
Chronic joint/connective tissue/muscle pain; TKR 05/09 
"My life is an ongoing medical adventure"
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/29/2009 9:27 PM (GMT -6)   
i tried an alertantive dr at first and she gave me this stuff called "total leaky gut" and it really helped at first but it was really expensive and i couldnt find it anymore.

But then i had finally had enough and had surgery two years ago, best decision EVER!!!
I had a permanent ileostomy and its so great to be cured.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/29/2009 9:38 PM (GMT -6)   
I felt a lot better avoiding foods I learned I was senstive to, from going to the Naturopathic doc. But in the end, I decided it wasn't enough improvement (after also never really being in remission, all these years) and am doing great on Remicade.

I have found any diet changes or supplements only worked for a while. Nothing worked for me like Remicade. UC suffering is a horrible way to live, he might be ready for surgery even if it comes as a shock to you.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow

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