Pain as primary symptom of UC?

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aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 8/29/2009 4:07 PM (GMT -6)   
Most people on the board talk about diarrhea and urgency and bleeding as the main problems they experience with UC.  I don't think I have truly been in remission since diagnosed.  I may go a couple of weeks with no symptoms, but then have a horrible few days....then a good day or two, then a bad one and so on.  When in a flare, I go 15+ plus times a day and pass a small amount of blood.  The one symptom that is the hardest for me is the constant pain.  It is left sided and sometimes so bad I can't stand up straight.  My doctor has given me vicoden for those times and it does help, but I hate the feeling it gives me.  If I have to take a Vicoden (low dose at that) I am pretty much out of it for the rest of the day.  Does anyone else have pain as their primary symptom?  If so, what do you do about it?  Thanks for any input. 
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
   Posted 8/29/2009 4:09 PM (GMT -6)   
You also have diverticular disease..would that not also account for some pain?

If your pain is spasming, then possibly an antispasmodic would help.

Any rectal meds in your future??? Could be one possibility.

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 8/29/2009 4:12 PM (GMT -6)   
My doctor prescribed rectal meds, then I ended up hospitalized with a severe flare before I could have them filled. When they found the diverticular disease.....he said to discontinue all rectal meds. I was fuzzy headed at the time and never asked for an explanation of why I couldn't do the rectal meds with diverticular disease.
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-current, but not working yet


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5958
   Posted 8/29/2009 7:14 PM (GMT -6)   
     I really don't think rectal meds help in diverticular disease.  At least my doctor never mentioned it.  I have ulcerative proctitis and find the rectal meds help me a lot.  Did your doctor give you a specific diet to follow for the diverticulitis?  You should stay away from anything with seeds, nuts, corn, etc..  My dad had it and wound up having to have an operation to remove part of his colon because a pouch had formed and was about to burst.  He was in a lot of pain. 
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Slowly coming out of flare.  Meds: Colazal (6 per day), prednisone 10 mgm and tapering weekly, Cort enema nightly, Canasa in morning, Benicar 20 mg for BP, flaxseed oil 3 x a day, fishoil 2 x a day, probiotic 3 x a day, calcium with D 1x a day and multivitamin.
Doctor had me on 100 mgm of 6MP which drastically lowered my white count.  Now off the 6MP pending results of repeat white count. UGH.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
   Posted 8/30/2009 12:46 AM (GMT -6)   
Aned...please talk to your doctor about the rectal meds...you still have UC.

q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 8/30/2009 8:29 PM (GMT -6)   
Pain is my biggest complaint for my UC, and most of the time it is deeper and not rectal in nature.
"In order to save the village, we had to destroy it." -- Medical proverb. 
 


aned
Regular Member


Date Joined Mar 2009
Total Posts : 105
   Posted 8/30/2009 9:30 PM (GMT -6)   
My pain is all lower left quadrant of my abdomen. On my good days it is just a kind of nagging tugging sensation. On my bad days, it feels like things are ripping and tearing loose. I am still curious how many people have pain with their UC?
37 y/o female
non-specific colitis dx. 2007
ulcerative colits dx. 2009
diverticular disease dx. 2009
Asacol-failed
Entocort-failed
Colazal-failed


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 8/30/2009 10:58 PM (GMT -6)   
I had similar pain on my left side in September last year and Entocort enema was a great help. I used it nightly and the pain was gone after one week.
I never have this kind of pain again, even though I'm flaring now.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk suppositories, Salofalk tablets 1000mg x 3/day, Entocort enema
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C and psyllium capsules (Metamucil).

Present status: Flaring since July 2009; on 35 mg Prednisone


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 8/31/2009 3:06 AM (GMT -6)   
I have a nagging type of pain most of the time mainly across the top of my stomach juust under my ribs it does get worse some days and i take pain killers and anti spasmodics but mostly it is just there.
  
  Diagnosed 22.5.08 with Lft sided U/C
 Asacol 800mg x2 twice daily
 co codamol 30/500x2 when needed
 buscopan 20mg when needed
 asacol foam 1gm when needed
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 8/31/2009 6:25 AM (GMT -6)   
Yes, I have a lot of pain with my Uc as well. Even in remission I will sometimes get that pinchy pulling pain on the left side but it can get quite painful while flaring. On those occasions, I resort to taking Darvocet (I'm allergic to all forms of codeine) and it makes me a bit tired but not severely so like other narcotic pain meds. Also a heating pad can help take some of the edge off. I sometimes used those stick on air activated charcoal heating pads. They seem to work just as well and you can take it everywhere you go.


 @--->--SHERRY--<---@
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Probiotic
Veteran Member


Date Joined Mar 2007
Total Posts : 2832
   Posted 8/31/2009 7:04 AM (GMT -6)   
supersaw- I am guessing perhaps the joint pain is from the humiras? I have noticed increased joint pains while on biologics. However, my own pains vary from day to day and week to week but are mostly stomach- they vary from under the ribs, down to the lower ab, to the pelvis as well. Some days/weeks it is burning type, other times aching, other times sharp local type, etc.. Gotta love the way IBD can create so many types of pain.
"In order to save the village, we had to destroy it." -- Medical proverb. 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/31/2009 8:49 AM (GMT -6)   
When I was flaring I would have blinding pain when on the toilet, it would completely subside but would take a few minutes to recover from, then my gut would just feel tired. Otherwise, I understand that tugging sensation. It would be uncomfortable to stand for a long period because it felt like putting weight on my tired gut, kind of like menstrual cramps.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 8/31/2009 9:33 AM (GMT -6)   
Yes, for quite a few months I had terrible aching pain just under the ribs and in my abdomen. My primary finally did a whole bunch of bloods and ordered me to take an anti-anxiety med for a couple of weeks. They are finding that these meds help with some inflammation, which I had. I stopped the meds within a couple of weeks, and haven't had the problem since. I asked my GI about it and he said he would have done the same as my primary. If it starts again, I'll try taking them again for a couple of weeks. Oh, and that is the only symptom that I'm having; I'm in Remicade remission right now.

Carol

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


Scotch
Regular Member


Date Joined Jul 2005
Total Posts : 88
   Posted 8/31/2009 10:20 AM (GMT -6)   

I know exactly what you mean about the pain.  I also could not stand up and it was worse about an hour after eating.  It didn't matter if I had a bowel moment, I still had the pain.  It was awful. I have had pain in the same area for over a year.  I have been on/and still am on Canasa (rectal med), 6MP, Colazal, and Fibercon.  I have had every test on my gall bladder, Cat scan of my abdomen, x-rays, and also an MRA (MRI for my arteries going into my intestines).  I have had UC for 19 years and this past year has been the worse for the pain. 

After inconclusive tests, I was given Amitrityline (don't think this is spelled right) back in April.  I started on 10 mg which helped for 2 months and then the pain came back and they changed it to 25mg (in June).  I have been pain free since then.  I am not even sure how it works but it did for me. 

 
UC since 1995 - Entire colon
Currently on Canasa, 6MP, & Colazal, Levsin


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 8/31/2009 10:51 AM (GMT -6)   
Yes, that is exactly what I was given - Amitrityline! I couldn't remember the name. Are you still taking it Scotch? It really did the trick for me too.

Carol

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


GLOVE
Regular Member


Date Joined Jul 2009
Total Posts : 321
   Posted 8/31/2009 11:11 AM (GMT -6)   
When I am in a flare I feel a constant burning and tugging in my abdomen. Sometimes it is really frustrating when you are trying to get things done and all you can think about is the nagging pain in your guts.
UC since 2002- had remission for 6 years
recent flare 06/09- severe flare
Currently trying lialda, multivitamin, probiotics, fish oil, iron supplement
 tapered off prednisone 8/21/09
 


Scotch
Regular Member


Date Joined Jul 2005
Total Posts : 88
   Posted 8/31/2009 12:34 PM (GMT -6)   
Yep, I am still on it.  It works fine at 25mg.  Other than I take it at night as it does make me very sleepy.  I would rather be sleepy than have the pain I was having!! LOL

UC since 1995 - Entire colon
Currently on Canasa, 6MP, & Colazal, Levsin


marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 8/31/2009 12:50 PM (GMT -6)   
I always have pain along my lower left side.It is quite acute today and has doubled me over several times today.I also have lower back pain and joint pain in my hands and elbows.Today has been tough!! My doctor started me on iron supplement as i am slightly anaemic and i believe it's causing the increased synptoms.

Marty


  



       
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 8/31/2009 12:52 PM (GMT -6)   
MARTY!!! ((((HHHUUUGGGSSS)))
 
I've missed you friend. Sorry you are having it rough right now.
Carol

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1910
   Posted 8/31/2009 7:11 PM (GMT -6)   

I have colitis and diverticulum as well. My doc says it is diverticular colitis. Whatever. Do you think your pain is from the diverticulitis or that you may have IBS? Did they put you on any antibiotics for the diverticulitis? That much pain doesn't seem normal.

 Before I got diagnosed and got on colazal, I had a lot of pain but now the pain is gone. If it keeps on, I would check back in with the doctor. It did take quite a while for the colazal to kick in for me but the pain subsided after a week or two. A lot of people here also take probiotics. My doc has prescribed rectal meds. I use them if I have a flare up or fissures. Good luck to you.


diagnosed 1/09 with "diverticular colitis" ?? location, sigmoid colon
localized scleroderma & IBS, low thyroid
 50 +  female
 colazal, fish oil, synthroid, zoloft, VSL#3 probiotic.
Blood test positive for Crohn's for whatever that is worth-:)
 

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