6mp/teacher/swine flu please help

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Britney_
Regular Member


Date Joined Jul 2008
Total Posts : 35
   Posted 8/30/2009 9:26 AM (GMT -6)   
Im am down to 50 mg of 6mp bc of it lowering my white blood count.  I am wondering is 50 mg even doing anything?  We have had a case of swine flu at my school (im a teacher) .  I am very worried about getting sick.  If you were me, would you just stop the 6mp?  I plan on calling my doctor tomorrow morning but was just curious what would you do?  I am not in remission.
Current Meds:
9 colazal daily
canasa 2X daily
6mp 75 mg
 


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3652
   Posted 8/30/2009 9:50 AM (GMT -6)   
If I were you I'd keep doing the 6MP and call the doctor in the morning - and keep washing your hands, etc as they say.
It sure is scary; I think a lot of us are going to be nervous about making the right decisions this year, because of this flu thing.
Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills a day
Metamucil - 2 doses a day
Cortenemas or Rowasa from time to time
VSL#3, Ultimate Flora Critical Care
Canasa as needed


Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 601
   Posted 8/30/2009 10:05 AM (GMT -6)   
I am scared too. I am on Remicade and just started on Prednisone 60mg again. I work at the front desk in an assisted living residence. I come in contact with so many people not to mention the residents who live there. I am so worried about being in there this winter with the swine flu and other sicknesses. I want to quit just to be safe.
 
39 yrs old ( diagnosed UC 2002)
Ankylosing Spondylitis (diagnosed 1990)
Asthma/Allergies
-----------------------------------
Asacol 12 daily
Zoloft 50mg
Multivitamin
Fish Oil
Rowasa
Remicade
Fosimax  (Osteopenia spine)
Hydrochlorothiazide 12.5mg (hypertension)
Prednisone 40mg
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5968
   Posted 8/30/2009 10:12 AM (GMT -6)   
     Britney....I had the same problem.  The doctor had me on 100 mgm of the 6MP and my white count went down to 1.6.  He took me off the med for a few weeks and thankfully my white count went up to 5.0.  Now, he put me on 50 mgm.  Do you have your CBC drawn monthly?  I would say a safe level would be 3.5 and NOT below.  Normal is 4.0 to 10.0.  My GI said if it stays at the normal level my system attacks itself.  At least at 3.5 you have some antibodies.  My husband and I are retired and stay away from crowds and kids during the flu season.  Wash you hands a LOT.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Slowly coming out of flare.  Meds: Colazal (6 per day), prednisone 10 mgm and tapering weekly, Cort enema nightly, Canasa in morning, Benicar 20 mg for BP, flaxseed oil 3 x a day, fishoil 2 x a day, probiotic 3 x a day, calcium with D 1x a day and multivitamin.
Doctor had me on 100 mgm of 6MP which drastically lowered my white count.  Now off the 6MP pending results of repeat white count. UGH.


ThePostmodernIrony
Regular Member


Date Joined Feb 2007
Total Posts : 344
   Posted 8/30/2009 6:59 PM (GMT -6)   
I think it is good to be concerned. However, I think that you need to keep in mind that if you stress yourself out over it - the stress will make you more likely to get sick - so try to stay level-headed. I am not the best at this - but I know the last time I was really sick and kept getting worse - I was also freaking out about it - which is a bad combo. Good luck, Stay well!!
UC diagnosed January 05
Past Meds: Azasan (Imuran) - piercing chest pains after six days so tried different brand aka Azathioprine - morning nausea /didn't really help after more than 6 months, dicyclomine (still flared), Remicade - 7 treatments (stopping because no dramatic changes), allergy shots (03-07), levbid, prednisone (been off since nov. 08!)
Current meds: Asacol 2 - 3x, Aciphex (acid reflux), canasa and rowasa alternating every other night, konsyl (fiber 3 a day), multivitamin, caltrate 2x a day. probiotic (florasmart), astelin (nasal spray as needed for allergies), fosamax (bone density), Iron


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 8/30/2009 7:20 PM (GMT -6)   
I'm right there with worrying. There are 84 confirmed cases at the university where my son takes a couple classes and one of his best friends is sick with what they suspect is Swine Flu. He is running a fever of 103! Both my IBDers are on immune-suppressors. My daughter recently had to have her dose lowered due to lowered white count and liver issues.

I am just dreading this!!! My daughter's Ped GI is NOT recommending the vaccine shot for her patients as she herself dose not feel safe taking it. She does recommend the regular flu vaccine. She wrote my daughter and Rx for Tamiflu and said if anyone in the family comes down with it, call her and she will Rx it for everyone.

What I loved last school year was that my daughter's teacher was a germ-a-phobe and ran a very tight ship. If she saw a kid with finger in their mouth or nose, she sent them to the in classroom sink and made them wash. This years teacher doesn't even have them was or use hand sanitizer before snack time, UGH!! My daughter keep some in her desk and lunch box to use.

Our newspaper said today that by the time the vaccine is available, Swine Flu will likely have run it's course in our town since we are being hit so early.

Wash, wash, wash your hands!!! If it is in your power, have your kiddos do the same. Provide Germ-X for your classroom.

I hope your are able to get your UC under control and avoid the Swine Flu!! Keep us posted!
Julie

Mom of Son 17 UC dx 07/02, Prednisone 2.5 mg, Lailda 2 am & 1 pm, Azasan 100mg, folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Prednisone 2.5 mg, Colazal 750mg x 4, 6MP 12.5mg, Iron, Vit/Min., Culturelle


Jen O
Regular Member


Date Joined May 2009
Total Posts : 136
   Posted 8/30/2009 8:41 PM (GMT -6)   
Hey all,

I am on 100 mgs of Azathioprine (a "cousin" of 6MP). A couple of weeks back, my daughter (5 years old) was sick with D, then a high fever and body aches. I posted on here that I was worried I passed the darned UC on to her. I finally took her to the doc and she had Swine Flu. She is a healthy kid with no medical issues.

I was worried about catching Swine Flu with my "compromised immune system" and then she goes about and gets it. As people usually are with their little kids, we kiss, hug, cuddle, etc. I never got it. And I am a physical therapist who comes in contact with a lot of sick older folks. Of course hand washing is the norm in a health care facility.

So, I guess the lesson to be learned from my case is hand washing is important, but if you are gonna get it, you are gonna get it! :)

Stay healthy!

Jen
Age 35, Diagnosed with UC September 2008
Current Meds:
Azathioprine 100 mgs, Apriso 4 tabs
Biotin 5 mg
Vitamin D 2,000 IU per day
Calcium 1500 mg per day
Flaxseed Oil 3000 mg per day
Multivitamin
Rite Aid Probiotic
Also tried: Remicade, Asacol, Rowasa, Cantasa, Prednisone 2 times for about 3 months each

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