What a bad night last night. So bad I had to put the two dog beds in the bathroom and sleep in there. I just couldn't run fast enough.
The last few days have been really bad. I can't count how many times I have been to the bathroom. I have had two Remicade infusions so far with no luck. I have been off the Prednisone since the end of July.
I finally just got rid of all the belly bloat and moon face and was feeling more normal. After last night I called the doctor on his cell this morning. Starting 60mg of the pred as of today. I am so upset but know that if I don't do it I will be in the hospital within days hooked up to an IV.
He said he will get me off them as soon as possible. He also said there is still a chance the Remicade will work because he will raise the dose from 5kg to 10kg. Has anybody else had to do this? Is there such a thing as a quick taper of pred? I will be going in for a flex sig this week also so he can see how involved the colon is.
I am just so tired of being sick. Flaring since Dec 09.
39 yrs old ( diagnosed UC 2002)
Ankylosing Spondylitis (diagnosed 1990)
Asacol 12 daily
Fosimax (Osteopenia spine)
Hydrochlorothiazide 12.5mg (hypertension)