Rowasa enemas nightly since end of May and still flaring

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 8/30/2009 6:33 PM (GMT -6)   
Went into a flare the end of May and have been using rectal meds nightly. Also take 8 Colazol daily now. Started out with left sided discomfort which finally has mostly gone away but still bleeding. Now it seems when I get any gas pressure I need to go right away because I pass bloody silt type material. It feels all swollen when I sit. Otherwise I usually only have 2-3 small bms a day first thing in the morning usually. Was wondering if anyone went this long with nightly enemas? I tried a week of colocort but I had lousy symptoms from it and it seemed like it made the bleeding worse. Getting frustrated. Never had a flare this long before. I have been under extreme stress so I am sure that did not help. Trying to go one day at a time and not get down.



Used immune system for sale................needs tune up. Best offer

Post Edited (psychocolon) : 8/30/2009 5:45:31 PM (GMT-6)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 8/30/2009 8:49 PM (GMT -6)   
Hi....this isn't the longest time heard of...some have used them nightly for 6 months...I used them nightly for 4 months before tapering.

What oral 5ASA were you on before the Colazal?

Are you on Rowasa or the generic?

Are you on the 2g or 4g dosage?

When was your last c-scope or sig-scope?

You're definitely a trooper, but it is a good thing to take one day at a time.

Are you using any other supplements? If so...which ones?

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 8/30/2009 9:16 PM (GMT -6)   
I use Canasa nightly and have for years. Sometimes I drop to every other night but I don't stop completely because I tend to have symptoms if I don't use any rectal meds.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron
 


psychocolon
Regular Member


Date Joined Jul 2009
Total Posts : 118
   Posted 8/31/2009 8:33 AM (GMT -6)   
Thanks for the replies.....makes me feel a little better. I was on Asacol before the Colazal and did not feel that it covered me well enough because I would pass pills in my stool. Even though the Doc said the med was still delivered. It seemed better after going on Colazal for a while. Never completely went into remission as I always had a little blood in the stool. I am on generic Rowasa which has worked before and it is 4g. I am due for a scope this year so I will be having one soon.
For supplements I take Fish oil and VSL#3 probiotic.

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 8/31/2009 12:05 PM (GMT -6)   
The enemas can't reach much past the first stretch of colon (I forget the term, ascending maybe?)(I participated in a study to find out how far they would reach). So they won't help the disease that's further up. You probably need the asacol, are you sure the pills were whole and not just the casings? We've talked about that here before.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/31/2009 12:10 PM (GMT -6)   
Part of the reason I switched to Apriso from Asacol is because I was seeing pills in my stool. I could tell (because I poked around in the toilet) that there was still A LOT of medicine in them. Apriso starts dissolving at a lower pH than Asacol does, and there is some evidence to show that people with UC have more acidic guts. If your UC is through the whole colon, I bet the Colazol isn't treating all of it. So maybe ask about Apriso.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (currently tapering; 12.5 mg).


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 8/31/2009 6:11 PM (GMT -6)   
     I've been on Cort enemas nightly and Canasa suppositories in the morning since the end of May.  However,  after inserting the suppository on Friday morning I had terrible burning in the rectum.  I skipped the Canasa on Saturday morning but inserted one yesterday and had the same reaction...burning and discomfort and pain when I passed gas.  Thought maybe this was due to a fissure or hemmie.  I was going to call my GI doctor today but instead I used Tucks yesterday and today...skipped the Canasa.  I had two well formed bowel movements this morning (as I have been having for a few weeks now), no blood and I had no pain with the bowel movements.  So, gonna stop the Canasa.  Don't know whether to stop the Cort enemas though.  I haven't taken one for a few nights now.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Slowly coming out of flare.  Meds: Colazal (6 per day), prednisone 10 mgm and tapering weekly, Cort enema nightly, Canasa in morning, Benicar 20 mg for BP, flaxseed oil 3 x a day, fishoil 2 x a day, probiotic 3 x a day, calcium with D 1x a day and multivitamin.
Doctor had me on 100 mgm of 6MP which drastically lowered my white count.  Now off the 6MP pending results of repeat white count. UGH.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 8/31/2009 9:23 PM (GMT -6)   
Peety....the enemas aren't meant to reach higher than the sigmoid or just past that in the descending colon, so really it's not an issue considering psychocolon is also on oral meds..


psychocolon...My concern would be that the colozal isn't quite the right med ...maybe Apriso or Lialda would be better. worth a try.

I say try the change in oral meds.

Now, one other thing...it seems many on fish oil seem to always be complaining of long flares....maybe try to not take the fish oil for a while and see if you improve.

quincy
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/1/2009 11:26 AM (GMT -6)   
Isn't that what I said?
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, September 23, 2018 10:51 PM (GMT -6)
There are a total of 3,005,973 posts in 329,290 threads.
View Active Threads


Who's Online
This forum has 161814 registered members. Please welcome our newest member, thk.
270 Guest(s), 5 Registered Member(s) are currently online.  Details
logoslidat, clocknut, PeterDisAbelard., Hoagie, Girlie