I believe my Gi said I could not try Humira until it is approved for UC (it must be an issue with my insurance not covering it). He told me he didn't want to do 6MP because it would take too long to work and I am getting too sick to wait for that.
The meeting with the surgeon did not accomplish a whole lot yet, as he is sending the slides from my colonoscopy to an expert pathologist to. The surgeon is not entirely convinced I have UC and not Crohn's, as he said while the whole colon is inflamed, the rectum is not, which is often more indicative of Crohn's. But he did say the bloodwork I had recently makes them think UC more. He just wants to me more sure before talking about
surgery. He said I could still have surgery with Crohn's but would have a bag forever. He was a very nice and personable surgeon at least. He also put me back on Asacol. He said sometimes it can not work and then later work and he said I can't just be on Prednisone alone.
So now I wait 10-14 days for the pathology report to find out
Yes, I am still breastfeeding. I don't know if it would help to quit. I have been flaring for pretty much 2 years straight and nothing seems to really have helped much at all. Even on Prednisone, I am bleeding quite a lot and going 15-20 times a day. The urgency is increasing and I can no longer hold it most of the time. I have to run out of stores sometimes if I can't see a bathroom. It is just too much. I have to go to school and an internship like this. I started class again yesterday and had to run out of class several times. I am so worried about
what will happen if I don't make it to the bathroom while at school or my internship (which is at court and also requires me to travel sometimes).
I'm also have a lot of issues with the PRednisone dependency. I just can't stay on it. I have too many side effects (high blood sugar, Glaucoma, a lot of weight gain, night sweats, and on and on)
26 year old female
Diagnosed with unspecified UC 11/08 by flex. sig. as I was pregnant at the time and did not want to be put under for a colonoscopy
Breastfeeding my baby boy (born 4/8/09)
Back up to 30mg Prednisone UGH, Prenatal vitamin, and Ferrous Sulfate twice a day
Was on Asacol (2400mg or 3600mg a day) for 6 months with no success
3 infusions of Remicade with no success, so next step is consultation with a surgeon 8/31
8/09 colonoscopy shows that the whole colon is affected
Post Edited (pam222) : 9/1/2009 4:59:56 AM (GMT-6)