Lialda questions

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therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 8/31/2009 8:51 AM (GMT -6)   
I couldn't take the symptoms any longer so I started Lialda. My doc recommended 4 in the morning . I just started with one yesterday(just to see how I would react to it) and I could feel it working, my gut calmed down. My one doc said he wouldn't be surprised from what I described if I didn't have chrons as well as UC.
 
After taking the Lialda about 1/2 later, I had a little panic attack and felt very nausous on one tablet, but it went away shortly thereafter.  I also did a Canasa a couple hours later b/c of the inflammation in my rectum.
 
How many pills of Liada are normally prescribed?
Can you build up to the dose?
Can you take two in the morning with breakfast and two at lunch to space the out?
 
Thanks,
 
 
 
 
Very mild left sided (could have fooled me with the "mild")  UC. Started and stopped LDN ON 1/25/09 to mid May no improvements. Supplements: Probiotics, multi, iron, caprlic acid, sporonox (for 14 days) trying a new peptid replacement therapy, drug free. Getting IV of vitamins and minerals for 12 weeks. I take lomotil as needed.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16736
   Posted 8/31/2009 10:30 AM (GMT -6)   
I don't take Lialda but I do take Asacol which is almost the same. I take mine at different times of the day. I think 4 Lialda is 4800mg. I take 3600 a day. I saw one person here who takes 16 Asacol a day but that is the most I have heard of. I think the max dose is supposed to be 4800. I wonder if I have chrons too, my doctor said that my inflammation was mild and patchy at my colonoscopy. I read that patchy can indicate chrons. I have to switch doctors again because I moved but I will go back to my original doctor and she is really good at giving me answers. I think 4 is a normal dose, as is 2 or 3 for people with more mild inflammation.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 8/31/2009 10:33 AM (GMT -6)   
Thank you, I will try 2 tomorrow. I just had one again today. I notice my arms start to itch about a hour after taking it and then goes away. I get a little nauseous. I noticed I finally slept though a night without going to the bathroom. We'll see how I do on this.
Very mild left sided (could have fooled me with the "mild")  UC. Started and stopped LDN ON 1/25/09 to mid May no improvements. Supplements: Probiotics, multi, iron, caprlic acid, sporonox (for 14 days) trying a new peptid replacement therapy, drug free. Getting IV of vitamins and minerals for 12 weeks. I take lomotil as needed.


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/31/2009 10:40 AM (GMT -6)   
I have been on Lialda for a long time, getting close to two years. When I am flaring or starting to flare I take 4 pills, when I am in remission I take 2 generally...I have never experienced any side effects and it seems to help proling the period of time between flares and also lessen the effects of flars for me...
Dx 2006 right after the birth of my daughter
Lialda 2 pills a day
Cort-enemas as needed
Canasa as needed
Probiotics Daily
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 8/31/2009 10:42 AM (GMT -6)   
Hi Thatfield,
Do you have completely normal stool, no urgency or are you just "managing" day by day? What time do you take yours and have you spread them out throughout the day?
Thank you,
Linda
Very mild left sided (could have fooled me with the "mild")  UC. Started and stopped LDN ON 1/25/09 to mid May no improvements. Supplements: Probiotics, multi, iron, caprlic acid, sporonox (for 14 days) trying a new peptid replacement therapy, drug free. Getting IV of vitamins and minerals for 12 weeks. I take lomotil as needed.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/31/2009 10:43 AM (GMT -6)   
I'm on Apriso, which is quite similar to Lialda in that's it's a once-daily mesalamine drug. I take 4 pills, all in the morning with breakfast. I'm sure you could take part in the morning and part at night...the main reason for the one-daily dosing is convenience, because many people (like me!) have problems remembering multiple doses during the day, and therefore end up not taking as much medicine as they should, which can lead to relapse.

I eventually want to lower my Apriso dose (mainly so I can increase it if I start to flare, if that makes sense), but since I was so, so, so sick, my doctor wants me to stay at this dose until I've been in remission for a while.

Do you think there's any possibility that your nausea is related to your UC and not to the meds? Or that maybe you're a little anxious about being on Lialda?

Also, if you can tolerate them, definitely get on a mesalamine enema!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (currently tapering; 12.5 mg).


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 8/31/2009 10:56 AM (GMT -6)   
Actually I welcomed any relief, so I wasn't scared of taking meds like I have in the past. Plus I've been doing these IV treatments of vitamins and minerals and I think it's helped build up my system. I finally slept last nigt, I'm going to continue with the Lialda. Thank you.
Very mild left sided (could have fooled me with the "mild")  UC. Started and stopped LDN ON 1/25/09 to mid May no improvements. Supplements: Probiotics, multi, iron, caprlic acid, sporonox (for 14 days) trying a new peptid replacement therapy, drug free. Getting IV of vitamins and minerals for 12 weeks. I take lomotil as needed.


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 8/31/2009 11:58 AM (GMT -6)   
Hope you feel better now that you're starting the meds.


It's either Crohn's OR UC...not both.

In other words, it eventually becomes clearer once it's not mimicing UC....and CD in the colon or limited to the lower part of the colon seems tohave/sometimes has it's own set of rules.

q


*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3670
   Posted 8/31/2009 12:01 PM (GMT -6)   
Hi Heather,
I tried to call the Lialda company and ask about spacing the meds out like 2 at breafast and 2 at lunch so the side effects are so harsh. I do start to itch mainly on my arms about after a hour of taking it. I was wondering since I only had one today should I take another with my lunch, I'm just trying to build up to the dose. should I take my iron far away from meds do you know?
Thanks,
Linda
Very mild left sided (could have fooled me with the "mild")  UC. Started and stopped LDN ON 1/25/09 to mid May no improvements. Supplements: Probiotics, multi, iron, caprlic acid, sporonox (for 14 days) trying a new peptid replacement therapy, drug free. Getting IV of vitamins and minerals for 12 weeks. I take lomotil as needed.


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/31/2009 12:11 PM (GMT -6)   
I wonder if taking Benadryl would help with the itchiness? Definitely ask your doc before you do that, though!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (currently tapering; 12.5 mg).


quincy
Elite Member


Date Joined May 2003
Total Posts : 31004
   Posted 8/31/2009 12:15 PM (GMT -6)   
You know....basically, if you can't take 5ASA meds, you shouldn't.
I would think 2 daily to start is good....then increase it by one. Or take one for a few days, increase it by one..etc.
q
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 8/31/2009 1:58 PM (GMT -6)   
Hi Linda,

When I am in remission (and I still take Lialda in remission) I have formed stool but often is it still very very soft - not like it was prior to UC. I do not have urgency or cramping or blood when in remission with Lialda. I think that the Lialda actually sometimes makes my stool softer and lighter in color...even when I am not in a flare.

I take mine all in the morning with breakfast but I have considered splitting it up. I am afraid that I will forget a dose if I split it though. I take a multi-vitamin with my Lialda in the morning. The only thing that I have noticed is that if I take Lialda without food it can upset my stomach slightly. Of course so does the vitamin so I always eat breakfast. My GI told me that taking Lialda with food may help it move more quickly into the intestines and start working faster. I think that it would be just fine to split it up through the day with meals.
Dx 2006 right after the birth of my daughter
Lialda 2 pills a day
Cort-enemas as needed
Canasa as needed
Probiotics Daily
 

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