Hi Amy..questions are good!
I'll do a search later for the 5ASA/cancer info.
The enemas are retained, and it's best to lay on the left side for at least half an hour.
I can get up after using them if I'm not flaring, if I'm flaring, it's better for me to stay quiet..lol.
It's best to taper them to a maintenance. Now, forever is subjective....for me, 20 years is like nothing...and I'm still dealing with UC, but I'm still on the same meds,.,.,which is a good thing.
I have my c-scope on Tuesday..so I'll see what's going on in there. The pathology won't be back for a few weeks..and if all is good precancer-wise, I'll have my next one in 3 (or 2) years depending on how I'm doing.
If the Align is working, that's great. I've tried different ones throughout the years....
I would think that using the enemas would be better than not.....consider where UC starts and the likelihood that it can always have some sort of a slow simmer of inflammation there. Some have symptoms, others don't...which can be a shocker when the symptoms appear.
It's an insurance type of thing....but the point of using the enemas is to keep flares to a minimum...which for me it's been awesome.
I'll look for the info tonight...I'll be busy all afternoon.
*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux); Effexor XR 75mg(depression); Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!