should i use the medication

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sheenray
New Member


Date Joined Aug 2009
Total Posts : 6
   Posted 8/31/2009 9:03 PM (GMT -6)   
today i was diagnoized with ulcerative colitis   severe chronic pancolitic  full colon from cesum to the end.
 
it all started 3 months ago when i started
 drinking juice made of raw tamotos , oranges , straw berries , walnuts and ate lot of nuts ,, cashews , sunflower seeds and pisthachios  and full bottle of  wine a day
i did all this to keep my self healthy and wine to have a better digestion.
now i know i ate and drank ulcerative colitis.
 
the day i was doing my colonoscopy preparation ,, i drank megnisium citrate and halfway pack  .. all the night my colon is burning like hell ... i cried and rolled and in the morning went to have colonoscopy and they declared sever pancolitic chronic ulcerative colitis.
 
i never ever had that kind of burning
 
but before that i never use to have right side pain or discomfort
 
can the result be sever chronic because of my diet before i got attacked ..
 
will the colitis in future go from severe chronic to mild or moderate ..is there a chance..
 
the doctor prescribed me azulfadine .. but i did not take it ..i tried vsl3 and ginger ... 
today the doctor warned me to  take medicine or else i will have perforations fistulas etc
but i see that some people are able to control uc using fish oil , probiotics boswelia , bromelin curcummin and diet
 
I am afraid my kidneys are weak...
 
please let me know
 
 

sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2012
   Posted 8/31/2009 10:53 PM (GMT -6)   
You should take what he gave you. If it's severe I actually would expect Prednisone.. that diet wasn't bad for you... except the wine... the healthy amount I believe is one glass a day... not a bottle....
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 8/31/2009 11:18 PM (GMT -6)   
You should use the medication your doctor prescribed. It's pretty unlikely you'll get better without them, although there are people on here who have manged to do it; but they are the exception. If I were you, I would also ask your doctor for a prescription for a mesalamine enema, as they do a lot of good at healling the portion of the colon they reach.

Please, please, please don't drink a bottle of wine every day! That's a lot worse for your kidneys than the medication will be.

And there is a good chance you will gain remission. I was also diagnosed with pancolitis, and was having 15-20 urgent episodes of diarrhea a day, and am enjoying remission right now! But, I took the medication I was precribed and continue to take it. UC cannot be cured (unless you have a colectomy) so it's important to always stay on medication.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Currently meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, and Zoloft (currently tapering; 12.5 mg).


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/1/2009 11:45 AM (GMT -6)   
Your diet (which sounds delicious, although strange and I wouldn't do well on it) didn't cause the UC.

My instincts tell me you have something else, not UC, but take the medicine and see what happens. It's not a harsh medicine you've been given and might help a lot. Why not take it? It's just another (tested) agent to ingest, just like all those supplements. The supplements only ever helped me for a little while, not worth the cost.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5975
   Posted 9/1/2009 12:08 PM (GMT -6)   
     My GI said that UC isn't diet related but I do think if you are predisposed to UC that a bad diet may set it off.  I developed UC while on the Atkins diet and no one can tell me that the diet didn't contribute to my disease.  No carbs just too much red meat.  The flare I am now in started right after Memorial Day and the week before we were on vacation and eating out a lot...you know what I was eating...got it...too much red meat.  When will I ever learn?
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Slowly coming out of flare.  Meds: Colazal (6 per day), prednisone 10 mgm and tapering weekly, Cort enema nightly, Canasa in morning, Benicar 20 mg for BP, flaxseed oil 3 x a day, fishoil 2 x a day, probiotic 3 x a day, calcium with D 1x a day and multivitamin.
Doctor had me on 100 mgm of 6MP which drastically lowered my white count.  Now off the 6MP pending results of repeat white count. UGH.


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 9/1/2009 1:51 PM (GMT -6)   
You really drank a full bottle of wine every day?
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


sheenray
New Member


Date Joined Aug 2009
Total Posts : 6
   Posted 9/2/2009 11:14 PM (GMT -6)   
I was not feeling well with my stomach for some time ...I read internet ....and realized I need to have acid to stop acidity( I though I need more acid) so I started drinking wine bottle a day ...its not for enjoyment but to cure my stomach problems ..then I thought I should have lots of vitamin C so I made a drink 1 orange , straw berries and raw tomotos flaxseed and walnuts .....I was destroyed after 1 month with this food

THANK YOU FOR YOUR HELP AND SO MUCH TIME FOR ME ..I COULD NOT RESPOND BECAUSE I AM IN A VERY BAD FLARE 15 SMALL BLOOD AND MUCOUS A DAY WITH SEVERE BACK PAIN AND BURINING STOMACH..

I AM 40 NOW ... i want to live 10 years .. if they want to cut my colon .. i will sucide ......I need 10 years because I want take care of my mom ..once she is gone ... I dont care what happens to me.
I was heavy smoker 5 years ago 3 pack a day for 12 years .. i quit 5 years ago and started having stomach troubles ... today i bough nicotine patches applied one ..I want to have my hair on head ..asacol , azulfadine (they say make you bald) these medicine also affect liver gallbladder , kidneys , I am afraid of any kind of surgery.. I am such a coward ... I prefer quick death.

I starte using vsl3 .. suffering from skin allergy with it....I tried boswelia .. it burns .. drinking turmeric ... thinking of smoking again..

Can anyone please tell me could it be the food i ate before my colonoscopy and no medicines it came sever chronic pancolitic colitis ... If i use medicines and controle it will it become moderate or mild
I can not digest food at all .. I get green discharge some time .. Can some body suggest me good probiotic and digestive enzymes

Once again thank you all ...God bless you all and keep all of you happy.........

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/2/2009 11:51 PM (GMT -6)   
sheenray,

I think it's odd that your doc said you're at risk for perforations and fistulas, both of those are more common in crohn's than in UC, mind you I guess with your entire colon being inflamed your chances of perforation are a little higher then a typical UCer.

Don't blame yourself for getting UC, the foods/drinks mentioned above that you say you ate are still healthy (though I think with the wine the health benefit is out of a glass not a bottle a day LOL), still, even though researchers have not proven one way or the other if food/diet could be a trigger for IBD, I'm pretty sure researchers look at a poor/unhealthy diet (fast foods, processed foods/beverages, animal fat, caffeine) and such as being more likely a culprit for triggering IBD not healthy nuts, fruits and veggies.

Also remember, there are tons of people that eat/drink nothing but junk most of their lives and don't get an IBD, genetics does play a role, so don't beat yourself up.

At your local health food store choose a probiotic that has at least 10 billion CFU that they keep in their fridge, pretty much any digestive enzyme supplement should be good (talk to the store clerk, explaining your disease)...pineapple, kiwi, papaya and mango are all natural digestive enzymes if you can tolerate eating any of those (even 1/2 cup of any of them after each meal)...

Many have success with fibre supplements as well, try caps/pills they tend to have little to no added sugars/junky stuff in them, start with one cap/day increasing only if necessary and only after your system has adjusted to it (adjusting period can cause increased gas/bloating) and drink plenty of water...I'd lay off the wine for a while and if you do drink it, drink it in moderation.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2153
   Posted 9/3/2009 9:59 AM (GMT -6)   
You mentioned that you started that odd diet because you were having stomach issues... so that tells me that you were probably experiencing the onset of UC symptoms even before you started that diet. So no, the diet might not have helped anything, and I believe the wine would have definitely made it worse, but it did not cause it.
ack, 43, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


wrxBRAH
Regular Member


Date Joined Mar 2008
Total Posts : 312
   Posted 9/3/2009 1:41 PM (GMT -6)   
First take the medicine your doctor prescribed you. Stop self medicating in the middle of a severe flare. Once youre healthy enough, you can try alternative meds but Im surprised the doctor didnt put you on prednisone too. If you dont get better, a hospital trip will be incoming if you keep neglecting meds.

No one knows 100% why people get UC. There are studies that link it to genetics, smoking, antibiotics and even accutane. Food is linked more to IBD than anything else. If you have digestive issues, talk to your doc and have him give you some meds for that until your UC is manageable. I use fish oil caps and flaxeed oil caps for my digestive health but I only started using them after my UC was in check.

Good luck and sorry to hear you go through this ordeal.
Male 29yrs old Bay Area, California

Currently taking:
Prednisone - 30 25mg
Asacol - 4800mg
Imuran - 100mg

Post Edited (Doz79) : 9/3/2009 1:20:33 PM (GMT-6)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 9/3/2009 8:40 PM (GMT -6)   
When I was bedridden with my second flare, all I was eating/drinking was V-8 juice. I went to the emergency room, and the nurse who had worked for many years in a colonoscopy department (or something like that, I don't remember her exact words) told me that I was drinking the worst thing possible. Later, I read that tomatoes are pro-inflammatory. No wonder I was in such bad condition.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 9/3/2009 9:05 PM (GMT -6)   
If you ever want to add more acid drink you some Raw ACV with honey. Its a little easier on you than the other, lol. Tablespoon of both in coffee mug warmed up works well.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 9/4/2009 9:14 AM (GMT -6)   
Take the medicine the doctor gave you! The side effects are VERY rare, I have never expereicend any hair loss and have never heard of anyone going bald from the medications. You do not want to have surgery but at this rate you are setting yourself up to be sent to the hospital which will involve much more extreme treatments than the medication your doctor gave you.
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day
Cort-enema nightly
Canasa in the morning
Probiotics Daily
 

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