Survival Foods

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sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/31/2009 10:07 PM (GMT -6)   
Just curious what everyone survives on in bad flares, or during their first bad one when they didn't know what was going on. All I could stand up long enough to make was ramen noodles and even then I had to have a potty break and once almost passed out (didn't get my noodles that day). Ramen is always there when you need it most, it seems lol. They are nice and plain, got your liquid and poo-slowing starch (and plenty of salt to help you retain the liquid lol).
 
Bonus, slightly funny story: I was going poo (or trying to) and reading a book with a picture of sand on the cover, which was ripping. A piece fell off so I threw it in the toilet. A few minutes later I got up and turned to do a poo check. The piece of cover had landed picture-side up. I saw it and was like, "What did I do!" and kind of freaked out, then I realized it was just a piece of the book lol.
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


quincy
Elite Member


Date Joined May 2003
Total Posts : 30586
   Posted 8/31/2009 10:21 PM (GMT -6)   
LOL....picture perfect poo!

I don't have any comfort foods that replace my normal eating.

I don't drink as much coffee or have as much salad or veggies or raw fruits.
 
I actually eat often, however, even if I'm flaring.  When I'm nauseated, I tend to eat more toast as a snack.

One thing I don't do is eat yogurt....

quincy


*Heather* Status: ...Asacol 3 twice daily; Salofalk enemas every 3rd night
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 

Post Edited (quincy) : 8/31/2009 10:25:17 PM (GMT-6)


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 8/31/2009 10:32 PM (GMT -6)   
lol oh no... XD
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 8/31/2009 10:44 PM (GMT -6)   
White rice with turmeric added to it (and a little butter for taste).
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 8/31/2009 11:16 PM (GMT -6)   
I know a lot of people are bothered by dairy and/or gluten, but macaroni and cheese was my go-to food. The pasta and cheese tend to be constipating foods, plus it's always been a comfort food.
Judy
 Ulcerative colitis forum co-moderator
 
Moderate to severe left-sided UC diagnosed 2001. Flared for 5 years, finally in remission with Remicade since March 2006. Colazal,  Remicade, Nature's Way Primadophilus Reuteri.
Avascular necrosis in both shoulders is  my "forever" gift from steroids.
Chronic joint/connective tissue/muscle pain; TKR 05/09 
"My life is an ongoing medical adventure"
 


mindstyle
Regular Member


Date Joined Aug 2009
Total Posts : 62
   Posted 9/1/2009 2:36 AM (GMT -6)   
Yogurt but I avoid eating as much possible. I know its not right to do so but during those periods, I am out of my mind.
Male, Diagnosed with Ulcerative Colitis since 2006, at the age of 30 years

Currently taking
100mg of Azathioprine, twice a day
2250mg of Balsalazide Hydrochloride, 3X a day
1mg of Vit. B12, once a day
500mg Salazopyrine suppository once a day.

30mg/day of Prednisolone since 2009/08/21 to control recent flare up, will reduce the dose by 5mg each week. (hoping not to swell up)

250mg Neproxen as and when required for migraine (usually twice a week and I don't know if this is side-effect of Salazopyrine)


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/1/2009 5:54 AM (GMT -6)   
Peanut butter toast :) I eat this in the mornings every day because that is the only thing my stomach can handle early in the morning. I have issues with my stomach as well as my LI so this is my comfort food. Even while flaring I will eat this because it's easy on me.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**IBS~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 274
   Posted 9/1/2009 6:22 AM (GMT -6)   
eggs for me. I keep boiled eggs in the fridge and eat them as a snack. It's hard to eat irritating foods so I know that I can get a quick shot of protein and calories and they dont bother me a bit.
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08 - pancolitis
 -----------------------------------
Pentasa 500mg 2pills-4x daily
Prednisone 50mg Calicium + Vit D
Multivitamin, vitamin C, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


GLOVE
Regular Member


Date Joined Jul 2009
Total Posts : 321
   Posted 9/1/2009 8:05 AM (GMT -6)   
For some reason when I am in a flare I like mashed potatoes ....either homemade or the frozen kind. I also eat bananas and applesauce. Those are the ony foods I tolerate when I'm in a major flare.
UC since 2002- had remission for 6 years
recent flare 06/09- severe flare
Currently trying lialda, multivitamin, probiotics, fish oil, iron supplement
 tapered off prednisone 8/21/09
 


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 2105
   Posted 9/1/2009 8:45 AM (GMT -6)   
Before I was diagnosed I had no idea what was wrong with me, no clue about what I should or should not eat. I just gradually, through trial and error, stopped eating things that bothered me (all good healthy food!) and ended up with a diet of mostly: peanut butter toast, grilled cheese sandwiches, macaroni & cheese, scrambled eggs, cream soups from a can, waffles & syrup... and potato chips. Lots of potato chips! If I eat a bunch of chips normally, it makes my stomach rebel. But during my flare, for some reason, they were one of the few things I could tolerate and CRAVED like no tomorrow.
ack, 43, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/1/2009 9:18 AM (GMT -6)   

I want to second the peanut butter toast - every morning!  Nausea goes away when I eat it too.  Also, love mashed potatoes and cheese!

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 9/1/2009 1:27 PM (GMT -6)   
Pushingforward, I could not eat eggs during my last bad flare. I kept getting egg/sulfur burps (I never ate eggs) and it really turned me off them lol.

Also, mashed potatoes are great during flares lol. Well, they're always good. Also, I couldn't eat healthy things either lol.

Oh, bonus yummy potatoes (not mashed lol): Dice up some potatoes (skin on). Get some of that onion soup mix, use a couple packets with about half a cup of oil per pack, toss the potatoes in it and bake them at about 350 for 20-30 minutes I believe. Dip in sour cream. *DROOL* Oh god now I want some...
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 9/1/2009 1:46 PM (GMT -6)   
hey Elephant, if you're at all sensitive to MSG (like a lot of us are), make sure you read labels on the onion soup mix and the ramen noodles...I'm almost sure both of those have MSG. I can't imagine what would have happened if I'd gotten a big ole dose of MSG when I was flaring!!!! It's WWIII in my toilet when I accidentally get ahold of some on a normal basis!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Current meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, OrthoNovum, multivitamin.


NiRo
Regular Member


Date Joined Aug 2009
Total Posts : 198
   Posted 9/1/2009 1:51 PM (GMT -6)   
Haha, I think I survived on Raman Noodles while in college....too bad I didn't care about my health back then!! If I remember correctly, 1 pack of Raman noodles with the flavoring is almost 40% of allowed Sodium per 1 day. If you are trying a low sodium diet or it doesn't favor your stomach, watch out!!!
Lialda 4x a day (2x in the morning, 2x at night)
Rowasa Enema 1x at night
Align (Probiotic) 1x a day
Fish Oil 4x a day
Multi-Vitamins (includes B-12, Vitamin D, Vitamin C) 1x a day
Diagnosed with Pancolitis (Moderate in 4/5th of the colon, Mild in 1/5th) in July 2009


nola66
New Member


Date Joined Aug 2009
Total Posts : 8
   Posted 9/1/2009 2:00 PM (GMT -6)   
Apple sause mixed with carob powder. Not the best taste but seems to sooth my system down a bit. White rice with velveeta or grits with jelly. Depending what mood I'm in ;cheesy and creamy or sweet. Lastly, cookies & cream whey protein mix. Tastes just like a milk shake! :)

Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 9/1/2009 2:29 PM (GMT -6)   
ElephantPipe, ramen noodle definitely is comfort food if you're looking for a quick filling meal. When I was in college, I used to spice it up with soy sauce, tabasco, sweet sauce, ground pepper, and then throw in some cashew nuts to make a meal of it. However, I haven't had it in ages because it will probably fire up the UC beast.

And if you want to get MSG-free ramen noodle....some supermarkets sell kosher ramen noodle that doesn't have MSG in it.
Rio, 33 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 4800 mg Asacol
VSL#3, Metamucil
Vitamin E enema or Canasa/Mesacol suppository occasionally


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 9/1/2009 2:34 PM (GMT -6)   
Elephantpipe, just the thought of skin on potatoes makes me cringe! I don't like the skin and while in a flare, it would just add to the misery. Add in the onion soup mix and double agh! :) What I do with the taters is peel them, cut them up and toss some salt (maybe even some Lawry's) and garlic powder together with them and maybe add a dash or two of olive oil. That is my version of "Ranch Potatoes".
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**IBS~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 9/1/2009 3:34 PM (GMT -6)   
Unfortunately I couldn't handle much when I was in the heart of my flare. I think I ate buttered crackers, brown sugar cinnamon poptarts (never understood that one) and rice.

Oh ramen. This is my 3rd year of college and I too have found the magic of ramen. I only eat it during the school year so I don't ruin it for the next year. I just bought some today too...a whopping 20 cents for one! tongue
Sam(antha)
20 year old college student diagnosed with UC in March 2005
Remission since January/April 2006-->THREE YEARS!!!!!
Meds: 3 750mg Colazal 2x daily, 25mg Amitriptyline, 75mg Effexor XR for GAD, ortho lo
Seasonal allergies, very mild asthma (albuterol when needed), allergic to sulfa
"It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is the most adaptable to change"
Charles Darwin


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2855
   Posted 9/1/2009 5:16 PM (GMT -6)   
Bananas (especially if taking prednisone). Potato chips and shortbread cookies (fat and sugar don't seem to bother me like they do others). Exchange coffee for tea...then you know I'm not feeling well.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; 
Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


sirenshooter
Veteran Member


Date Joined Jun 2009
Total Posts : 2011
   Posted 9/1/2009 6:19 PM (GMT -6)   
Nah, salt and all that doesn't bother me. I don't eat the ramen often now that I'm healthy enough to cook more things lol. Thanks though. I'm happy I can pretty much eat whatever I want.

As for the potatoes, I know we're not all that sensitive =p plus family members might like them XD (and what's life without a little splurging). Keep in mind you wouldn't even be eating a whole packet of the onion stuff on your own. Share, hehe.

callalily, I prefer the apple strudel PopTarts... the brown sugar ones hurt my teeth
19yr old female diagnosed with UC (pancolitis) in 2005 at age 15
125mg Azathioprine 1xday / 1 Mesalamine enema every night /
2000mg Fish Oil 1xday / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 9/1/2009 6:24 PM (GMT -6)   
Peety I'd have to be on my deathbed before I stopped drinking coffee. Thankfully UC hasn't pushed me that far yet!
Sam(antha)
20 year old college student diagnosed with UC in March 2005
Remission since January/April 2006-->THREE YEARS!!!!!
Meds: 3 750mg Colazal 2x daily, 25mg Amitriptyline, 75mg Effexor XR for GAD, ortho lo
Seasonal allergies, very mild asthma (albuterol when needed), allergic to sulfa
"It is not the strongest of the species that survives, nor the most intelligent that survives. It is the one that is the most adaptable to change"
Charles Darwin

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