starting the pred tonight

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bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/1/2009 5:44 PM (GMT -6)   
ugh so im starting the 40mg of pred tonight.it says take with food but how much do i really have to eat before i take it?i cant eat much because im so nauseous.im just nervous about taking this medication lol. i hope it works tho!
 
im taking 2tabs 3 times a day for 5 days  & then 2tabs twice a day.
 
do you think i can drink like ensure & be okay or just some crackers or something?
how does everyone else take it?
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/1/2009 5:47 PM (GMT -6)   
Also,does anyone get bad headaches w UC?
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


ucisnotforme
Regular Member


Date Joined Aug 2009
Total Posts : 37
   Posted 9/1/2009 5:52 PM (GMT -6)   
ugh pred. hate pred. i suggest you take it as far from bedtime as you can, this will decrease the insomnia/crazy dreams a bit.

i get headaches when i'm flaring, so you aren't alone there!

ucisnotforme
Regular Member


Date Joined Aug 2009
Total Posts : 37
   Posted 9/1/2009 5:54 PM (GMT -6)   
personally, i never had any real problem with nausea, either with uc in general, or with pred so i'm not a good resource.

i think you should just eat what you can when you take the pred and don't worry about it too much, you won't have significant issues if you can't eat a whole meal with it...

potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 9/1/2009 6:11 PM (GMT -6)   
I'm starting a pred course tonight, too, bella.  This is the second one I've done.  The last was about 18 months ago.
 
I'd recommend taking it earlier in the day, too.  I started so late today because I was at the doctor and couldn't take it earlier.  But tomorrow I'm taking the pills with breakfast and lunch (what I can eat of it)
 
Hopefully you will feel so much better you won't notice negative side effects.  That's what happened to me last time and I'm hoping for that again.
 
Good luck. 
 
 
Potato...  Female, 58, dx 11/07 mild left sided ulcerative colitis (50 cm)
asacol 3 3x a day, cortenema (generic) every third night rowasa
culturelle, benefiber wafers metamucil wafers, activia yogurt, spinach & sunflower diet, primadophilus reuteri, Centrum, Vitamin E 400 mg
omeprazole 2xday, oxazepam when needed, lomotil or ImodiumAD when needed
Yoga, meditation, The Work by Byron Katie, exercise at least 5 days a week
 


bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/1/2009 6:41 PM (GMT -6)   
oh no :( i already took it.i gaged like 2 times a few mins ago.but i didnt throw up.i think it might be in my head. idk :'( i just want to cry.

good luck to you too potato.glad someone is in this with me

i feel so alone sometiimes
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/1/2009 6:59 PM (GMT -6)   

I got really bad nausea and flu-like symptoms - sweating and chills, etc. from all mesalamine medications so I can't take them.  Prednisone does nothing but make me feel wonderful.  Wish it did not do so much to our bodies in the future, etc, I would keep taking it.  I always took all of mine early morning to avoid insomnia - just had a little but I am 69 and have that anyway!! I had little moonface and fluid retention which can be best avoided by drinking a LOT and low salt!

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


ucisnotforme
Regular Member


Date Joined Aug 2009
Total Posts : 37
   Posted 9/1/2009 7:57 PM (GMT -6)   
believe me when i say you are not alone! i have been on pred several times. the last time the side effects were much better, i think because i tried to take it earlier in the day. don't worry about taking it late once, you can adjust the time later. try not to worry too much, hopefully it will work fast for you!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/1/2009 11:22 PM (GMT -6)   
bella,

Did your GI tell you to split your pred doses? Taing them all at once and first thing in the early am is usually best, this avoids any insomnia and racing mind at night issues...I've never understood the reasoning as to why docs suggest breaking the dose up especially for IBDers, it's more effective taking it all at once and it definitely stays in your system doing so, so if the reason your GI suggested you breaking your doses up is for that reason then it's not a good one since most who have experiance with pred (side effects) know that it lasts in your system without having to split.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/2/2009 4:33 PM (GMT -6)   
I have to take the pred 2tabs 3 times a day. so i take them after breakfast,lunch,and dinner.How long does it take for this stuff to kick in?
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 9/2/2009 5:05 PM (GMT -6)   
pb4 really disagreed with my doc over this, but I also was told to split my dose. When I was on 40mg, I took 10mg at breakfast, lunch, dinner, and bed. At 30mg, I took 10mg at breakfast, lunch, and dinner. At 20mg I took 10mg at breakfast and lunch. Once I dropped to 15mg and 10mg, I took it all at breakfast.

I didn't have any problems by doing this, but like I said, some people thought it was dumb.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Current meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, OrthoNovum, multivitamin.


ucisnotforme
Regular Member


Date Joined Aug 2009
Total Posts : 37
   Posted 9/2/2009 5:13 PM (GMT -6)   
last time i was on a pred regimen i took my whole dose at breakfast every day. i was only at 20 mg and then tapered down from there. i would probably be chicken to take more all at once, but i'm not sure why. just cautious, i guess.

for me, taking it all in the morning really reduced the side effects, and as pb4 mentioned, was also more effective (worked faster). not sure if the medical establishment will condone this dosing regemin, but there it is. maybe there is a reason they advise breaking up the doses, i'm not sure.

pan colitis diagnosed in 2003

6 mp 50 mg/day
asacol 4800 mg/day
metamucil nightly
lots of live culture yogurt


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 9/2/2009 7:56 PM (GMT -6)   
I think for asthma it might be more common to break up the daily dose (I don't know why this is but it's the way my friend was instructed for her daughters asthma), but when I spoke to my GI about why some docs tells their patients to split their pred doses and he said the only reason a doc would direct their patient to do so is because some patients have stomach sensitivity from pred and taking it all in the am with food or milk isn't enough to combat the gut sensitivity that some patients get from it (based on high doses of it, like 40mg), but it won't lessen the possible side effects that many get from taking pred, it only aids with the sensitive gut issue...and it may increase sleep issues if the whole dose isn't taken early in the morning.


Prednisone and prednisolone are considered to be intermediate acting steroids, meaning that a dose lasts about a day or a day and a half.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 9/2/2009 9:29 PM (GMT -6)   
Day 2 for me. 
And feeling LOTS better.
 
Since I'm feeling so much relief from the UC symptoms, I haven't noticed any side effects other than a few warm periods which are a great improvement over the chills I've been having. 
 
I'm on 40 mg. and splitting them 20 at breakfast and 20 at lunch.  I'll check with the NP on Friday to make sure that's ok... I'm sure I did it that way last time.  I do have one other side effect... they give me indigestion and 4 at once, I think I might be over the top.
 
I'm also switching to colazal (those are some big a** pills!) which probably aren't helping the digestion much but oh man I'm feeling better than yesterday!
 
Crossing my fingers for you, too, bella!  I'm ready for remission and toilet liberation!
 
potato
Potato...  Female, 58, dx 11/07 mild left sided ulcerative colitis (50 cm)
asacol 3 3x a day, cortenema (generic) every third night rowasa
culturelle, benefiber wafers metamucil wafers, activia yogurt, spinach & sunflower diet, primadophilus reuteri, Centrum, Vitamin E 400 mg
omeprazole 2xday, oxazepam when needed, lomotil or ImodiumAD when needed
Yoga, meditation, The Work by Byron Katie, exercise at least 5 days a week
 


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 9/2/2009 10:56 PM (GMT -6)   
Hello

I am currently taking Pred.. Started out at 50 and have tapered down 5mg a week and now I'm at 15mg... I take Nexium, the pred did give me pretty bad indegestion and heartburn.. which I have never had like this before. So I'd talk to your GI about getting on something like Nexium or Prilosec.. at least while you are on the pred. Also, when I was at the higher dose of 50mg.. I took 30 in the am and 20 in the afternoon.. Once I got down to 40, I took them all at once and did find that way. I do miss the energy I had when on the higher dose, but the weight gain for me has been a BUMMER.. Good luck and I hope you all feel better soon!!! It's a great drug for making us feel better, but it does come with a price unfortunately...
Diagnosed with U/C  (Proctitis) January 31st, 2005, IBS on July 21st, 2006 
 
  Status as of July 2009 :  OMG... I had a poopie today 7-23-09 (had to date that)..lol.. with NO BLOOD!!! First time in almost 10 months!!!!!!!
 
Meds are: Prednisone Taper, down to 25mg now for a week as of 8/20/09..., Apriso 4 pills 1x a day.. .YEA! I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn due to Prednisone..   Culturelle 2 times a day...                                           
 
http://www.myspace.com/77016897         


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 9/3/2009 8:42 AM (GMT -6)   

Sure wish we could KEEP the good affects  from Prednisone when we have to taper off it.  I have been off about 3 weeks and ache all over - joints are bad and can hardly walk (have bad knees many years).  I also loved the energy, etc.  Miss it.  My skin has returned to awful rough, etc.  BUT, I don't miss the moonface or the weight gain - just wish some would come off now!!

ElaineNY


 
Senior - diagnosed with proctosigmoiditis - 6/2008   
No prescriptions as of yesterday!  Hoping for best and possibly adding other supplements.
 
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


MC1957
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/3/2009 9:09 AM (GMT -6)   

Hi, my son was diagnosed with UC a little over 5 years ago.  I can really sympathize with the agony that you go thru.  He has taken pred at least 3 times in these 5 years..the first 2 with no issues other than the weight gain and the face getting puffy.  This last episode which started in June doc put him on 60 mgs. of pred..(last 2 he started him on 60 as well) This time around he experienced at least 5 side effects...he's still trying to get back to feeling normal and still has the proof of the side effects (rash, purple marks).  I refuse to put him back on this going forward.   We gave it to him 3 times a day, then after a couple of weeks on 60, we tapered off by 5mgs every week...it's a great drug if you don't have any side effects. 

I wish you well.


bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/3/2009 10:05 AM (GMT -6)   
the pred is helping me a little bit.i have noticed a change in the amount of times i go to the bathroom a day.its reducing slowly.but im still bleeding! :(
 
i have been getting heartburn & have very bad night sweats! i drip in sweat
 
Also,i have UNBEARABLE headaches! i think it may be from straining when i have a bowl movement.it's ONLY on the right side of my head & it seems to be comming from the front of my neck,next to my throat.it comes and goes,but i get it every day. does anyone else get this? it hurts so bad (esp when i stand up).it makes me cry.
 
thank you all for the support.and i hope everyone else gets through this.
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


AmyWaffle
Regular Member


Date Joined Jun 2009
Total Posts : 173
   Posted 9/3/2009 10:08 AM (GMT -6)   
pb4 said...
bella,

Did your GI tell you to split your pred doses? Taing them all at once and first thing in the early am is usually best, this avoids any insomnia and racing mind at night issues...I've never understood the reasoning as to why docs suggest breaking the dose up especially for IBDers, it's more effective taking it all at once and it definitely stays in your system doing so, so if the reason your GI suggested you breaking your doses up is for that reason then it's not a good one since most who have experiance with pred (side effects) know that it lasts in your system without having to split.

:)


I disagree on this, the split works much better for me at doses above 40 mg. If you are just taking one dose per day though, it should be at 7 am. (as far from bedtime as possible!)
UC since 1996 (age 20)
Mommy of 2 sweet little girls.

Asacol (12/day)
Azathioprine (175 mg)
Prednisone (60 mg)
Rowasa nightly
Immodium daily
First Remicade 6/22/09 [discontinued 8/12/09, not helping]


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 9/3/2009 10:12 AM (GMT -6)   
I wish I could remember exactly what my doc said about why he had me split my dose. It had something to do with the body's natural circadian rhythm and all, but I just can't remember. If I remember to ask him during my next appointment (which isn't until January if I stay in remission), I'm going to, because I'm curious!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Current meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, OrthoNovum, multivitamin.


MC1957
New Member


Date Joined Sep 2009
Total Posts : 2
   Posted 9/3/2009 10:43 AM (GMT -6)   
Bella, my son experienced pressure on the top of his head, this came after the profuse sweating...once we tapered off, these symptons were gone completely...around 50 mgs...the sweating started, then the pressure...these were definitely caused by the prednisone...because at 40 these symptons cleared up. The fatigue I understand and is bearable...but the headaches are brutal. I understand, having suffered from migraines...for many years.  You don't need more on your plate...but have you thought of acupuncture? I'm a believer as this was the only thing that cured my migraines...I went diligently for about 6 months...and haven't had a migraine in years...have my son with uc going...doctor says it does help keep the symptons at bay. although it will take a while as with any thing natural or homeopathic...if nothing else may be it can get rid of your headaches or lessen the severity..worth a try..it's natural so no meds going into your system..if nothing else, you get an hour of peace..my son actually looks forward to going. 
 
 
 
 

wrxBRAH
Regular Member


Date Joined Mar 2008
Total Posts : 312
   Posted 9/3/2009 11:29 AM (GMT -6)   
I could never figure out what gave me migraines but they started happening not long after I was put on prednisone and sulfasalazine. They started occuring more as I was tapering off prednisone and I could almost time them to 2 months apart. 1 week of killer migraines followed by 7 weeks of nothing.

They havent occured in a while though so maybe it was the sulfasalazine (knock on wood) and lets hope it stays that way. The only cure I found was popping moltrins. No other meds seem to work on my migraines.

The way I feel about Pred is it works but I feel a lot of people half ass attempt to take it. They try to taper too early before theyre in remission and as they taper, the symptoms come back and then they have to go on higher doses of pred. So just be patient with it and give it a few months and taper properly so you can go into remission with aid of other drugs.
Male 29yrs old Bay Area, California

Currently taking:
Prednisone - 30 25mg
Asacol - 4800mg
Imuran - 100mg


bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/3/2009 11:33 AM (GMT -6)   
MC1957,

acually i started acupuncture last week!! its funny you brought that up.i went twice last week for UC.it made me relaxed and i acually felt better when i left the office.my bowl movements slowed down as well.but only for a short while of course.since i only went twice.the acupunturist assured me he cant Heal me (because that will take years) but he said he can make me symptom free & feeling better.i have an appointment saturday.He also gave me a book to read "a life without bread" which is quite interesting.its basically that diet that every one talks about on here,about cutting out all wheat & carbs.so i've started that.

is anyone having hair loss? i feel like everytime i brush my hair,dry it or staighten it,my hair falls out WAY more than normally,this is SO scarry to me.my hair is what makes me,me.lol is there anything you can do for this ?? :/ vitamins? anything?? i dont want to go bald!
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 7150
   Posted 9/3/2009 11:39 AM (GMT -6)   
I lost a lot of hair around the time I was diagnosed. But, I think it was mostly because I was losing my pregnancy hair (it got SO thick when I was pregnant) and because I'd been so sick. Now that I'm in remission, the hair loss has stopped. Hair loss is listed as a side effect of asacol and other mesalamines, but I think that's mostly because people are sick enough to be having hair loss when they start taking it.

As for waht to do to help, I think people have used nioxin shampoo with success.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Diagnosed with pancolitis on 1/30/09
Current meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, OrthoNovum, multivitamin.


bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/3/2009 11:47 AM (GMT -6)   
thanks fruitgirl.do you know where i can buy this shampoo? does anyone sell it?
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!

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