How long will I be FAT..... Thank you Prednisone!!!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 9/3/2009 12:11 AM (GMT -6)   
Hey all.... I'm feeling depressed tonight.. I'm tapering off the pred (I know... probably why I'm feeling depressed) and I am really bummed about how FAT it has made me get... I know you can try not to eat, but it's just not that easy when you are on this drug to not put food in your mouth.. it's like you HAVE too or something... Anyhow, I've gained about 25 lbs and my face is so fat and swollen looking.. Also I have a hunchback... and a BELLY...  MAN... the pred made me FEEL so good when I was at 50mg. But I've been tapering by 5mg a week and  I'm going down to 15 tomorrow.  I no longer have the energy blast I had and I'm feeing sad about how I look, even though I know I shouldn't....  I have always been thin and felt somewhat attractive, but now I just feel like a cow... lol... and an ugly cow to boot... lol..
  Just can't help it... It's all part of the process I guess.... but it still sucks...
Diagnosed with U/C  (Proctitis) January 31st, 2005, IBS on July 21st, 2006 
  Status as of July 2009 :  OMG... I had a poopie today 7-23-09 (had to date that) with NO BLOOD!!! First time in almost 10 months!!!!!!!
Meds are: Prednisone Taper, down to 25mg now for a week as of 8/20/09..., Apriso 4 pills 1x a day.. .YEA! I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn due to Prednisone..   Culturelle 2 times a day...                                             

Regular Member

Date Joined Aug 2009
Total Posts : 62
   Posted 9/3/2009 1:49 AM (GMT -6)   
First of all, you are NOT fat. You look like it that doesn't make you fat. The side-effect of pred is water retention and what you call fat is nothing but water. (From my personal experience) It takes about 6 months once you are off Pred to shed all that water. I am in same shoe as yours, started Pred 2 weeks ago (current dose 20mg) and my belly is looking like Homer Simpson's belly. First time, my feelings were exactly like yours but this time, I am fine as I know, I am gonna shed it very soon.
Don't know your age but go exercising or may be jogging, will feel bit better.
Male, Diagnosed with Ulcerative Colitis since 2006, at the age of 30 years

Currently taking
100mg of Azathioprine, twice a day
2250mg of Balsalazide Hydrochloride, 3X a day
1mg of Vit. B12, once a day
500mg Salazopyrine suppository once a day.

30mg/day of Prednisolone since 2009/08/21 to control recent flare up, will reduce the dose by 5mg each week. (hoping not to swell up)

250mg Neproxen as and when required for migraine (usually twice a week and I don't know if this is side-effect of Salazopyrine)

Regular Member

Date Joined May 2009
Total Posts : 227
   Posted 9/3/2009 4:45 AM (GMT -6)   
hi susiebuddy,
i feel ya - i'm in the exact same boat.  i have gained a ton of weight and also used to be a size 4.  nothing fits me.  my moon face is huge, and my stomach is huge (looks preggers), and i am swollen everywhere. it makes me extremely sad too.  i can totally relate.  this disease bites!!!  i hope you are back to your original self soon!
UC since 1994
4 Lialda/day, 15 mg prednisone and tapering (down from 40 mg), rowasa, folic acid, VSL#3, flax oil, vegetarian diet

Veteran Member

Date Joined Jan 2009
Total Posts : 832
   Posted 9/3/2009 5:47 AM (GMT -6)   
I was 115 lbs now I am 155 lbs
I am getting thinner every day but it takes TIME!!!!

I am also so afraid to working on getting my old self back but then I would have to go back on pred.

This is me before and after 4 weeks on pred I got much worse.
24 year old female
Diagnosed with :
Endometriosis march 2007
Anxiety disorder august 2007
Crohn's disease in December 2008 Then they changed it to UC in June 2009.
and Autoimmune Hepeatitis in July 2009

Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ ~

Veteran Member

Date Joined May 2008
Total Posts : 574
   Posted 9/3/2009 8:54 AM (GMT -6)   
Hi i feel your pain i am back on pred after stopping it just 3 months ago so i know how you are i have not lost the last lot of weight yet and know im just going to put a ton back on again although on a lower starting dose of 30mg last time it was 50mg as also started 6mp but am doing a slower tapper 5mg every 2 weeks only started them today so will be waiting for pred munchies to kick in i wish you all the luck as mmy will power is not good and the food is lol.
  Diagnosed 22.5.08 with Lft sided U/C
 Asacol 800mg x2 twice daily
 co codamol 30/500x2 when needed
 buscopan 20mg when needed
 asacol foam 1gm when needed

Veteran Member

Date Joined Jul 2008
Total Posts : 823
   Posted 9/3/2009 9:04 AM (GMT -6)   
I gained about 10 pounds when I was on pred for 3 months.  Most of it turned out to be water retention.  I just DID NOT let myself eat too much.  It took major will power but it helped.  I also worked out and drank a TON of water.  The weight came off for me after being off the pred for about 6 weeks.  Hang in there, it is possible to get the weight back off!
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day
Cort-enema nightly
Canasa in the morning
Probiotics Daily

Regular Member

Date Joined Jun 2009
Total Posts : 173
   Posted 9/3/2009 11:12 AM (GMT -6)   
LOL! I am feeling the same way! But I am so thankful to be out of the bathroom, that I don't care if I do look like a big moonface bobble-head doll!
Hang in there Susiebuddy! :)
UC since 1996 (age 20)
Mommy of 2 sweet little girls.

Asacol (12/day)
Azathioprine (175 mg)
Prednisone (60 mg)
Rowasa nightly
Immodium daily
First Remicade 6/22/09 [discontinued 8/12/09, not helping]

New Member

Date Joined Aug 2009
Total Posts : 19
   Posted 9/3/2009 11:28 AM (GMT -6)   

oh my gosh. my weight right now is exacly how you looked before you started the pred. im just started the pred two days ago. im so scared to get this moon face :((((( i hope im lucky and don't get it! :(
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
I'll try anything to get better!!

Regular Member

Date Joined Mar 2008
Total Posts : 312
   Posted 9/3/2009 11:44 AM (GMT -6)   
Get yourself motivated enough to start working out regularly is all I can say. Im in the same boat as you but I had a bad GI before who put me on pred for 5 years straight (took anywhere from 80mg a day to 5mg a day). Im tapering off and trying new meds now but the fat feels like it never wants to come off especially around the face and lowergut.

I got depressed after being on pred so long with the moonface/mood swings/anxiety that finally I told myself Im going to stop feeling sorry for myself and start working out/ try to get off prednisone. I started eating healthy and start exercising daily. After 5 months Im still not where I want to be weight/look wise but its a work in progress and my mental state is 100x better then when I wasnt doing anything to counter the Prednisone.
Male 29yrs old Bay Area, California

Currently taking:
Prednisone - 30 25mg
Asacol - 4800mg
Imuran - 100mg

Regular Member

Date Joined Jul 2005
Total Posts : 88
   Posted 9/3/2009 4:50 PM (GMT -6)   

I really know what you mean.  I was on pred for 2 (yep 2) years before I could get off completely.  I went from 120 to 172 lbs.  But once I was off the pounds went away as well.  I now weight 138.  I also had the moon face and it was horrible, not only how I looked, but it really hurt to smile because my cheeks hurt.  Yep, I got the hunchback too!  I felt like a monster and was depressed as well when I started coming off of it. 

Hang in there!  It is a wicked drug but one that probably saved my life.  I know it is easy to say when you feel this way, just wanted to let you know you are not alone.

UC since 1995 - Entire colon
Currently on Canasa, 6MP, & Colazal, Levsin

Veteran Member

Date Joined Feb 2005
Total Posts : 1373
   Posted 9/4/2009 4:31 PM (GMT -6)   
Thank you everyone... It is nice to know that I'm not alone dealing with this... I swear.. I can't wait till I'm off this stuff and can get back to a somewhat normal life.

I am 46 and 5'7.. I normally weigh 155, but now I'm up to ALMOST 190... EEK!!!! I think the worst part is my face... My cheeks are so inflated that I can actually feel that they are in the way when I talk. My neck is also fat.. I have 2 chins now... lol... I know I will get over it when I am off this stuff.... BUT.. I am in remission so far! No bleeding and normal poopies.. I hope the Apriso keeps me there once I'm off the pred fore good.

Thanks again everyone... I really REALLY do appreciate that I have company during this hard time!!!
Diagnosed with U/C  (Proctitis) January 31st, 2005, IBS on July 21st, 2006 
  Status as of July 2009 :  OMG... I had a poopie today 7-23-09 (had to date that) with NO BLOOD!!! First time in almost 10 months!!!!!!!
Meds are: Prednisone Taper, down to 15mg now for a week as of 9/03/09..., Apriso 4 pills 1x a day.. .YEA! I take Xanax when needed and Ambien for sleep... Nexium in the am for heartburn due to Prednisone..   Culturelle 2 times a day...                                             

Veteran Member

Date Joined Apr 2009
Total Posts : 654
   Posted 9/4/2009 6:51 PM (GMT -6)   
I can relate too.  I've been on pred for about two and ahalf months now and I've gained 25 pounds.  I hate it.  I don't need to gain anymore weight.  Still trying to lose the baby weight from my three kids.(ha ha).  I'm slowly tapering down from the pred (very slowly 1 mg a week until I'm done, I started at 20mg.)  I have moon face this time.  The first time I was on pred I didn't get moon face but I was only on it for about a month.  I get crazy too.  I'm so moody.  I go off about the stupidest stuff.  I will say though.  I like pred because I'm not stuck in the bathroom all the time.  I only go about 2 times a day on it with no urgency.  Hopefully the remi will kick in by the time I'm done tapering. 

Mom of Three(Two Boys and One Girl)
29years old
Ulcerative Colitis(severe whole colon)
Diagnosed March 2009
Allergic to Asacol, Lialda, and Imuran
Currently on Pred and Remi
Remi not going to well!(I think I had a reaction the first infusion they want me to try again)

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, September 24, 2018 4:08 PM (GMT -6)
There are a total of 3,006,185 posts in 329,312 threads.
View Active Threads

Who's Online
This forum has 161825 registered members. Please welcome our newest member, TheRayf.
320 Guest(s), 9 Registered Member(s) are currently online.  Details
Georgia Hunter, ezhoe, Wings of Eagles, Admin, Zimica, Tudpock18, Uniform Charlie, 61Impala, Shayanv