Had one hospitalization while living in NY, almost 9 years prior to first flare up in Florida.
Relocated to Florida 6 years ago. Was hospitalized three time's the first three years I have lived here.
Damp climate and heat.
canasa suppositions 1x in the am
Hydrocortosone enena 1x eve
asacol 400 mg 6 tablest 2x per day
fish oil x3 daily
prednisone...started at 10mg went up to 283mg in the hospital which is a crazy amount of prednisone.
Finally to stop the bleeding I had Remicade infusions which took about
1-2 weeks to get me back on the road to remission.
Remicade infusion takes approx. 3 1/2 to 4 hours through IV. It is a combination of mouse and human antibodies to stop the bleeding. Got chemo type side effects. Nausea and vomiting the next day. The day of I just felt very tired. Had two additional tx of Remicade several weeks later. Kicked me into remission.
After three hospital visits lasting three weeks , three years in a row....I went and saw a AP DOM. Acupuncture Physician /Dr of Oriental Medicine. Within 5 weeks I was down to one medication out of the 15 I was taking! I have remained on Asacol tapering the dose as needed.
I have been getting bi monthly acupuncture treatments ever since and have remained in remission, ( in great health...bike 23 miles 5x per week)until recently I accidentally ate expired mayonnaise that I had just purchased at the grocery store which altered the state of my intestines....and I am currently having a mild flare up. :(
Bumped up the acupuncture treatments to bi weekly
hydyocortisone enema nightly for about
Started canasa suppositories today
Next week I will try raw herbs which I will cook, strain and drink. First time trying it, so I will post how I respond to herbal treatment in conjunction with western therapy.
Currently I have some urgency to have a bowel movement.
Diarrhea in the morning without blood
Afternoon mucus w/ some bleeding.
A sinking feeling in the rectum area in the afternoon and evening
I cooked organic jasmine rice ( made very soupy...lots of liquid ) yesterday with some chicken for dinner, very bland diet.
Cook the rice and then drink the rice water. ( as much as you can) It is very good to stop the diarrhea.
Be very careful if you are hospitalized.! I was never given support stockings, lifts or encouraged to walk while in the hospital. The only time I got up daily was to shower and the nurses hated that as I needed to have everything I was hooked up to unplugged. I ended up surviving a pulmonary embolism about
two weeks after I got home. I had been to my primary care doctor seven times complaining of leg pain and they never made the connection. I was LUCKY...but I ended up back in the hospital and told to get my personal affairs in order as the next 72 hours were crucial. I had three blood clots in my left leg and if they traveled ( large) it could be fatal. Had to take coumadin for a year! Currently off...as I am an not a clotter, HOWEVER having UC puts you at greater RISK of Blood Clots!!!!!
I will post my reactions to the herbs I will start next week. If we can control our symptoms and remain in remission with out taking so many prescript
ion drugs that would be WONDERFUL. I have been successful.
I am confident that we can stay in remission for longer lengths of time and possibly never get a flare up again. It will take some trails however I remain confident.
Post Edited By Moderator (Judilyn) : 9/4/2009 3:11:36 PM (GMT-6)