Just got home from the G.I

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bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/3/2009 3:23 PM (GMT -6)   
hi everyone. i just got back from my G.I. he's taking me off the asacol & wants me to start Lialda tomorrow morning.
 
Is anyone else taking this?Does it work?
 
he wants to me to do 3 tabs every morning.which is better then the 12tabs of asacol i take a day
 
& of course continue with the pred
 
i still have this unbearable headache! it tricks me by going away i get so happy & then it comes back a few hours later! ughhhhhhh
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 3621
   Posted 9/3/2009 3:29 PM (GMT -6)   
I just started Lialda myself. I worked up to the 3 pills a day. I'm only on day 5 and I haven't noticed a difference yet. Keep us posted.
Very mild left sided (could have fooled me with the "mild")  UC. Started and stopped LDN ON 1/25/09 to mid May no improvements. Supplements: Probiotics, multi, iron, caprlic acid,  trying a new peptid replacement therapy, started Lialda on 8/31/09. Getting IV of vitamins and minerals for 12 weeks. I take lomotil as needed.


bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/3/2009 3:40 PM (GMT -6)   
oh no.i hope it works!!! good luck to you! i'll deff keep everyone posted
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 9/3/2009 3:49 PM (GMT -6)   
Yes, I have been on it for about 2 years and it has worked very well for me. I am currently taking 3 a day - all in the morning with breakfast. I have not had any side effects. Lialda has helped lessen the frequency of my flares and has helped make the flares I do have less severe...I hope it helps you. Please feel free to ask me any questions about it as you go forward, not many people have been on it as long as I have it seems...
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day
Cort-enema nightly
Canasa in the morning
Probiotics Daily
 


bella7
New Member


Date Joined Aug 2009
Total Posts : 19
   Posted 9/3/2009 3:52 PM (GMT -6)   
yeah my doctor said that its suppose to be better & that he just recently started prescribing it more because people have had good results with it.i hope im one of them! :)
19 yr old female.diagnosed with ulcerative colitis in feb 08 :(
have been in a flare since the beginning of august 09.UC sucks!
Asacol 400mg - 4tab 3x a day
Lialda-3tabs in the morning
prednisone-two 5mg tabs three times a day=30mg a day
Rowasa enema-every night
a cup of aleo vera juice every night before bed
started vitamins - zinc,fish oil,slippery elm,b12,iron
 
I'll try anything to get better!!


thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 823
   Posted 9/3/2009 3:59 PM (GMT -6)   
I hope you are too - it is nice to only take 3 pills once a day! I have gotten down to as little as 1 a day at times...very nice!
Dx 2006 right after the birth of my daughter
Lialda 3 pills a day
Cort-enema nightly
Canasa in the morning
Probiotics Daily
 


twoply
Regular Member


Date Joined Jun 2008
Total Posts : 24
   Posted 9/3/2009 4:14 PM (GMT -6)   
I was on it for about 3 months. It worked great for me and the just stopped cold. I spent the last year on Colazal which was ok but I went into a flare and it wasn't as effective. I'm now on Apriso and it seems to be working better than the Colazal. I'm also tapering off Pred. I'm down to 5 mg and hoping to get off completely by the end of the month.

It seems everything is just trail and error. I hope the Lialda works for you.

Good luck.
Dx w/ UP in 2005; Dx with UC in 2008
Was taking: Lialda and Mesalmine Enema (1x per day); Colazal (9 per day);
Now Taking: Pred-a 10 mg/day down from 40mg but experiencing bone loss; Apriso - 4 per day; mesalmine enema nightly
Tricor for Cholesterol
Male; age 43; Located in Atlanta


JewelsOK
Regular Member


Date Joined Jun 2007
Total Posts : 364
   Posted 9/3/2009 4:21 PM (GMT -6)   
My son got vicious headaches on sulfasalazine and his doctor switched him to Lialda and his headaches have all but vanished. Just the occasional run of the mill headaches. He was taking 4 Lialda (2 am & 2 pm) while flaring, but now that he is back in remission he just takes 2 per day.

Hope the Lialda works great for you!!
Julie

Mom of Son 17 UC dx 07/02, Prednisone 2.5 mg, Lailda 2 am & 1 pm, Azasan 100mg, folic acid, L. Reuteri, Culturelle, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Prednisone 2.5 mg, Colazal 750mg x 4, 6MP 12.5mg, Iron, Vit/Min., Culturelle


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 16403
   Posted 9/3/2009 7:58 PM (GMT -6)   
3 Lialda is 1200 mg less than you currently take. If you see symptoms, you may want to take 4 which would be equal to your current dose.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron
 

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