OT--so unbelievably tired

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Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 9/3/2009 3:53 PM (GMT -6)   
I'm pretty sure I've posted here before about my fatigue issues. But I started classes this week and it's almost unbearable. Sure, I usually get a bit more achey during the first week of school b/c of walking, but last night I could barely stand. My shins hurt. I'm not a deep sleeper, but I have been the last couple days. Last semester, I got by on 7 hours of sleep + 2 hour naps; this past week, even though I haven't even had all of my classes, I'm sleeping 8-9 hours + 2 hour naps. I can barely open my eyes when my alarm goes off. The best feeling to describe the fatigue is "heavy," like my body is weighed down with fatigue.
My UC is under control and my allergies have been doing pretty well, especially considering how much more I'm outside now. My rheumy did hint at fibromyalgia once, but she said my symptoms weren't bad enough to do something about it. My GI doesn't know what the fatigue could be. At this point, I don't know how I'm going to survive this semester, especially since I have grad school apps and whatnot. Heck, I don't know how I'll even survive "real life" (i.e. working 40 hours per week)  shakehead
Sorry if this is rambling. I just woke up from a nap and I'm in a bit of a fog.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin

Serenity Now
Veteran Member

Date Joined Jan 2009
Total Posts : 2156
   Posted 9/3/2009 5:51 PM (GMT -6)   
I assume your iron levels have been tested?
ack, 43, Vancouver BC
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 

Forum Moderator

Date Joined Dec 2008
Total Posts : 16744
   Posted 9/3/2009 7:52 PM (GMT -6)   
That is how I felt when I was anemic. My iron is better now but I am still somewhat tired. I've always been a tired person, maybe this is just how I am. I can sleep a good 8-9 hours a night and still want an hour nap during the day.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 9/3/2009 10:28 PM (GMT -6)   
My iron levels have been normal (although on the low end of normal) for almost two years; it's checked every 8 weeks. I'm also taking vitamin D supplements.

Veteran Member

Date Joined Feb 2005
Total Posts : 6448
   Posted 9/4/2009 12:48 PM (GMT -6)   
Are you taking any B-12; pills or shots? That might help as well.

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
Co-Moderator for the UC Forum

Regular Member

Date Joined May 2008
Total Posts : 191
   Posted 9/4/2009 5:32 PM (GMT -6)   
I know exactly how you feel.

I had the worst beginning to this week. I had to go back to bed after I took my shower, which would be an hour after waking up. I just couldn't stay up!

I might have had a bug though...I woke up on Wednesday morning like nothing happened.

I'm usually super tired all the time. I don't know what to do about it anymore!
22 years old

Diagnosed with moderate/severe UC June 2007, I've had it since December 2006.

Haven't been on here in a while (finally graduated college).
Update as of 5/26/09 - Now taking Imuran 100mg/day.
2 Lialda/day.
Vitamins - Caltrate+D, iron, A, B12,
Flintstone Complete+iron, and aloe vera pills/juice.
At least I'm off the Entocort. =]

Veteran Member

Date Joined Apr 2009
Total Posts : 654
   Posted 9/4/2009 6:44 PM (GMT -6)   
I'm the same way.  I sleep about 9-10 hours a day and I take a one to two hour nap during the day.  about an hour after I get up I can hardly stay awake.  It is nuts.  I agree it is like you are in a fog.  It's really hard to pay attention and to remember things.  My GI says this is part of UC but it is crazy.  Somedays I don't know what is worse, going to the bathroom all the time or the fatigue.  smhair   I started B-12 shots about two months ago and I haven't noticed a difference at all in my fatigue.  Isn't UC great?
Mom of Three(Two Boys and One Girl)
29years old
Ulcerative Colitis(severe whole colon)
Diagnosed March 2009
Allergic to Asacol, Lialda, and Imuran
Currently on Pred and Remi
Remi not going to well!(I think I had a reaction the first infusion they want me to try again)

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 9/4/2009 7:10 PM (GMT -6)   
My B12 levels were way too high back in July (I don't remember the exact number, but my rheumy was shocked to see such a high level). She even had me go off my multivitamin (Forvia) b/c that was my main source of B12 and I can't take any multivitamins until my B12 is checked at my next Remi infusion.
I just don't understand why I'm so fatigued when I've been in remission for 8 months.
Female, Age 20
Remicade, Colazal, VSL #3 DS, Vitamin D Rx, Calcium, Prozac, Turmeric, Biotin

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