Hello! I am Laura, I am 34 and I live in MD. I have been married for 9 years this Wednesday, and my DH and I have 2 daughters, ages 4 and 3. I used to be a school library media specialist in an elementary school before quitting to start a family. Now I am a SAHM, which I love...most days. ;)
I had 2 breech births-first was an emergency-and both were c/s. I had terrible recoveries and had to take a lot of antibiotics. I am allergic to pen., so I had limited options. Symptoms for me started a day after coming off of antibiotics after the birth of my younger daughter, and the one concensus is that it was that overuse of abx that triggered my disease. My dad has psoriasis and my brother has vilitigo, so there is a genetic component with autoimmune, I suppose.
I am scared to death of what Humira might be doing to me, but scared to death to go off of it, so there I am with that. I have been told it is possible I have a crohns/UC combo, so I want to avoid surgery.
I used to have a lot of hobbies, but now I have kids. But I do love to cook, my hubby's parents have a farm and we have a vineyard over there (we are harvesting this weekend), and I ama singer. I cantor at my church and sing weddings and such.
We want more kids-but we are on hold. I need to lose weight-I never lost from being on pred-and I am not sure what to do on the meds front. If I get pg I will obviously be out of the Humira trial. They said my GI can probably get it covered (especially if I do in fact have the crohns component too), but if not, I would have switch to remicade, and I am even more afraid of that than Humira. So we'll see what happens. Of all the horrible things about
this disease, that is the one that bugs me the most. I hate that our family may never feel complete to us because this disease has forced us to stop having children, and who knows if it will even be possible! The pred really screwed up my cycles and I don't even think I am ovulating anymore, more than a year after being off of the pred.
All in all though, I feel blessed and fortunate. I am hoping that someday there will be a better understanding of all of these AI diseases, better treatment, and most importantly, steps for prevention. One can hope!! The only thing worse to me than deaing with this would be watching my children suffer through one of these horrible diseases. My hat is off to those of you who are parents to a UC child, and all parents of sick children.
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Biweekly injections for Humira clinical trial-going well so far!!
Back on Canasa-causes terrible joint pain.
Also take multivitamins, milk thistle, Femtrol, MegaFlora Plus, MegaZyme and Peppermint Oil daily.