when im flaring, you cant keep me off this forum!
open in a browser window. and i work from home on the computer so its up all day.
when im in remission, im too busy feeling good and out and about
to check the forum and it kinda just stops.
when you feel good, its not always on your mind.
now that i think a flare might be starting, im back. its great support and its nice to chat with other about
all our crappy issues!
and so many questions come up all the time that you cant go to your dr 7 times a day everyday! so ths place is perfect for information and personal first hand experience with the meds etc rather than a leaflet in the prescript
i think 6 months is the longest ive ever gone without flaring.
and im not sure what works and what doesn't. its different for me everytime and i dont have mild flares unfortunately. they all go severe!
pred usually works (but ive taken it too many times now and cant take it anymore)
xango juice works (i ran out and stopped recently and im in a mini flare, so i just got more and am taking it again. hopefullly it works this time too)
fish oil (enteric coated so it gets to colon)
WHAT DOESN'T WORK
meslasine - not sure. i keep taking it for years now and my flares still come and go regardless, so i dont know if its doing anything or not.
anyhoo... back to original question... usually those who are miserable or sick and not feeling good will be more active in a forum like this than those without the same problems. its the problems that make us seek support advice information and experience.
of course all those lovely people who offer their support whether sick or healthy are here too! (thankgod)
steph - 33 - female - gold coast australia - UC since 2000
im in i might not be in remission anymore! no symptoms for last few months until yesterday.
just taken off imuran due to intolerance
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
pregnancy and breastfeeding vitamins, xango juice 30ml x3 a day
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.