i had severe pancolitis for a year and 4 months.
hospitalized and went down to 95lbs. was aneamic and had iron infusions. tried all drugs and 'miracle' cures from the net.
dietician and even tried the new agey hokey stuff.... nothing worked.
then it went away overnight.
was fine for 6 months then grandma got cancer and it came back. stress is my trigger i reckon.
had severe pancolitis again, but again, it went away one day.
now im flaring again and its quite mild. and the time before this was just a few months and went away. that was moderate, but only left sided.
so it does get better and sometimes worse. it is different for each flare.
and when i got better, i was competely better with not one single symptom. you'd have no clue i was ever sick except i was skinny as.
each time i get better, i am on different vitamins, drugs etc.... so my remissions are not brought about
by the same fix every time. so its very difficult to get better the next time im flaring.
the things i find that have helped me are :
enteric coated fish oil
those are the things that im on everytime i get better. for meds, pred works, but ive taken it too many times so i get the side effects much quicker etc...
not sure about
the mesalasine as ive been on it for years and flares come and go regardless. so i wonder if its not doing anything at all. if it worked, i shouldnt flare right? frustrating a bit...
i already feel better after a week of flaring this time. so im hoping it was just a glitch in the matrix.
but dont lose hope... which is easier said than done.
dont get me wrong, i was a miserable sook when i was sick and the pain was intolerable....but i was okay. i havent had surgery and i did get better.
take your meds and try different things as everyone responds differently to everything.
you will find something that works.
steph - 33 - female - gold coast australia - UC since 2000
im in i might not be in remission anymore! no symptoms for last few months until yesterday.
just taken off imuran due to intolerance
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
pregnancy and breastfeeding vitamins, xango juice 30ml x3 a day
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.