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Going to need help with resources...

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Ulcerative Colitis
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Posted 10/12/2009 2:51 PM (GMT -6)
Since the crash, we lost our resource section that is usually found at the top of the forum.  If anyone knows of a good and educational website that I can add once the admin creates the resource section again, please let me know!
Posted 10/12/2009 3:43 PM (GMT -6)
You should add the link to the Patient Assistant programs.

Remicade

REMICADE ® (infliximab) PATIENT ASSISTANCE PROGRAM
P.O. Box 221709
Charlotte, N.C. 28222-1709
866‐489‐5957 (p) 866‐489‐5958 (f)

http://www.pacificinfusion.com/forms/Remicadeptassistform.pdf

Humira

1-866-4-HUMIRA
http://www.myhumira.com/InsuranceHelp/FAQ.aspx

Asacol

http://www.pgpharma.com/patient_assistance.shtml

Canasa

http://canasacare.com/

Lialda

http://www.lialda.com/lialda-patient-assistance-program.aspx

Various

http://www.needymeds.org

There is also a site where you can find clinical trials:

http://clinicaltrials.gov/

Posted 10/12/2009 3:47 PM (GMT -6)
I really like that needymeds website. It offers a wide variety of meds. Thanks for those links...anything else up your sleeve? :)
Posted 10/12/2009 3:51 PM (GMT -6)
How about Dragon Pack support site for parents of children with IBD

www.dragonpack.com/ibdsupport/parents/
Posted 10/12/2009 6:12 PM (GMT -6)
http://www.needymeds.org/resourcepages/crohns_colitis.shtml
There's the needymeds site. It also has a link to find free/reduced cost clinics.

http://www.ccfa.org/ccfaprof/ibd-journal/Dec%202008%20-%20Management%20of%20the%20Pregnancy%20IBD%20Patient.pdf
And there's the link to the IBD and pregnancy article. This one won't work as a clicky...it has to be C&P'ed into the browser window.
Posted 10/12/2009 9:48 PM (GMT -6)
The NIH site:

http://digestive.niddk.nih.gov/ddiseases/pubs/colitis/

this site has a chart comparing symptoms and factors in UC, Crohns and other types of colitis:

http://hopkins-gi.nts.jhu.edu/pages/latin/templates/index.cfm?pg=disease3&organ=6&disease=20&lang_id=1

from Mayo, information about diet:

http://www.mayoclinic.com/health/ulcerative-colitis/DS00598/DSECTION=lifestyle-and-home-remedies

Posted 11/15/2009 5:50 PM (GMT -6)
From Meesh--thanks, Meesh!
(the words below are her words, just to give credit where credit is due)

If you are having trouble getting something approved by your insurance company that you or doctor believe you would benefit from go to this link: http://www.patientadvocate.org/

They are a nonprofit organization that will help you deal with your insurance company, help you file appeals if necessary, and generally have your back.
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