Going to need help with resources...

Since the crash, we lost our resource section that is usually found at the top of the forum. If anyone knows of a good and educational website that I can add once the admin creates the resource section again, please let me know!

@--->--SHERRY--<---@

Moderator for Allergies/Asthma and Co-moderator for UC

~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**IBS~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA-Celebrex, Tylonel Arthritis and Voltaren Gel

To help Healingwell - click here: DONATE

http://www.myspace.com/82595818

notsosicklygirl

Forum Moderator

Joined : Dec 2008

Posts : 17173

Posted 10/12/2009 2:43 PM (GMT -7)

You should add the link to the Patient Assistant programs.

Remicade

REMICADE ® (infliximab) PATIENT ASSISTANCE PROGRAM
P.O. Box 221709
Charlotte, N.C. 28222-1709
866‐489‐5957 (p) 866‐489‐5958 (f)

http://www.pacificinfusion.com/forms/Remicadeptassistform.pdf

Humira

1-866-4-HUMIRA
http://www.myhumira.com/InsuranceHelp/FAQ.aspx

Asacol

http://www.pgpharma.com/patient_assistance.shtml

Canasa

http://canasacare.com/

Lialda

http://www.lialda.com/lialda-patient-assistance-program.aspx

Various

http://www.needymeds.org

There is also a site where you can find clinical trials:

http://clinicaltrials.gov/

Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)

Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic

Canasa nightly + Asacol (9/day) + Probiotics + Iron

Red_34

Forum Moderator

Joined : Apr 2004

Posts : 23578

Posted 10/12/2009 2:47 PM (GMT -7)

I really like that needymeds website. It offers a wide variety of meds. Thanks for those links...anything else up your sleeve? :)

@--->--SHERRY--<---@

Moderator for Allergies/Asthma and Co-moderator for UC

To help Healingwell - click here: DONATE

http://www.myspace.com/82595818

JewelsOK

Regular Member

Joined : Jun 2007

Posts : 364

Posted 10/12/2009 2:51 PM (GMT -7)

How about Dragon Pack support site for parents of children with IBD

www.dragonpack.com/ibdsupport/parents/

Julie

Mom of Son 18 UC dx 07/02, Lailda, Azasan 100 mg, Primadophilus Reuteri, Zyrtec, Iron, Vit/Min

Daughter 10 UC dx 08/07 Prednisone 5 mg, Colazal, 6MP 25 mg, Culturelle, Iron, Vit/Min.

fruitgirl

Veteran Member

Joined : Feb 2009

Posts : 7150

Posted 10/12/2009 5:12 PM (GMT -7)

http://www.needymeds.org/resourcepages/crohns_colitis.shtml
There's the needymeds site. It also has a link to find free/reduced cost clinics.

http://www.ccfa.org/ccfaprof/ibd-journal/Dec%202008%20-%20Management%20of%20the%20Pregnancy%20IBD%20Patient.pdf
And there's the link to the IBD and pregnancy article. This one won't work as a clicky...it has to be C&P'ed into the browser window.

Status: Remission since May 2009!

Symptoms began in November 2008, ~4 weeks after giving birth to my son

Diagnosed with pancolitis on 1/30/09

Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, OrthoNovum, multivitamin. Used prednisone (starting dose 40 mg) to get into remission.

jujub

Elite Member

Joined : Mar 2003

Posts : 10416

Posted 10/12/2009 8:48 PM (GMT -7)

The NIH site:

http://digestive.niddk.nih.gov/ddiseases/pubs/colitis/

this site has a chart comparing symptoms and factors in UC, Crohns and other types of colitis:

http://hopkins-gi.nts.jhu.edu/pages/latin/templates/index.cfm?pg=disease3&organ=6&disease=20&lang_id=1

from Mayo, information about diet:

http://www.mayoclinic.com/health/ulcerative-colitis/DS00598/DSECTION=lifestyle-and-home-remedies

Judy

Co-moderator, Ulcerative Colitis

Diagnosed in 2001, finally in remission since March 2006.

Mesalamine is not my friend and steroids are from the devil. Remicade has been my miracle drug.

fruitgirl

Veteran Member

Joined : Feb 2009

Posts : 7150

Posted 11/15/2009 4:50 PM (GMT -7)

From Meesh--thanks, Meesh!
(the words below are her words, just to give credit where credit is due)

If you are having trouble getting something approved by your insurance company that you or doctor believe you would benefit from go to this link: http://www.patientadvocate.org/

They are a nonprofit organization that will help you deal with your insurance company, help you file appeals if necessary, and generally have your back.

Status: Remission since May 2009!

Symptoms began in November 2008, ~4 weeks after giving birth to my son

Diagnosed with pancolitis on 1/30/09

Thread with links to UC resources and information:

https://www.healingwell.com/community/default.aspx?f=38&m=1613482

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