LookingfortheCure, Unfortunately we are aware of the nasty side effects. He has tried Lialda, Humira, Remicade, rectal Entocort, Asacol and other rectal medicines in the meantime while trying to taper the prednisone, but every time, he has to go back to it. He had to be hospitalized twice so that the prednisone was given through IV as he was losing too much weight and the pain was unbearable.
During all this, I have and still give him VSL#3 DS, fish oil, turmeric (the raw root), Aloe Vera, home made yogurts, SDC diet. He gets better for a couple of months, (always while on prednisone), but once we decrease it to 5g, the symptoms start again, so we never knew if any of the supplements were working or not. I bought the psyllium seed powder, (I am not sure if what I bought is the correct one, as I could not find the powder anywhere where I live, included Whole Foods, I could find the husk powder but not the seed powder), and he is going to try next. He only has 6MP to try, (he started with it yesterday). If that does not work, we will have to consider surgery...
The doctor wanted him to be on 60 of prednisone and we said definitely not and asked if he could be hospitalized instead and given it through IV, which does not give him so many side effects. The doctor said that it was the same thing, but I know it is not.
Also suggested the fecal transplantation, and I might be able to convince him. Other than that, I think the bee propolis is the only thing that we have not tried yet.
It is very very frustrating. Thanks for listening and caring. It is so hard to see him suffer.