Sex ? ??????????

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Regular Member

Date Joined Sep 2009
Total Posts : 102
   Posted 11/18/2009 9:19 AM (GMT -7)   
Hi all

I have had uc flare for a year, has been made alot better thanks to pred, but i still have a flare in my rectum .... it feels sooo swollen which is making it hard for me to have/want sex!

I guess the vagina being so close to the major swelling its going to really upset everything but its getting to me a bit now!

Do any of you ladies have any words of wisdom to share ???

I am on 3g Salofalk and 1g pentasa suppository .... which makes everything a bit more sore to be honest !


thanks xx

Regular Member

Date Joined Mar 2007
Total Posts : 390
   Posted 11/18/2009 9:45 AM (GMT -7)   
I'm male, don't know if there's a difference, but the Prednisone can definitely mess with your drive.
12 Asacol
100 mg Imuran

Veteran Member

Date Joined Aug 2007
Total Posts : 2198
   Posted 11/18/2009 12:18 PM (GMT -7)   
Omega3s help reduce inflammation. A healing implant enema and/or healing ointment may help.
Diagnosed with ulcerative colitis spring 1999. Have been in remission for years with only a few minor blips. Scope on 6/22 showed no inflammation at all.
Maintenance dose sulfasalazine. Probiotics, vitamin D, fiber supplement and fish oil caps. George's aloe vera juice and l-glutamine for gut healing. Mostly grain-free and dairy-free low carb diet.

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/18/2009 12:36 PM (GMT -7)   
Maybe try a different rectal med...the only rectal med that brings me relief is cortifoam.


Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 11/18/2009 12:53 PM (GMT -7)   
what about neosporin with pain relief? You cannot use it forever, but it helps me when I get butt blisters.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/18/2009 1:46 PM (GMT -7)   
Sex has many health benefits though, it releases endorphins....


Veteran Member

Date Joined Mar 2009
Total Posts : 1439
   Posted 11/18/2009 5:39 PM (GMT -7)   
Crazycolitis- **** and ********** is nowhere near as fun as with a partner. Also, if you're in a relationship with an active sex life, suddenly not being able to partake despite wanting to can cause extra stress, and is pretty frustrating for the sick person.

Imagine having a tasty cake in front of you, but you can't eat it cause you're lactose intolerant. Instead, someone gives you some shortbread cookies. The cookies are alright, but you KNOW the cake would be so much better, richer and more decadent. That's pretty much the difference there.

To the OP: I have the same problem. You have two choices: either find a position that doesn't hurt as much (though with me that tends to be tempremental) or stick to foreplay until you're not flaring so badly anymore.
22, female, diagnosed 3/6/2009, symptoms for 2 years beforehand
Mild ulcerative colitis from rectum to mid transverse colon
Currently in remission
Currently on asacol 3x3 daily and eating lots of yogurt. Calcium and D pills and probiotic pills when I remember.
Things that help: probiotics, omega 3's, oral 5-ASAs, low fiber when flaring, soluble fiber, low saturated fat diet
Things that hurt: insoluble fiber, fried or spicy food, caffeine, alcohol, rectal meds when not flaring

Veteran Member

Date Joined Jun 2009
Total Posts : 2009
   Posted 11/18/2009 6:26 PM (GMT -7)   
I second Malkavian.
19yr old female diagnosed with UC (mod-sev pancolitis) in 2005 at age 15
125mg Azathioprine 1xday
2000mg Fish Oil 1xday (out) / 500mg Turmeric 3xday /
450mg Boswellia 2xday / 400IU Vitamin E 1xday /
2 Fiber Choice tabs 1xday / Depo for birth control
Arthritis in both knees
Also: asthma, acid reflux, and Reynaud's Syndrome

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/18/2009 6:49 PM (GMT -7)   
I totally get where crazycolitis is coming from and I believe those suggestions probably would be very helpful but I agree, being married myself I'd rather have good old sex then anything else...and I'm 100% my hubby feels the very same way...though on occassion there's nothing wrong with having the "cake" and the "shortbread cookies" together especially if you happen to have a big "appetite" LOL.

I prefer side-ways myself or from behind (standing up) sorry if that's too much info, it's less preasure on the rectom and anus and with my anal skin tags I need all the comfort I can get.


Regular Member

Date Joined Dec 2007
Total Posts : 47
   Posted 11/19/2009 2:11 AM (GMT -7)   
Yeah, uh.....what pb4 said. LOL, I can't believe on this forum with what we all talk about so freely that we think talking about sex is TMI! Too funny!
Age/Sex:  52 & female
Diagnosed:  2005 pancolitis
Medications:  800 mg. Asacol twice a day - in remission; Two 1200 mg. fish oil supplement nightly.   Effexor-XR 150 mg. daily

Regular Member

Date Joined Jun 2009
Total Posts : 82
   Posted 11/19/2009 2:52 AM (GMT -7)   
Having just got my mojo back after a two-month long disgustingly chaste flare... I have to say that certain positions still rub me wrong (unfortunately one of them is my partner's favorite and one I usually love :-( ), we just have to play around and experiment.

Me on top seems to help quite a bit because I can control the speed, pressure and whatnot.

Also, when the flare was more mild, before it got bad and we stopped having sex, if I was hurting with penetration, then digital manipulation helped keep us sexually active without irritating me.

You just need a LOT of patience, communication, and humor for both partners.

And yes, prednisone does seem to mess with desire. It took me like three times as long to climax as usual. But it happened.

Oh yeah... and morning sex after the suppository evacuation might work better... or before insertion in the earlier evening. I haven't tried sex after putting in the suppository and quite frankly, wouldn't want to.
 28 year old American vegetarian in South Korea.
Diagnosed with Mild UC May 2009.
Currently on Asacol 2 pills/3 times a day and nightly suppositories of the same.
A prescription pro-biotic (in Korea they're prescribed) called (ironically) "Antibio"
Flaring since October.  Was in the hospital for 10 days.
Tapering Pred 25 mg/day.
Going crazy from the need to eat everything in sight (especially cheese).

Regular Member

Date Joined Oct 2009
Total Posts : 22
   Posted 11/19/2009 4:35 AM (GMT -7)   
I totally understand where you are coming from. When I am in a flare it hurts to have sex and I feel guilty not wanting to have sex even though my husband is very understanding.
When the area down there is so inflamed it is no way pleasurable to be touching and feeling around down there.

Regular Member

Date Joined Dec 2008
Total Posts : 254
   Posted 11/19/2009 10:36 AM (GMT -7)   
I agree with a prior poster. On top is about the only way I'll do it when I'm not feeling so great.
34 yr old female
Diagnosed with Pancolitis in 1/2007
Baby Girl 3/2009
Meds: Lialda, Prednisone on and off.

Regular Member

Date Joined Nov 2008
Total Posts : 183
   Posted 11/19/2009 1:12 PM (GMT -7)   

Stupid question…how to deal with hemmi and anal skin tag? They are ruining my sex. I'm so ashamed if my hubby sees it, brrrr… really thinking about surgery on it or something. Any idea how to manage it?


1 Lialda and 9 Colazal per day
Canasa 2xday
Cortifoam if needed
Pregnant, due in february! It's a BOY!

***I'm not sick with UC, it's UC sick with me!***

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 11/19/2009 2:41 PM (GMT -7)   
I have very large perianal crohn's skin tags, I cannot have mine removed or I'll end up worse off, we pretty much "get busy" in the dark anyways but my hubby has seen them, he says he dosn't care and I believe him, afterall he isn't perfect (anymore) either, we've been together for decades and I've had the skin tags for almost as long as we've been together.

You can certainly talk with a surgeon about surgery options for yours though...I have but learned it wouldn't be worth it in my special case.


Regular Member

Date Joined Jul 2009
Total Posts : 142
   Posted 11/19/2009 4:35 PM (GMT -7)   
umm..well that explains some things...Now I know why some things felt off or uncomfortable prior to my bad flare..Just one more thing I thought was normal...

Crazy, I don't get my period either but I still love sex...
Left sided UC Pancolitis : Diagnosed 7/09
Currently on Pred 40mg, Lailda 2.4 once a day Asicol 2 pills 3 times a day
Supplements: Bromelain 3 times a day, Tummeric 3 times a day, Good Belly probiotics 1 time a day. Multi, Vit D, B-complex. Soluable Fiber supplement.. 
currently in remission Slightly flared if that is possible..

Regular Member

Date Joined Sep 2009
Total Posts : 102
   Posted 11/20/2009 12:12 PM (GMT -7)   
Hi all thanks for all your responses !
Where to start !!
Im married so i want to have sex with my hubby ! We have 2 youmg children so dont do it alot ! But it would be nice to not have to think about my ass all the time. The pain has been quite unbearable lately ... Im seeing my doctor tomorrow to see what he can do for me.

Thanks for all the position ideas .. I will see if ontop helps !

I wouldnt worry about how your bum looks... I dont im more worried about how it feels and if im going to crap myself infront of people! I have skin tag but my hubby does too, not every one is perfect, those that are dont stay like it for long !!! x

Thanks again all xxx

Veteran Member

Date Joined Aug 2008
Total Posts : 5932
   Posted 11/20/2009 5:43 PM (GMT -7)   
     Well sweetheart...I am 63 yrs old...married over 40 yrs....when my tuccus is in an uproar...SEX is the LAST thing I think about...heheheheheh.
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Meds: Colazal, 6MP, prednisone taper, probiotics, Benicar, calcium and multivitamin
Remission...too short...Sept and Oct.  Now in bad flare again...blood and mucus...back on prednisone, off the 6MP, waiting for approval from ins co to start Remicade.

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