So I just got back from my first Remicade infusion and boy oh boy was it boring!! I was the only patient there. I got to the hospital a little after 10 and the treatment didnt really start until close to 11. It really wasnt bad at all, my GI didnt order any benadryl so I'm not groggy or tired at all, I actually feel really good!
My GI is starting to ween me off of the Pred (currently at 40mg) down to 30mg. It;s going to be tough to see how well the Remicade is doing while on the pred because I'm so steriod dependent.
I'm praying that the Remi works though, my spirits are pretty high right now and I hope it stays the same. My 2nd infusion is scheduled for 12/14, I'll keep you all updated on my progress.
Age: 26 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Diagnosed with PSC: 3/9 --now taking Urso
Lialda - 4 once a day
Waiting for 1st Remicade Infusion date - Praying it works!
Mens Multi Vitamin - 1 a day
Vitamin A Deficient - 10,000mg a day
Calcium & Vitamin D3 - 1200mc of Calcium and 800iu of Vitamin D3
Jaro - Dophilus Probiotic (3.4 Billion) - 1 a day
~~~Praying for a cure~~~~