Posted Yesterday 11:56 AM (GMT -7)
Thanks all for your responses. thatfield, many people believe the scd is low carb, it's not, it's specific carbs. I mentioned that my daughter is lowerish carbs but that I don't want to restrict her carbs too much. There are so many differing view on this. In the low carb literature, carbs (especially grains) are a serious problem which cause or worsen many diseases. According to the standard food guides, they are a necessity but there are many questions on the influence of agribusiness on the development of these guides. All I know is that my daughter, prior to being diagnosed, ate a primarily organic vegetarian diet with eggs and dairy. Grains were the basis of her diet and they were whole grains (pasta, sprouted bread, quinoa, etc). In fact, when she was in the hospital and put on a low fibre diet the GI recommended white bread. She was so excited that she called it "cake bread". She'd never seen it before. It broke my heart because I had been doing everything right, as far as I knew. I am now very open to looking at other opinions and approaches. She does have fat and caloires (even carbs) in honey, fruit, meat, full fat yogurt, cheese, butter, nut flours and butters, coconut, avacados etc. I really don't trust doctors when it comes to dietary or nutritional advice and when I mentioned the SCD to the ibd nutritionist she immediately developed an attitude and became very condescending. I believe it's because she is the "expert" who is supposed to advise us and we took some initiative on what is supposed to be her turf. Now she just advises us on her bloodwork results - ie. vitimin/mineral levels etc. I understand your concern though and am always watchful of this. Dr. A, I'll look up the study for you. I was told this by my daughter's GI in fact and I've run across references to it in several places. I'll track it down. It was one of the reasons that my GI was pushing for surgery over remicade at the time, when it looked like the IV pred was not working. Thankfully, it did. I believe she was referring to the longer term effectiveness of remicade and not just the initial response, but I can't say for sure. Fruitgirl, thanks for the advice. We are in Canada and I believe we are able to get free counseling here to but it's very limited and there's a waiting list. I'm looking for someone who does specialize in medical trauma or chronic illness. I know people who have seen such specialists with excellent and even life saving results. It's just a matter of finding one... Also, knock on wood, I think my daughter is in remission though she is anemic so her bloodwork is not entirely normal.