Okay, I'll share (sorry I have no positive experiences)...
What didn't work: A.M.P. Molocure (now Floracel), Aloe Vera Juice, SCD, Primadolphili Reuteri, VSL#3 (although I didn't use what they recommended so I'm trying the VSL#3DS), flax seed, fish oil, bee propolis, anti-inflammatory foods) I will say I mostly tried them after initial symptoms of a flare were already coming on. I used some of them while in remission but do not believe they are powerful enough for someone like me with moderate to severe left sided UC. Reason being is they don't have a chance to rest against the colon wall in those inflammed areas becuase as soon as the stool reaches those inflammed areas the colon turns spastic in order to move it along and out (antispamodics don't seem to help this either).
What works to stay in remission is to keep from getting ill by staying healthy: multivitamin, sleep, exercise, playing, laughing, avoiding or learning to deal with stress, avoiding illnesses as best one can (wash hands).
43, male, UC diagnosed in 1985
Flares occur after some illness: food poisoning, flu, mono...
Flares last 6 months to a year and lately involve several weeks of severe symptoms with lots of diarrhea, blood, pain, fever, dehydration.
Remissions last 1 to 4 years and are absolute with no symptoms
March 2009 colonoscopy showed no signs of UC; azathioprine reduce from 100mg to 50mg
Started current flare August 2009, bleeding by October 2009
Current Meds: 100 mg azathioprine, 750 mg Colazal 6/day, 400 mg Asacol 6/day,
Lialda 2/day, 60 mg 50 mg 60mg 80 mg prednisone
Currently in hospital, severe left sided colitis
100 mg predisolone, demoral for pain
Xanax, Valium for anxiety
Eating "low residue" hospital diet, (foods that produce small stool; no fiber)
Tegretol XR for epilespy
Lost hearing in right ear in 2004
Post Edited (Burli) : 12/11/2009 1:14:16 PM (GMT-7)