It appears we agree more than not.
I also listen to what my mother, father, aunts and uncles have to say about
what they were given as children and have learned so much from just recently (over the last ten years) asking them detailed questions about
what they were given as children for illnesses and what foods bothered them.
One example is my mother and grandmother were always bothered by milk (said my mother). One's first assumption might be that they were lactose intolerant because of so much media attention and posts in here crucify lactose. Within the last year I had my mother narrow down the problem as not being lactose (skin milk does bother her) but milk fat; whole milk, butter and real ice cream give her diarrhea. For years I bought soy and rice milk thinking I too may need to stay away from lactose; posts in here scared me from all dairy. The soy milk actually made things worse because it gave me so much gas. I actually enjoy rice milk but skim milk doesn't bother me. Adding dairy back to my diet is so much easier to maintain bone density; lost by the meds I take and plus I just love dairy.
That’s why I object to someone advising others to avoid grains, gluten, etc. “NO” I say, don’t listen to a few folks that read the SCD theory and now want you to drastically change your diet because of zero scientific research; only testimonials. I did it twice and almost died from it so I get passionate about
my posts sometimes. People come in here and are told that they tried these diets and are getting worse and are advised sometimes to ‘stay the course because it gets worse before getting better…that’s when I speak up.
Another thing my mother wants me to try is a tablespoon of castor oil every night...She said they were always given that for everything as kids and, according to my mother, it "worked".
open minded to supplements and alternative treatments that make logical sense. I believe in probiotics and vitamin supplements. I tried pomegranate juice but didn’t notice anything.
I guess I draw the line at acupuncture but I suppose it can relieve stress; just seems overpriced.
I heavily looked into fecal transplant but don’t believe I would benefit from it. I just caution others to research it more before reading some posts, doing it at home and potentially doing harm.
43, male, UC diagnosed in 1985
March 2009 colonoscopy showed no signs of UC; azathioprine reduce from 100mg to 50mg
Started current flare August 2009, bleeding by October 2009, hospital 12/9-12/15
Current Meds: 150 mg azathioprine, 60 mg prednisone, 750 mg Colazal 6/day, 400 mg Asacol 6/day, Rowasa enema nightly, VSL#3 DS, Lialda, started Remicade on 12/17/09
80 mg solumedrol; demoral, Dilaudid, oxycodone for pain, Zolfran for nausea
Tegretol XR and valium for epilespy