I haven't been on the forum for a while but when I got back on, I saw how many people responded to this thread and it made me very happy. To be honest, i was getting discouraged reading so much about
pharmaceuticals and surgery that I decided to lay off the forum. I understand it is my own issue and not everyone's because everybody seeks help and support on this forum in whatever form which I think is great.
I spent a week at Dr Lad's Ayurvedic Institute in New Mexico last week and admitted myself to their Panchakarma clinic. It's more or less a guided cleanse consisting of a mono-diet of kitchari (mung beans and rice with herbs) and a series of treatments all to help treat a disorder that also depends on your ayurvedic constitution. I went in there hoping to find answers about
my UC, which is now in remission, but I came out with so much more understanding about
who I am and the habits that I have created that do make me ill. It was a week of total seclusion, contemplation, yoga, and support from all these practitioners and healers. I feel very different, like a foggy cloud was cleared and I see more clearly. Anybody who might have a chance to do Panchakarma, should. I am a lot more peaceful about
the whole UC thing even when a flare-up may come back around, my state of mind is at a point where I can learn to accept and then work from there.
I know it sounds so airy fairy and I know it works for me but maybe not for the whole. All I guess I'm trying and we're trying to do is spread knowledge and awareness about
what we've found. There's a whole science to this alternative stuff and of course, it takes a lot longer for it kick in because we are trying to restructure who we think we've been our whole lives. It took us this long to get out balance, it'll take us some time to correct it. I'm sorry for all those who suffer so much with this and reach points of frustration that seem unbearable. I was there, too, and I hope that I won't be there again because it is so debilitating. But it is nice to realize that others share the same perspective and hearing about
yoga postures, diet, and people's positive experiences with alt medicine gives me more hope that this disease is beatable without drugs or surgery.
PS--I'm still on the drugs, too, and have come to the conclusion that they are just as important in keeping UC in control as all my alt med stuff. I've talked to my GI and have decided to stay on them for a few years despite the possible complications they might entail. I, like everyone else, do not want to go through another flare-up if I can avoid it. But whatever might happen, I'll deal with it then. I'm at peace with that...
28 year old female
Diagnosed with Ulcerative Proctitis Jan/2008
Ulcerative Colitis Sept/2008
3 major flare-ups in one year. Last flare July 2009-Nov 2009
100 mg of Imuran, 2 pills 2x daily asacol
Ayurvedic and anti-inflammatory diet with regular acupuncture and herbs and a shift in lifestyle
VSL #3 probiotic, daily vit, vit C, B12, D, cal and mag, folic acid, omega 369, vit E, astragalus, turmeric, iron, glutagenics (L-Glutamine), psyllium fiber, ayurvedic herbs
LONG TERM GOAL: would like to get off meds someday through a series of mind, body, and soul overhaul...