You are DEFINATELY not alone in that department! I too was in a flare for over a year, on Pred for half the year and now that I'm off the Pred (for not even a week yet), I'm having abdominal pain and don't know what the heck it is yet.... I have been venting quite a bit lately and feel free to vent here all you need..
The people here are amazing to say the least and if you ever need the support of someone who knows EXACTLY what you are going through, you have found the right place.. this place has been such a blessing for me.. when I feel alone, I post here, check back in a few hours and usually have several replies, so people are here and caring for us all :)
Diagnosed with Ulcerative Colitis January 31st, 2005
Remicade, One infusion October 22nd, developed symptoms of MS 3 weeks later, Brain MRI showed multiple lesions.. eek!
MEDS: No more Prednisone as of 1/06/10!!!!! Started my taper as of 10/23/09..woo hoo!!!
Apriso 1.5gm once a day, Nexium 40mg once a day, Wellbutrin 150mg once a day.