Constant flare..burnt out

Hang in there. I know how you feel (exactly how you feel) and it will get better. I am 26 and have also been on pred most of '09 (diagnosed exactly a year ago). Flared 3 major times for months at a time. Just went back on pred last week...you're not alone, and the people who think you are lazy are not your real friends. People who at least try to understand what you're going through are the people you want in your life. It will get better!

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Diagnosed with pan-ulcerative colitis in Dec '08. Hospitalized for two weeks in Jan '09. Experienced 3 flares during the remainder of the year

Current Medications:
Remicade (every 4 weeks) - increased from 8 weeks after severe flare.
6MP - 25mg (reduced from 50 mg when my hair started falling out - gah!)
Asacol - 400mg x 6 per day (reduced from 12)
Alprazolam (anti-anxiety) - .25mg per tablet (I take up to 4 at a time to feel an effect)
Hydrocodone - the only thing that seems to calm the bowels. My savior. I know it's addicting. I am already addicted. Gimme.
Ambien - 10mg before bed

Previous Medications:
Prednisone - never again! I did not respond to 60mg of oral steroids, nor 100mg of IV steroids. It took half a year to ween off of this drug and I don't intend to go back
Flagyl - never EVER again! Worst cramping I've ever experienced. No reason to take it again.
Rowasa - couldn't hold it in (even with Ambien and Hydro overnight)
Bentyl - was taking up to 4 per day with little to no effect. Emphasis on the NO effect.
Also took a few other anti-spazmodics (including Hyomax) with no effect.

You are DEFINATELY not alone in that department! I too was in a flare for over a year, on Pred for half the year and now that I'm off the Pred (for not even a week yet), I'm having abdominal pain and don't know what the heck it is yet.... I have been venting quite a bit lately and feel free to vent here all you need..

The people here are amazing to say the least and if you ever need the support of someone who knows EXACTLY what you are going through, you have found the right place.. this place has been such a blessing for me.. when I feel alone, I post here, check back in a few hours and usually have several replies, so people are here and caring for us all :)

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 Diagnosed with Ulcerative Colitis January 31st, 2005

Remicade, One infusion October 22nd, developed symptoms of MS 3 weeks later, Brain MRI showed multiple lesions.. eek!

MEDS: No more Prednisone as of 1/06/10!!!!! Started my taper as of 10/23/09..woo hoo!!!
Apriso 1.5gm once a day, Nexium 40mg once a day, Wellbutrin 150mg once a day. 
 
        http://www.myspace.com/77016897  

I agree, who else can understand your frustration and pain then other Uc'ers??? As for going for a walk, do you have a rec center near you, one that has a walking track? I have one near me that has an indoor track near the glass roof of the building that I've been thinking about visiting.

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