Posted 1/21/2010 11:13 AM (GMT -7)
You sound like you are in a very similar situation to myself. I have had colitis now for 15 years, untreated. I have tried so many different kinds of medication, but each time nothing worked for me, making my symptoms worse, and most pills giving me severe stomach pains and vomiting.
I am very small as well, i always have been. I am around 7 stone, probably 6.5 stone now as i have been flaring since christmas. I tried going to my doctors today but know one could help me!! I was chasing after my doctor and consultant all day, and guess what, i didn't get to speak to either of them, and didn't get any treatment. So i have kind of figured out i am on my own with this one.
You might like to try what i am doing, which is looking into alternate treatments. I am getting allergy tested on Saturday. I have VSL 3 probiotics to start taking, and i am also going to give myself Vitamin E enemas.
I am also looking into Fecal transplantation, turmeric and probiotic enemas. I also need to change my diet as i have a very bland diet full of sugars and carbs which i think could be some of the problem. It will be interesting to see if i do have a food allergy or intolerance.
I know how desperate you feel, i feel the same, it feels like this is never going to end. It feels like it has taken over my life, my relationship with my husband is suffering, as well as my work and my kids.
If you want to talk, my email is in my profile.