Oh my goodness, I'm so sorry to hear you are in such pain.
And though I'm fairly new to this I'm inclined to agree that you might want to look into getting your whole colon removed. It is just impossible to have quality of life with such pain! And I know from what I've read that the surgery is no picnic but once you've healed it seems you'd be in much better shape.
I truly hope you can get something figured out and get a game plan (I love game plans)
*Amy, 33, dx with idiopathic colitis July 2009, confirmed UC Sept 2009
Asacol 3 pills 3 times daily (started this 1/09/10, was on 6 daily)
Rowasa as of 10/20/09, starting taper 11/18, nope, back to nightly!
Probiotic: Ultimate Flora Critical Care