It seems my worst symptom of this ulcerative proctitis is the severe pressure I feel in the rectum as the stool gets closer to evacuating. I can tolerate the blood and mucus, but that darn pressure and urgency is driving me up a wall!
Sometimes I wonder if all these drugs really DO anything. I am using rectal meds too. I suppose it is the inflammation in the rectum that is causing this. Always worried about cancer since my paternal grandmother died from cancer of the rectum, but I have colonoscopies and had a sigmoidoscope in June with multiple biopsies. It just showed inflammation. Wish it would go away already!
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09. Very short remission. Flared again Nov 1st. Started Remicade Nov 18th. Felt great after first two infusions. Suffered a set back after 3rd infusion on Dec 31st. Meds: Benicar, Colazal, Prednisone (hopefully short course), Calcium with D, multivitamin, probiotic. Rectal meds...cort suppository.
Posted 2/9/2010 9:13 AM (GMT -6)
I am so sorry Christine. That inflamation low in the rectum can be so stubborn and hard to treat. I find that even with rectal meds many just miss that inflamation that is so very low in the rectum. Many times I can actually feel the throbbing when I am really inflammed low in that area...
Dx 2006 right after the birth of my daughter, currently pregnant with #2!
Lialda 3 pills a day
Canasa as needed
Probiotics and Multi-vitamin Daily
Posted 2/9/2010 1:26 PM (GMT -6)
Yes, that "feeling" is horrible and I dread it so much...I'm just glad that I haven't had proctitis in quite sometime now, but I'll never forget the "feeling" you get with it. Be patient, hopefully the rectal meds will soon kick in, what rectal meds are u using? I only have luck with cortifoam myself, none of the other rectal meds did a dang thing for me.
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~
Posted 2/9/2010 1:32 PM (GMT -6)
I hate that feeling too, and I am sorry you have it. I think I am fortunate in that the mesalamine rectals seem to help me on that front.
I HATE the bleeding and the urgency. But I could even live with the urgency and just be better planned when I left the house if it weren't for the blood. I get anemic so fast that my health rapidly deteriorates when these bad flares come up and I am bleeding a lot.
It is really hard to narrow it down to one worst symptom though!!! I was thinking about this the other day-there is so much that is hard to deal with!!!
I hope you can find relief, Christine.
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Biweekly injections for Humira clinical trial-moved to weekly 1/14/10
Canasa 1000mg nightly
Also take multivitamins, milk thistle, VSL#3 (2-4 packets daily right now), Ulimate Flora Critical Care, MegaZyme, Turmeric, Bee Propolis, Omega 3, Slippery Elm and PepZin daily. P-seed powder as well (1T. in the AM)
Posted 2/9/2010 1:46 PM (GMT -6)
Yes Christine....that's my worst symptom during flaring. The absolute worst symptom for anything be it during flaring or not is nausea like when I start turning green type of nausea...no kidding!
It's all connected I think anyway,
I still think you should ask the doc for proctocedyl and it might help with some of the symptoms. Use it in conjunction with the other suppositories.
Or the rectal rockets that the pharmacy has to make according to your doc's prescription. Boxermom used them.
How many times a day are you using the suppositories?
Do you have a copy of the pathology report from your biopsies?
Hope you feel better soon....
Posted 2/9/2010 6:17 PM (GMT -6)
I had that symptom when I was pregnant and flaring ...it sucks. Now when I flare my worst symptom is abdominal pain ...not sure which is worse!
Currently it is Monday, May 20, 2019 11:21 PM (GMT -6)
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