I just posted this on another thread...
I just got off Humira, I was on it for almost two years.
I am in Canada and its still not approved for UC. I have heard that it only works in about
50% of UC patients, it works better Crohns apparently.
I started on bi weekly injections and was on prednisone at the same time. As soon as I got off the prednisone though I had to go on weekly injections..and later on ended up adding the prednisone back into the mix. I never got below 3-4 Bms a day and they were still urgent. With prednisone I was downt to 1-2 and feeling pretty normal..no urgency or anything but that was definitely the steroids working. Finally I decided to come off humira for a couple reasons. I did not feel the risks and side effects were worth how it worked for me and i was getting one illness after the other this winter...just sick all the time.
Another thing, I have a very swollen lymph node on my neck that has been seen by three doctors and will not be removed to test for lymphoma. There is a slight risk of lymphoma with Humira on top of the risk that already exists with having colitis in the first place.
I do not want to discourage you or antying..just letting you know my experience with humira..it was not horrible by any means but for me I am not sure how well it worked.
I have been off for just over a month now and feel so so..1-3 bms a day but still that annoying urgency in the morning which I will be taking care with something rectal soon.
Good Luck! and if you have any questions, ask away!
UC since Aug 2006
Been a constant battle since Feb 08 after the birth of my son
OFF HUMIRA FOR 4 weeks!
Salofalk 9 pills a day
Fish oil, VSL, Vit D, Vit C, Flax oil, reduced red meat, refined grains and dairy
Just bought physillium husks but not sure what to do with them!
Currently not in a huge flare but not perfect either...