I hope you get some answers soon so you can start to feel better. I am so sorry you feel terrible. I wish things weren't so difficult for you.
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day
Jan 09 Remission!! Canasa nightly + Asacol (9/day) + Probiotics + Iron
Relapse: Christmas 09 - Current, 5mg prednisone, 9 Asacol, Canasa - Improving