Wow, I can identify with your original post. My life has gradually gotten so small since I was diagnosed that I can't believe it. Like Sue said, it's happened so gradually that I don't even know how to get out of this trapped feeling, not going anywhere, or at least out of my own little area. And because I'm older, like JM, part of my anxiety is about winding up in a nursing home with this, only I'll bet I'm a lot closer to being there because of my age.
Remicade is my next option, so I'm at about the end of the line. I just can't seem to get off the fence and try it because I'm so anxious about it, the side effects, and how it might effect some of my other health issues.
Imuran gave me a bright spot of feeling cured for about a week. I was feeling so positive then, I even bought tickets to see Bon Jovi next month, but when I had to go off the Imuran, I'm back at square one, and now thinking, should I try to sell the tickets? This is the first event like this I've scheduled and tried for a year.
But it was amazing how quickly I wanted to jump back into life. Sometimes I notice that I can feel in remission in one afternoon, but the next day it's back to reading Readers Digest in the bathroom.
Potato... Female, 59, dx 11/07 mild left sided ulcerative colitis (50 cm), 10/09 progressed to panulcerativecolitis
Asacol 4 3x a day, Rowasa every other night, Hydrocortisone enemas every other night, Cholestipol. Considering Remicade.
Imuran caused liver function tests off the chart
omeprazole 2xday, lomotil, cholestipol, atenolol, oxazepam (anti anxiety med) when needed, VSL#3, primadophilus reuteri, childrens centrum, slow FE, nicorette gum, metamucil fiber wafers, spinach and sunflower seeds or butter